Sad News

[amberleigh]

So sorry to hear this. I had a m/c before getting pregnant with my twins (WAY before I knew I had celiac disease). Unfortunately, miscarriages are very common these days...I have tons of friends who have suffered them as well.

I belong to a few "TTC/pregnancy" sites...I'm not sure if there's a special section for celiac disease or not. One of them is www.fertilityfriend.com. You can even set up a chart there to help track your fertile times.

Anyway, good luck to you and take some time to mourn this loss. It's never easy. (((HUGS)))

[megirae]

Susie,

I am new to this site but I wanted to say how sorry I am to hear of your loss. I too have suffered several miscarriages, one three months before I got pregnant with my son. Its hard and scary. The only advice I can offer is to let yourself mourn. It was a loss. My thoughts are with you and your family.

Megirae

[Creative-Soul]

Susie,

I am so sorry to hear of your loss; my thoughts and prayers are with you.

[Guest kivmom3]

I'm so deeply sorry for you. I know how you feel. I've had 2 miscarriages at 8 weeks and 1 fetal demise at 19 weeks. My heart aches for you.

Kiss your little boy, it helps ease the loss...

Gg

[DingoGirl]

OH Susie....I am so sorry about this and your other miscarriages. One of my best friend's cousins just had her second miscarriage last week, and her grief is so huge that she's not leaving the house.

I pray your pain will be eased.....and you will get the wonderful little baby you are meant to have. Many blessings to you.

xoxo

[Becky6]

I am so sorry! You are in my thoughts!

[April in KC]

Susie, I had a series of 7 - 9 week miscarriages after the birth of my first son. I do think gluten was related, because I had clusters of mouth sores before each miscarriage, and that is one of my current reactions to gluten now that I am gluten free. BUT, while my gluten intolerance was not discovered until later, there were other things discovered at the time.

My OB/GYN referred me to an immunologist, who did a series of blood tests with odd names like Lupus anticoagulant, Russel venom viper test, PTT, Factor V Leiden, antiphospholipid antibodies, etc. I don't know if a reproductive endocrinologist does the same tests (I hope so). Sometimes it is worthwhile to visit more than one type of specialist to get a broader perspective.

I did test mildly positive for antiphospholipid antibodies (specifically, anticardiolipin antibodies). This is considered an autoimmune condition, and blood cells are attacked and become slightly misshapen, enough to cause them to stick together in tiny clots. These clots can interfere with the blood supply to the fetus, especially in the early stages of pregnancy. The condition is called antiphospholipid syndrome (APS), but it's also called "sticky blood" and "Hughes syndrome."

My values were only low positive, so I didn't have to take Heparin injections. I started taking daily baby aspirin (even prior to conception) to help thin my blood, and this seemed to do the trick. I went on to carry two additional sons and thankfully no more heartbreaking miscarriages. While pregnant, I would continue the baby aspirin through 36 weeks of pregnancy, and then stop until delivery.

This all occurred prior to my Celiac diagnosis.

You might also search online for "recurrent pregnancy loss" as a topic.

Best wishes to you. I am so sorry for your heartache. I hope you are able to find a cause.

April

[Kelly Langenfeld]

I'm so sorry for your loss. I'm going to an fertility doctor and he said with Celiacs it's scary and we can be up to 40% infertile. I see you don't live in NYC, but if you are ever in the area I'm more then happy to give you his number, he's WONDERFUL!!! I wish you all the luck and health in the world!

I miscarried 9 mo. ago, twin girls, at 7 wks (my first pregnancy ever, not planned), am strictly gluten-free, and found your reference to celiacs being 40% infertile to be very disturbing. Could you provide me with any other information that your MD cited? I've done web searches for this before and haven't found there to be heavy evidence on either side of the issue. I'd really appreciate any other info that you were provided on this subject. My ObGyn just didn't know enough about celiac to have any position on this when I asked him. He thought that as long as I was gluten-free, that I shouldn't have anything to worry about.

Thanks a lot,

Kelly