Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Send Good Thoughts For My Little Niece


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

On Friday night, my 5 month old niece started to feel sick and had a slight fever. All of a sudden the fever spiked and she had a seizure. They sent her home from the ER and gave her an antibiotic and said it was an infection....today she was doing well and then out of no where another seizure and once again a tmep spike.

She is a tiny baby too. So we are really worried, plus it is my sisters first. They are back at the hospital and I am waiting on news.

Please keep them in your thoughts.

Amanda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Oh no, Amanda, that's horrible! I'm sure everything will be okay, but its always so scary when a new baby is sick, especially when they're THAT sick. Hang in there and I'm sure time will work its magic and she'll be back to normal in no time. I'm glad they got her to the hospital right away. I'm sure she's in good hands.

imsohungry Collaborator

Oh Amanda,

(((Hugs))) I'm so sorry to hear this. I know this must be so difficult for everyone in your family. I will definitely keep you and your loved ones in my prayers! Please keep us posted on how your little niece is doing.

Peace and blessings to your family. -Julie

confused Community Regular

I am so sorry, i will for sure keep her in my thoughts. I hope they keep her overnight. Please keep us updated on her. She is too little to be going threw this, poor little thing.

paula

Canadian Karen Community Regular

Sending prayers her way!

Friends of mine had a baby the same time we had Eileen (who is now 14). Well, for the first two years, their girl Tori, used to spike fevers very quickly and have seizures. She outgrew them by the time she was 2. It was really scary for the parents though.....

Hugs

Karen

Cheri A Contributor

Oh no! :( Prayers for little Sylvia and your family!!

jerseyangel Proficient

Oh Amanda,

I'm just seeing this--I will keep your little niece in my prayers. I hope that by now she is doing much better. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darn210 Enthusiast

Amanda,

Good Luck and Prayers to your family!!!

My good friends daughter had febrile seizures. Kids usually outgrow them by the time they are five. It is not dependant on how high the temp gets but by how fast it gets there. By the time her daughter was 3, she could actually tell her mom it was coming . . . actually, she would say in a moaning voice "Mommy, medicine", then the mom would immediately give her tylenol and strip her down and use cool wash cloths. Of course they had no idea if they actually prevented another seizure, but the believed they did. Hopefully, it's nothing more serious than that . . . but knowing what they are and knowing that they will outgrow them doesn't make them any less scary.

Hopefully, you will all have answers soon!!

Hugs and Take Care,

buffettbride Enthusiast

Awww. Poor thing. :( I hope she's on to feeling better soon.

Guhlia Rising Star

Any updates, Amanda?

little d Enthusiast

Amanda I hope everything is going ok with your niece.

A month ago one of my nurses that I work with she had her grandson in the back seat of her car taking him to the store to get some medicine for his cold and with the car being hot from the sun it was a 100 plus day outside so the car was even hotter, when they got back into the car his lowgrade fever spiked really fast that he had started having febrile seizure, she at that moment looked in her rear view mirror say that he was blue and having a seizure that luckily she was still in the parking lot of the store. She got him out of the car and stopped cars passing by her by standing infront of the cars while giving rescue breaths and telling the ladies who stopped to call 911, her daughter here at work and everybody else. Thank goodness it was her and not the other grandmother because it may not have been as pretty. It turns out that he had a double ear infection in both ears, the ER docs told her that he was lucky that she had enough sense to get him out of the car like she did.

Amanda my daughter and I will keep your niece in our prayers

donna

blueeyedmanda Community Regular
Any updates, Amanda?

No word yet, she is home again and seems to be herself again, they keep saying infection...

SunnyDyRain Enthusiast

Hope things continue to be ok. Keep us posted!

*hugs*

lmvrbaby Newbie

Hi, sorry to hear about your neice. My oldest son had what they call febrile seizures. He was 13 months old when they started and lasted until about age 3. He was put on phenobarbitol. He had to take this medicaine 2 to 3 times a day every day. Usually tylenol doesnt help except bring the fever down. The phenobarbitol would help aid with the seizure. When he would even get a temp just below 100 he would start with a seizure. It may very well be infection related but I would also try to get a second opinion. In my sons case, as I found out later, I had the same thing at approximately the same age my son was. I had no clue and was trying to get a history on his father as he was not in the picture.

