Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello, Some Opinions Please

Andy-oh

Recommended Posts

Andy-oh Rookie
Andy-oh
Posted
  • Author
I now have been Gluten free for aprox 5 weeks. i was diagnosed on Sept 4th.. Before i went gluten free I had sever depression, palputations, anxiety, annemia, insomnia, basially all the things you listed. The first few weeks I really did not feel better.. However now i feel soooo much better. I still am tired but not cronically.. The depression is lifting and I feel over all much healthier. i realize and you must to that it will take time to heal. That your body needs to filter out all the gluten that has been stored and heal any damage. So stick to it, read labels carefully, and get tested! I am glad i did and so is my immediate family!! :P

Hey thanks Robinic

I only just saw your post, i feel asthough i am getting better a week in but i keep getting periods of depression, which i guess is normal and i shouldn't expect it all to go away at once, are you taking B12 vitamins ? to get tested wouldn't i have to first go back on gluten ? if so i think i'll leave it for now and see how my non gluten experiment goes first.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Robinlc Newbie
Robinlc
Posted
Hey thanks Robinic

I only just saw your post, i feel asthough i am getting better a week in but i keep getting periods of depression, which i guess is normal and i shouldn't expect it all to go away at once, are you taking B12 vitamins ? to get tested wouldn't i have to first go back on gluten ? if so i think i'll leave it for now and see how my non gluten experiment goes first.

No, you do not have to go back onto gluten to get tested. If you trully have celiac then you have damage to your intestine and unfortunatly that does not heal over night. I only take a daily vitamin, that of course in gluten free. I found them on the gluten free pantry. Most over the counter have some form of glutin in them. Hang in there.. I know how hard it is.. But i really feel so much better. My friends tell me that i glow again.. I feel and look so much healthier...

Andy-oh Rookie
Andy-oh
Posted
  • Author
No, you do not have to go back onto gluten to get tested. If you trully have celiac then you have damage to your intestine and unfortunatly that does not heal over night. I only take a daily vitamin, that of course in gluten free. I found them on the gluten free pantry. Most over the counter have some form of glutin in them. Hang in there.. I know how hard it is.. But i really feel so much better. My friends tell me that i glow again.. I feel and look so much healthier...

How are you being treated for the anemia ? or will that just correct itself ? i have ordered some subligual gluten free B12's, from what ive read you can greatly benefit from these.I'm going to keep going gluten free un-less i start to feel really bad, and up to now apart from the depression and sometimes strange feelings i feel as though i'm improving over all, i think i will definatly benefit from the B12's though, i have a hunch thats why i i'm having the depressive episodes, low b12 levels.

ravenwoodglass Mentor
ravenwoodglass
Posted

The strange feelings you are referring to could also be in part to withdrawl symptoms from the gluten. Many of us have real ups and downs for the first few weeks before things level out.

If you get your B12 levels checked make sure that you let your doctor know that you are supplementing as it will effect the tests.

The treatment for different anemias depends on how severe it is and what type it is. DO NOT start taking iron supplements unless you have testing to make sure you need to take it. Iron can be toxic in amounts that are larger than needed both in the short and long term. It can build up in organs and have some nasty effects. I am going under the assumption that you are male, but the same applies to women who are postmenapausal. Your doctor can easily check your iron levels, he also should check your folate and ferritin levels as these can help in future checkups to show how well you are absorbing nutrients and in that way the extent of healing that you have achieved.

Andy-oh Rookie
Andy-oh
Posted
  • Author
The strange feelings you are referring to could also be in part to withdrawl symptoms from the gluten. Many of us have real ups and downs for the first few weeks before things level out.

If you get your B12 levels checked make sure that you let your doctor know that you are supplementing as it will effect the tests.

The treatment for different anemias depends on how severe it is and what type it is. DO NOT start taking iron supplements unless you have testing to make sure you need to take it. Iron can be toxic in amounts that are larger than needed both in the short and long term. It can build up in organs and have some nasty effects. I am going under the assumption that you are male, but the same applies to women who are postmenapausal. Your doctor can easily check your iron levels, he also should check your folate and ferritin levels as these can help in future checkups to show how well you are absorbing nutrients and in that way the extent of healing that you have achieved.

Thanks again for the advice.

Ive heard people say that after being hevily glutened they do experience some strange feelings, sometimes of ditachment and spacy feelings, i think once ive got the gluten fully out of my system these feelings will hopefully dissapate, along with some help from the b12's, ...you could be right about the withdrawal aswell.

CarlaB Enthusiast
CarlaB
Posted

I just wanted to point out that it is important to do the testing prior to being gluten-free. Some people might have positive testing after starting the diet, but many will have false negatives because the intestines start to heal.

I believe Dr. Greene says 3 or 4 months of gluten after having been on a gluten-free diet for proper testing ... and it needs to be a significant amount, not just a few crumbs.

Andy-oh Rookie
Andy-oh
Posted
  • Author

Hello, just to check in, i'm doing a lot better after cutting gluten from my diet, still not 100% obviously that takes time but i really do think it's having an affect, my modd is still a little flat but is improving, feels a bit like when i started on anti depressants a few years ago ( i no longer take them and haven't for 2-3 years).Not started on the sub ligual b12 yet, they're in the post still.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hello, just to check in, i'm doing a lot better after cutting gluten from my diet, still not 100% obviously that takes time but i really do think it's having an affect, my modd is still a little flat but is improving, feels a bit like when i started on anti depressants a few years ago ( i no longer take them and haven't for 2-3 years).Not started on the sub ligual b12 yet, they're in the post still.

Great to hear. It does take a bit of time to heal and many of us have ups and downs for a time at first. I hope the improvement continues at a good pace and I think the B12 will make a difference also once you start it.

Andy-oh Rookie
Andy-oh
Posted
  • Author
Great to hear. It does take a bit of time to heal and many of us have ups and downs for a time at first. I hope the improvement continues at a good pace and I think the B12 will make a difference also once you start it.

Thanks Raven,

I have recieved my b12 vitamins today so i'm going to give those a go, i feel somewhat better but the depression is still with me, i keep thinking it's going but then it comes back, i should be more patiant i suppose, it's kind of a strange depression, a kind of lonely feeling yet i don't want to talk to anybody, i just don;t feel myself at times, but i'm physically feeling better than i was prior to gluten free, although some symptoms are still with me but far less servere, which makes the depression even more frustrating, ....i'll know when i feel better mentally though because i start to listen to music again.

Andy-oh Rookie
Andy-oh
Posted
  • Author

Hello again, sorry fof bumping the post again.

I was wondering if anyone experienced gluten withdrawal sypmtoms ? if so what did you experience.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.