Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weak Legs?


holdthegluten

Recommended Posts

holdthegluten Rising Star

does anyone else have weak legs all of the time. My upper body feels pretty strong, however my legs always feel tired and weak. I am very good about following the gluten free diet and i cant figure out why my legs have no strength. I am pretty active, And 27 years old. Its not like i cant walk, but their just not the same. Should i try to build them up by weightlifting?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest micah

Hi,

My legs are weak like noodles all of the time. Exercise only makes them worse though. I don't know if it's the same thing you have, but I've only been gluten free for 8 days. They are still very weak. I'm only just now suspecting celiac after 9 years of weak legs along with other awful symptoms.

Micah

EBsMom Apprentice
does anyone else have weak legs all of the time.

My mom had leg weakness as one of her major symptoms when she was hyperthyroid (Graves Disease.) Have you had your thyroid checked?

Rho

BRUMI1968 Collaborator

I have pretty weak legs too, but part of that is because my torso and my legs don't get along, thanks to a crazy pelvis. I just started physical therapy, so hopefully it will get better.

Maybe try pilates to strengthen the whole body, to see if you get the top and bottom working together to take some of the pressure off your leg muscles.

-Sherri

  • 1 month later...
ZoFlies Newbie

At the pilates studio I worked at a colleague of mine had a client that had celiac disease. She gained a lot, particularly stength in her legs, from doing pilates. She started out with 1/2 a session (30min) and built up to the full hour. Check out my profile for more!

georgie Enthusiast

My weak legs and backache was caused by low B12. Much better now I have had the B12 - symptoms return a little before a jab is due and then improve each time.

  • 6 months later...
MariaS Rookie

Since November 07, I have noticed my legs get very weak. I also have found that the new additives and preservatives being put into our entire food supply (from meats to canned goods) are what's causing it.

I never had this reaction ever in my 63 years of living and I play tennis, so I know weak legs.

I know it's the additives because my lips and tongue start to burn after eating that product. But the worst side effect are the very weak legs. It can last for 24 hrs or until the chemicals are expelled.

Just thought I'd update you on what's going on with foods these days and people who already have allergies.

Other than not eat the product, I wondered if there was some natural remedy we could try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
does anyone else have weak legs all of the time. My upper body feels pretty strong, however my legs always feel tired and weak. I am very good about following the gluten free diet and i cant figure out why my legs have no strength. I am pretty active, And 27 years old. Its not like i cant walk, but their just not the same. Should i try to build them up by weightlifting?

Ahh, the old weak leg problem. First developed for me when the first arthritic symptoms came on, long before the psoriasis, long before the gluten intolerance was discovered. Happened overnight, I went on a bus-trip outing and someone had to push me up the steps!! Has waxed and waned over the years with arthritis meds, etc., etc. Went away after I went gluten free, but has now come back with a vengeance along with arthritis-like symptoms. As RiceGuy said in another thread, maybe it is candidiasis this time that is causing my problems (they can be the same as gluten). My poor gut has tolerated so much gluten over the years it is probably overgrown with everything under the sun, considering my poor immune system which has been weakened by all the antibiotics I have taken (despite the desperate probiotics attempts). I have difficulty right now climbing the stairs to go to bed. So I do have sympathy, especially considering how young you are. It can be pretty frightening because it can happen overnight. Just look at it as a symptom of something that hasn't been corrected yet. Keep looking! I don't think weights (IMHO) will help at this point--it's not a training problem.

Neroli

MariaS Rookie

I went to see my PCP and he's sending me to an allergist for these chemical reactions.

I'll let you know what he says or does. :)

  • 4 weeks later...
susieg-1 Apprentice
Since November 07, I have noticed my legs get very weak. I also have found that the new additives and preservatives being put into our entire food supply (from meats to canned goods) are what's causing it.

I never had this reaction ever in my 63 years of living and I play tennis, so I know weak legs.

I know it's the additives because my lips and tongue start to burn after eating that product. But the worst side effect are the very weak legs. It can last for 24 hrs or until the chemicals are expelled.

Just thought I'd update you on what's going on with foods these days and people who already have allergies.

