Hello, Some Opinions Please

[Andy-oh]

  Robinlc said:

I now have been Gluten free for aprox 5 weeks. i was diagnosed on Sept 4th.. Before i went gluten free I had sever depression, palputations, anxiety, annemia, insomnia, basially all the things you listed. The first few weeks I really did not feel better.. However now i feel soooo much better. I still am tired but not cronically.. The depression is lifting and I feel over all much healthier. i realize and you must to that it will take time to heal. That your body needs to filter out all the gluten that has been stored and heal any damage. So stick to it, read labels carefully, and get tested! I am glad i did and so is my immediate family!!

Hey thanks Robinic

I only just saw your post, i feel asthough i am getting better a week in but i keep getting periods of depression, which i guess is normal and i shouldn't expect it all to go away at once, are you taking B12 vitamins ? to get tested wouldn't i have to first go back on gluten ? if so i think i'll leave it for now and see how my non gluten experiment goes first.

[Robinlc]

  Andy_oh said:

Hey thanks Robinic

I only just saw your post, i feel asthough i am getting better a week in but i keep getting periods of depression, which i guess is normal and i shouldn't expect it all to go away at once, are you taking B12 vitamins ? to get tested wouldn't i have to first go back on gluten ? if so i think i'll leave it for now and see how my non gluten experiment goes first.

No, you do not have to go back onto gluten to get tested. If you trully have celiac then you have damage to your intestine and unfortunatly that does not heal over night. I only take a daily vitamin, that of course in gluten free. I found them on the gluten free pantry. Most over the counter have some form of glutin in them. Hang in there.. I know how hard it is.. But i really feel so much better. My friends tell me that i glow again.. I feel and look so much healthier...

[Andy-oh]

  Robinlc said:

No, you do not have to go back onto gluten to get tested. If you trully have celiac then you have damage to your intestine and unfortunatly that does not heal over night. I only take a daily vitamin, that of course in gluten free. I found them on the gluten free pantry. Most over the counter have some form of glutin in them. Hang in there.. I know how hard it is.. But i really feel so much better. My friends tell me that i glow again.. I feel and look so much healthier...

How are you being treated for the anemia ? or will that just correct itself ? i have ordered some subligual gluten free B12's, from what ive read you can greatly benefit from these.I'm going to keep going gluten free un-less i start to feel really bad, and up to now apart from the depression and sometimes strange feelings i feel as though i'm improving over all, i think i will definatly benefit from the B12's though, i have a hunch thats why i i'm having the depressive episodes, low b12 levels.

[ravenwoodglass]

The strange feelings you are referring to could also be in part to withdrawl symptoms from the gluten. Many of us have real ups and downs for the first few weeks before things level out.

If you get your B12 levels checked make sure that you let your doctor know that you are supplementing as it will effect the tests.

The treatment for different anemias depends on how severe it is and what type it is. DO NOT start taking iron supplements unless you have testing to make sure you need to take it. Iron can be toxic in amounts that are larger than needed both in the short and long term. It can build up in organs and have some nasty effects. I am going under the assumption that you are male, but the same applies to women who are postmenapausal. Your doctor can easily check your iron levels, he also should check your folate and ferritin levels as these can help in future checkups to show how well you are absorbing nutrients and in that way the extent of healing that you have achieved.

[Andy-oh]

  ravenwoodglass said:

The strange feelings you are referring to could also be in part to withdrawl symptoms from the gluten. Many of us have real ups and downs for the first few weeks before things level out.

If you get your B12 levels checked make sure that you let your doctor know that you are supplementing as it will effect the tests.

The treatment for different anemias depends on how severe it is and what type it is. DO NOT start taking iron supplements unless you have testing to make sure you need to take it. Iron can be toxic in amounts that are larger than needed both in the short and long term. It can build up in organs and have some nasty effects. I am going under the assumption that you are male, but the same applies to women who are postmenapausal. Your doctor can easily check your iron levels, he also should check your folate and ferritin levels as these can help in future checkups to show how well you are absorbing nutrients and in that way the extent of healing that you have achieved.

Thanks again for the advice.

Ive heard people say that after being hevily glutened they do experience some strange feelings, sometimes of ditachment and spacy feelings, i think once ive got the gluten fully out of my system these feelings will hopefully dissapate, along with some help from the b12's, ...you could be right about the withdrawal aswell.

[CarlaB]

I just wanted to point out that it is important to do the testing prior to being gluten-free. Some people might have positive testing after starting the diet, but many will have false negatives because the intestines start to heal.

I believe Dr. Greene says 3 or 4 months of gluten after having been on a gluten-free diet for proper testing ... and it needs to be a significant amount, not just a few crumbs.

[Andy-oh]

Hello, just to check in, i'm doing a lot better after cutting gluten from my diet, still not 100% obviously that takes time but i really do think it's having an affect, my modd is still a little flat but is improving, feels a bit like when i started on anti depressants a few years ago ( i no longer take them and haven't for 2-3 years).Not started on the sub ligual b12 yet, they're in the post still.

[ravenwoodglass]

  Andy_oh said:

Hello, just to check in, i'm doing a lot better after cutting gluten from my diet, still not 100% obviously that takes time but i really do think it's having an affect, my modd is still a little flat but is improving, feels a bit like when i started on anti depressants a few years ago ( i no longer take them and haven't for 2-3 years).Not started on the sub ligual b12 yet, they're in the post still.

Great to hear. It does take a bit of time to heal and many of us have ups and downs for a time at first. I hope the improvement continues at a good pace and I think the B12 will make a difference also once you start it.

[Andy-oh]

  ravenwoodglass said:

Great to hear. It does take a bit of time to heal and many of us have ups and downs for a time at first. I hope the improvement continues at a good pace and I think the B12 will make a difference also once you start it.

Thanks Raven,

I have recieved my b12 vitamins today so i'm going to give those a go, i feel somewhat better but the depression is still with me, i keep thinking it's going but then it comes back, i should be more patiant i suppose, it's kind of a strange depression, a kind of lonely feeling yet i don't want to talk to anybody, i just don;t feel myself at times, but i'm physically feeling better than i was prior to gluten free, although some symptoms are still with me but far less servere, which makes the depression even more frustrating, ....i'll know when i feel better mentally though because i start to listen to music again.

[Andy-oh]

Hello again, sorry fof bumping the post again.

I was wondering if anyone experienced gluten withdrawal sypmtoms ? if so what did you experience.