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College Student Recently Diagnosed With celiac disease


BlackburnK

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a1sacch Rookie

oh! this will probably help more.

usually i just drink rum or vodka, but when its going to be a long day of drinking, and i dont want to pass out by noon- i drink "woodchucks"-they are a fermented apple cider, not tooo expensive and really good.


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KaitiUSA Enthusiast

I'm a college student to but I do not live on campus. Once you get used to it , it will be very easy. It takes some adjusting but you can have alot that many people can have. There are great substitutes that are becoming more readily available. You have to find the right brands but we can help you here. You can message me and I will be glad to give you some info. You came to the right place:)

NoGluGirl Contributor

Dear BlackburnK,

I second the sandwiches on gluten-free bread. I actually had my first sandwich since going gluten-free yesterday. It was divine! :D I love big, stacked sandwiches! I am not supposed to eat yeast, though. I kind of felt like I have to eat the bread with yeast since my father paid so much for it. It is a rare treat for me due to affordability.

Sincerely,

NoGluGirl

DestinyLeah Apprentice
To anyone that reads this, please reply with any info you would like to share with me!

I am a college student, always on the go, love to eat out, love to snack.

2 weeks ago I was diagnosed with Celiac disease. I am struggling to find good things to eat.

Do Puffins Cinnamon Cereal have gluten in it?

Are there other names for gluten that is on the ingredient list?

How come some wheat free foods are not gluten free??

I loved miller lite, any one try the wheat free beer?

Also what liquors do I stay away from? or do I have to be that girl and ask everytime I want to get a drink?

Any other info you would like to share, please do, since I am learning everyday.

Thanks,

Krista

Redbridge does not taste like Miller Light, but is good. Try it, you will like it.

I lived off of Honey Rice puffins when I got out of the hospital. They still make me smile.

Even if you ask, 9/10 bartenders have no ides where the alcohol they are serving came from, or what it is made from.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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