So good luck and see if they can get a second opinion just to be sure. Babies being sick is no fun. I do hope they find out what is wrong and can help her

blueeyedmanda Community Regular
Hi, sorry to hear about your neice. My oldest son had what they call febrile seizures. He was 13 months old when they started and lasted until about age 3. He was put on phenobarbitol. He had to take this medicaine 2 to 3 times a day every day. Usually tylenol doesnt help except bring the fever down. The phenobarbitol would help aid with the seizure. When he would even get a temp just below 100 he would start with a seizure. It may very well be infection related but I would also try to get a second opinion. In my sons case, as I found out later, I had the same thing at approximately the same age my son was. I had no clue and was trying to get a history on his father as he was not in the picture.

So good luck and see if they can get a second opinion just to be sure. Babies being sick is no fun. I do hope they find out what is wrong and can help her

She followed up with the Ped dr this morning, who is saying it is a viral infection. So we are keeping our fingers crossed that the meds will kick it and she will be her smiling self again.

BTW. I love your avatar!

Thanks Everyone for the kind words :) We all appreciate it.

2kids4me Contributor

I will keep your niece in my prayers. Never any fun to have a sick child ...esp when they get seizures from fever. Kathryn had them when she was little - with a temperature spike.

Actually Kathyrn had a seizure when she was 13 and needed an appendectomy - she went from 102 to 104.5 in a matter of 30 minutes...luckily we were in emerg and they got an IV into her and they cooled her off a bit.

Even though intellectually I knew it was febrile seizure and due to a sudden rise in her temperature...it is frightening! It is all the more scary when a baby or small child has them - becasue they are little and so helpless.

Keep us updated...

Sandy

PS - make sure her mom is insistent about second opinion if the fever stays and doesnt go back to normal. Kawasaki disease is characterized by fever that is unresponsive to tylenol or ibuprofen and persists for 5 - 10 days, accompanied by rashes and lethargy (out of proportion to fever), as well as some other signs. Kathryn had it and was not diagnosed til 20 days after the initial fever....they can do a lot if they catch it early.

Guhlia Rising Star

Amanda, how's the little sweetheart doing by now?

blueeyedmanda Community Regular

actually very well, no fevers, smiling and playful again. Viral Infection was the final outcome. She checked out fine with her Ped Md as well. I'm glad :) She is such a little peanut. Thats her nickname.

DingoGirl Enthusiast
actually very well, no fevers, smiling and playful again. Viral Infection was the final outcome. She checked out fine with her Ped Md as well. I'm glad :) She is such a little peanut. Thats her nickname.

:o I just saw this! How did I miss it????

SO SO glad the little peanut is doing better. :) Let us pray is stays this way! Keep us updated.

  • 2 weeks later...
blueeyedmanda Community Regular

So this weekend Silvia cut her first tooth, so when she had another fever and some D my mom assured Tammy that sometimes when they cut teeth they do not feel as well. (no painful cutting of teeth though :)) SO today the seziures started again and the baby was taken to the ER. In the ER she stopped breathing. They did a lot of tests and she was diagnosed with aferbile seziures.

They also did a urine test and her WBC is high which is indicating that she is fighting an infection. Tomorrow she is having an EEg to see what if anything else could cause the seziures.

Just a little update for you guys....not exactly good news....:(

Fiddle-Faddle Community Regular

I only just saw this thread--I'm so sorry! Sending prayers and good thoughts Silvia's way and yours, too, Amanda! Please keep us posted.

When I was looking up Noah's encephalitis, I saw several links to "vaccine-induced encephalitis." Given her history, I would delay all vaccines until she is much, much older.

blueeyedmanda Community Regular
I only just saw this thread--I'm so sorry! Sending prayers and good thoughts Silvia's way and yours, too, Amanda! Please keep us posted.

When I was looking up Noah's encephalitis, I saw several links to "vaccine-induced encephalitis." Given her history, I would delay all vaccines until she is much, much older.

Thanks for the heads up, I will pass along that info. I know my sister is very scared right now.

debmidge Rising Star

Great news she's Ok and now just getting normal baby things like new teeth!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,007
    • Most Online (within 30 mins)
      7,748

    Comb0001
    Newest Member
    Comb0001
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.