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- Scott Adams replied to AnnK73's topic in Gluten-Free Foods, Products, Shopping & Medications34Celiac getting dentures
Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed... -
- Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Restaurants1
Dedicated gluten-free Restaurants in East Bay (near San Francisco):
Those are driving distance from me--I will try to check them out, thanks for sharing! -
- Scott Adams replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Fighting for a name
I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially w... -
- NanCel replied to AnnK73's topic in Gluten-Free Foods, Products, Shopping & Medications34Celiac getting dentures
Hello, no I had to have them re done and then used a liner over the top. Many dentists are not aware of the celiac effects. Best of luck. There is other material, yet, very expensive. -
- sleuth replied to fatjacksonthecat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease22Nicotine Gum For Gluten Symptoms.. Am I Crazy?
He is not just a psychiatrist. He is also a neuroscientist. And yes, I have already read those studies. I agree with benfotiamine. This is short term while glutened/inflammation occurs. As I had already mentioned, these symptoms no longer exist when this phase passes. And yes, I know that celiac is a disease of malnutrition. We are working with...- 1
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By Scott Adams · Posted
Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma. -
By Scott Adams · Posted
Those are driving distance from me--I will try to check them out, thanks for sharing! -
By Scott Adams · Posted
I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back. -
Hello, no I had to have them re done and then used a liner over the top. Many dentists are not aware of the celiac effects. Best of luck. There is other material, yet, very expensive.
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He is not just a psychiatrist. He is also a neuroscientist. And yes, I have already read those studies. I agree with benfotiamine. This is short term while glutened/inflammation occurs. As I had already mentioned, these symptoms no longer exist when this phase passes. And yes, I know that celiac is a disease of malnutrition. We are working with a naturopath.
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I do not have personal experience but my mom was a vegie for a while. When she started eating meat again it did not always sit well with her. It took several months for this "feeling" to go away. Keep in mind she was not dx as celiac yet so that might have had something to do with it as well. Hope you find better health with or without it!
Hez
We were veg or vegan for 8 years.
We've added meat back in due to all our intolerances. Amazingly we didn't have any problems picking back up on meat products. We buy our beef and chicken from www.uswellnessmeats.com
Wonderful meat.....100% grass fed.
Start out slow just in case though.
BTW, we all feel much better eating meat than not eating it. I really think it depends on each person. Some do better with, some do better without.....you have to listen to your body.
thanks for everyone reponses. i'm also blood type O which is supposed to eat meat. i hate meat, it grosses me out but im gonna try and see- maybe i wnot feel exhausted all the time.
thanks
I feel for you. I haven't eaten meat ever in my life, but now that I can't eat SO many things and I am so sick of the stuff I do eat after two years, I have seriously considered it. I just wouldn't have a clue how to cook it. Plus, I am scared my body wouldn't know what to do with it. Beans don't seem to agree with me very well and that is what I have been eating alot of the past two years. Goodluck trying it and let us know how it goes.
Monica
What kinds of bean and/or bean products have you tried?
My middle daughter didn't eat meat for probably 10 years. She wasn't a strict vegetarian, but simply didn't eat meat. Not too long after she was diagnosed, she began to eat it again, fearing she couldn't get the protein she needed. It didn't take her long to begin saying, "Man... I missed this stuff!!"
I was a pretty lax vegetarian for a couple of years.... my girlfriend was so I only ate meat viviting parents etc.
I had a friend that was vegetarian strictly for 7....
I think if you think its disgusting its going to sit badly... regardless...
As an example I always haten fish, especially fishy-fish (if that makes any sense) but after diagnosis I ended up eating sushi...
First few times I really gagged... it was a struggle to just keep it down and after it felt like lead...
I'd say the main thing is quality meat/fish in small amounts... better a little organic beef than a burger or steak of supermarket meat?
Overall I'd say why not just gradually introduce it as a subsistute in your normal veggie diet...
A little in a stir-fry instead of a steak .... some chicken in a fajita with LOTS of vegetables. etc. ??
