Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Results


blue angel

Recommended Posts

blue angel Rookie

I had a biopsy done 5/6 weeks ago after my TTg blood test returning positive for celiac disease.

I have all symptoms except diarroeha ( in fact the opposite). All i get told when i call is no results yet. Has anyone had to wait this long for biopsy results?

I forgot to add that the initial result while i was in the recovery suite was Gastritis and oesophagitis and that i may need rescoping as they didn't retrieve as many samples as they needed. In the mean time i am in constant pain but can't take gluten out in case the rescope (if needed) gives a false result HELP!! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mama2 Apprentice

I would think by now you should be able to call them, they should have called by now. When I had my biop done they only took two and they cam back inconclusive. They never did the blood wrk?. But I had my results within 3wks or so. I hope you get some answers soon. sry I am not much help about the false neg stuff... I am still trying to figure that all out myself.

blue angel Rookie
I would think by now you should be able to call them, they should have called by now. When I had my biop done they only took two and they cam back inconclusive. They never did the blood wrk?. But I had my results within 3wks or so. I hope you get some answers soon. sry I am not much help about the false neg stuff... I am still trying to figure that all out myself.

Thanks for your reply but can i just ask are you now diagnosed celiac disease. It's just that you said your biop came back inconclusive. What happened after that if you don't mind my asking?

Bree Newbie

After I had my endoscopy and colonoscopy, I had to make an appt. with my GI to get my results from the biopsies for 4-5 weeks later, so I guess it can take awhile. I know when I call the GI's office, you often get a recording and they tell you how unbelievably busy they are, and that they will attempt to return you call within 48 hours, and NOT to leave a duplicate message!! Nice and cozy isn't it? I called last Monday to book my appt to get my results, and had not heard back Thursday, so called and left a duplicate message (rebel I am!) and they called me back in minutes. I told them it was unacceptable and that they should hire more people to work in the office! Anyway, my scopes were done on Sept. 7th and I go for my results on October 18th, so quite a long time!!

tmk Explorer

i got my endoscopy done on Aug 23rd and have yet to hear my results -- i went in to ask for a copy of them b/c every time i called, they said -- they're in, the doctor just hasn't looked at them yet. when i went to get a copy, they refused. i think it is so inconsiderate how they treat people, busy or not -- good luck w/ your results. i, myself, decided to go gluten free regardless of the biopsy results -- one week through now, and boy, do i feel tons better! give it a try :)

Best luck to you!!

blue angel Rookie
i got my endoscopy done on Aug 23rd and have yet to hear my results -- i went in to ask for a copy of them b/c every time i called, they said -- they're in, the doctor just hasn't looked at them yet. when i went to get a copy, they refused. i think it is so inconsiderate how they treat people, busy or not -- good luck w/ your results. i, myself, decided to go gluten free regardless of the biopsy results -- one week through now, and boy, do i feel tons better! give it a try :)

Best luck to you!!

Hi to all who replied. Just been to see my GP and he has gone mad. he says i should have heard something before now. He has advised me to go as gluten-free as i can,but can't yet give me perscriptions as they have to get the go ahead from the consultants.

He has asked me to make an appointment for next week and was personally chasing up while i spoke to the receptionist. He says they shouldn't have a right to rescope as they have left it for so long and left me getting more ill by the day. He was extremely concerned and also told me a positive ttga would not come back as positive if it was negative or would be highly unlikely. Problem i have now is finding what to eat :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,798
    • Most Online (within 30 mins)
      7,748

    Gracie B
    Newest Member
    Gracie B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.