Other than not eat the product, I wondered if there was some natural remedy we could try.

Am also having problems with weak and painful legs. just got blood test for myasthenia gravis another autoimmune disease that effects muscles. Also am avoiding all additives in food and even if it does not help I feel that it must be healthier all around to avoid these unnatural ingredients in food. I also find that sublingual B12 make me feel much stronger. Can be purchased at Wegmans and other drug stores. I used to do alot of weight lifting and it is difficult to live with the weakness that I now experience just walking up stairs! Hope this helps!

georgie Enthusiast

I had a bit of a relapse after my last message and am now being tested for myasthenia gravis as well. My auntie had it - and it can be genetic as its an autoimmune disease. My research shows the blood test at best is 80% accurate and at worst 50% accurate - so even if you test negative to the blood test and keep having the symptoms - you need to see a Neurologist for further testing. Seems there are treatments now if you catch it early enough. My auntie didn't get treatment and suffered terribly in her last 10 years.

  • 5 months later...
mom with kids Newbie

I went on line looking up weak legs connected with Graves disease and found Celiacs also suffer. I have both Graves Disease and Celiac. I consider myself fairly active but I went to a class at a gym two days ago and now I can barely walk. I used to be able to push 220 lbs and now I can't seem to do a simple gym class. I was diagnosed with Graves 2 yrs ago and had very weak legs then - that was one of the many symptoms I wanted to check with my Dr. Since then the rest of the Graves symptoms have all but disappeared and my Dr thinks I can go off my medication for that. So I was very surprised, and VERY disappointed to find that maybe this problem isn't behind me. Are weak legs something I am going to have to live with?

April in KC Apprentice

Check your Vitamin D status! Ask for a vitamin D "panel" test that includes levels of D3.

Vit D deficiency can cause weakness in the lower extremities.

I was deficient in D (20) after being diagnosed with Celiac. Some test ranges will say that above 30 is okay, but most experts in D say you should be at 45 or higher.

check out the Vitamin D Council website if you're low.

Most North Americans could use more D. Celiacs have even more reason for concern.

April in KC Apprentice

Also, if you're low in vitamin D, you have to do more than take a daily vitamin. That's like 400 IU...my GI prescribed 50,000 IU twice a week for a month...then retest.

But honestly, one of the best ways to increase Vitamin D is to make it the natural way...get out in the sun with minimal clothing for 20 minutes per day. Just don't burn yourself & get skin cancer.

MariaS Rookie

I get weak legs from:

chemical sensitivities

going off prednisone

GermanMia Newbie

I was diagnosed with celiac disease after a kidney operation august 2007. Although I immediately started eating gluten free, I didn't recover, was exhausted all the time and especially my legs were weak as noodles. I jogged every day but had the feeling that the thigh muscles didn't obey as I was used to. After a while I started having cramps in the calves and thighs. Finally the dr. found out I had a renal infection which had become chronic after the operation. I took antibiotics and immediately felt better - my legs felt great again! But now, five months later, it starts again - sometimes my legs are numbly weak again and calves and thighs feel nearly hard. The thighs have started to slightly hurt all the time - no bad pain, but kind of itching or mild cramping. Hard to describe.

As my gastro-intestinal problems grew stronger again, too, I switched to SCdiet. Now here I am after seven days SCdiet wondering if the strange feelings in my legs will go away? As far as I know I have no lack of vitamins or anything else.

Di-gfree Apprentice

I just started Thyroid (dessicated) in July, and I'm experiencing heavy, weak legs off and on. I have Hashimoto's so I think when I'm in a hyper phase is when it occurs. It is very unpleasant! I practically have to concentrate to get my legs moving.

I don't think I'm absorbing the T3 into my tissues (adrenal and iron problems), so I'm pooling the hormone in my blood instead of it being utilized. This is the theory I came up with, anyway.

I just saw April's comment about low vit D; and my vit D. level is 38, so it is low. I'm taking vit D3 right now, and getting retested in a couple of weeks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,913
    • Most Online (within 30 mins)
      7,748

    Jennrhart
    Newest Member
    Jennrhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.