We require amazingly little meat to get our daily dose... of proteins... so I don't think either the standard meat 3 times a day or strict vegan is healthy .. rather sometihng inbetween in moderation...
Personally now I tend to eat meat once a day... sometimes a huge steak but sometimes just a bit of chicken in a risotto or something... So instead of making meat meals make meals with some meat???
For me, I buy organic free-range chicken and my conscious feels better about it. First, if you can afford it, organic tastes really great. Second, at least I know they had a quality life before they went to market. I only buy one or two chickens a month. This gives us three meals of chicken. Then I make stock/soup with the leftover carcasses. I also eat fish and shellfish.
I tried beef after not eating it for many years and I didn't like the taste anymore. Even though I like pork, I just can't bring myself to eat it anymore.
Start slowly! Your body needs to gear up to produce the proper enzymes to digest the meat. Might take a couple of weeks to adapt.
I was once vegetarian, had horrible problems with blood sugar. Would probably be diabetic by now if I'd kept it up. I'm finding the Paleo diet is doing me a lot of good.
I ate red meat when my boyfriend said, "Baby, there's nothing on this menu you can have!"I ate steak strips on a salad. (It was late at night and I hadn't eaten all day, so a salad wasn't going to cut it.)My stomach hurt.
And since then, I've eaten it once or twice a week with NO problems.
I only eat good quality steak and good quality ground beef, and pork ribs.
It was weird cooking it, to be honest.
btw-- b4 dx, when iron was too low to give blood- I was perplexed since I ate so many dark green veggies, and do you know what the blood bank people tell you to eat to raise iron? CREAM of WHEAT!! It has TONS more iron per gram than any meat or veggie!! I ate it, was so sick(didn't know about celiac yet), but my iron skyrocketed in just a few weeks!
so i had a few pieces of chicken last night- just two bites really was all i could handle mentally. i didnt get any weird stomach aches so thats good. i guess ill slowly just increase it to three bites and then four bites- it tastes so weird!!
Glad at least it didn't make you feel sick
I went about 10 years only eating chicken or turkey occasionally. No red meats at all--I was prettty strict with it. When I tried steak for the first time after that, it tasted odd--very strong and the texture took some getting used to again.
I'm glad I went back to eating meat because since I've been gluten-free, I can't tolerate plant proteins at all.
I think your plan is a good one--go slowly and carefully to see how different things sit.
I just started eating meat again after five years of being veggie. I find that meat sits well in my stomach. I never feel sick after eating it. Veggies and grains do not always sit well, I think because they're harder for the body to digest. It's frustrating because I want to not eat meat, but I know it won't make me sick and on days when my stomach is already upset, I don't want to eat a bunch of veggies and make it worse. I do buy free range/hormone free.
Oh, the one meat that doesn't sit well is beef. That always seems to upset the stomach so I don't eat it. Chicken, turkey, fish, etc seem to be ok.
Groan...I'm dealing with this right now. I've been a vegetarian for 30 years, but with my current problems, I am running out of foods to eat. Several of my friends have been suggesting that I should start eating meat again, but I just can't imagine it. I'm not a radical vegetarian by any stretch (one of my friends is a deer hunter), but when I visualize eating meat again, I just picture myself throwing up all over the place. My vegetarianism is real tied into my identity, plus I have a real aversion to meat. I am going to try eggs this weekend, though. Maybe that will be enough.
I credit eating meat again for helping me figure out my Celiac!
I had been vegan/vegetarian/pescatarian (in that order) for 12 years, and been having celiac symptoms for about as long. Last September, while in England, I fell off the wagon when a favorite aunt made a favorite child hood meat dish. Loved it.
Starting eating meat again, a few weeks or a month after returning, went on the South Beach diet to lose weight, something I'd never consider before because I thought it would be too hard as a vegetarian. Lot's of things started feeling better. One thing leads to another, and I figure out the Celiac and get diagnosed.
My wife likes to joke about the 3 weeks she's known me where I could order anything on the menu.
What's so funny is how I remember eating vegetarian things that were meant to taste like meat. You'd think it'd be just a quick hop back to real meat...