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Fiddle-Faddle

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author

They tried to take him out of the coma, but he had 24 hours of seizures, so I guess they're going to wait some more. They are still trying to find the right combination of anti-seizure meds.

I found some links on the Internet about casein and seizures, and I know that the stuff they tube-feed is whey-based. I wonder if they could tube-feed him donated mother's milk? There are still some milk-banks around the country, though not many.

But last time I suggested it (several years ago when a dear friend was in a coma, and I was nursing a new-born), the doctors acted as though I were suggesting they use other body fluids. (Sigh...)

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Ridgewalker Contributor
Ridgewalker
Posted
They tried to take him out of the coma, but he had 24 hours of seizures, so I guess they're going to wait some more. They are still trying to find the right combination of anti-seizure meds.

I found some links on the Internet about casein and seizures, and I know that the stuff they tube-feed is whey-based. I wonder if they could tube-feed him donated mother's milk? There are still some milk-banks around the country, though not many.

But last time I suggested it (several years ago when a dear friend was in a coma, and I was nursing a new-born), the doctors acted as though I were suggesting they use other body fluids. (Sigh...)

:( I just don't get why they should be appalled by that suggestion. Human milk makes a heck of a lot more sense than milk for baby cows. :(

Mtndog Collaborator
Mtndog
Posted

Oh man.....i hope they get a clue. I'm praying for him.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author

Noah had a very bad night--he became septic. I'm told that that is under control now, but apparently they almost lost him. :blink:

Please, if you have a moment for another prayer on his behalf, he really needs it.

Thanks, everyone.

Ridgewalker Contributor
Ridgewalker
Posted
Noah had a very bad night--he became septic. I'm told that that is under control now, but apparently they almost lost him. :blink:

Please, if you have a moment for another prayer on his behalf, he really needs it.

Thanks, everyone.

Can always spare a moment. Hugs!

Cheri A Contributor
Cheri A
Posted

What does septic mean?

Saying a prayer for Noah, his caregivers, and his family and friends.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author

More than you probably wanted to know:

Sepsis

From Wikipedia, the free encyclopedia

Sepsis is a serious medical condition characterized by a whole-body inflammatory state caused by infection.

Traditionally the term sepsis has been used interchangeably with septicaemia and septicemia ("blood poisoning").[1] However, these terms are no longer considered synonymous; septicemia is considered a subset of sepsis.[2]

Signs and symptoms

Symptoms of sepsis are often related to the underlying infectious process. When the infection crosses into sepsis, the resulting symptoms are that of systemic inflammatory response syndrome (SIRS): general inflammation, fever, elevated white blood cell count (leukocytosis), and raised heart rate (tachycardia) and breathing rate (tachypnea). Secondary to the above, symptoms also include flu like chills.

The immunological response that causes sepsis is a systemic inflammatory response causing widespread activation of inflammation and coagulation pathways. This may progress to dysfunction of the circulatory system and, even under optimal treatment, may result in the multiple organ dysfunction syndrome and eventually death.

[edit] Epidemiology

In the United States, sepsis is the leading cause of death in non-coronary ICU patients, and the tenth most common cause of death overall according to data from the Centers for Disease Control and Prevention.[3] Sepsis is common and also more dangerous in elderly, immunocompromised, and critically ill patients. It occurs in 1%-2% of all hospitalizations and accounts for as much as 25% of intensive care unit (ICU) bed utilization. It is a major cause of death in intensive care units worldwide, with mortality rates that range from 20% for sepsis to 40% for severe sepsis to >60% for septic shock.

[edit] Definition of sepsis

Sepsis is considered present if infection is highly suspected or proven and two or more of the following systemic inflammatory response syndrome (SIRS) criteria are met:[4]

* Heart rate > 90 beats per minute

* Body temperature < 36 (96.8

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ravenwoodglass Mentor
ravenwoodglass
Posted
Noah had a very bad night--he became septic. I'm told that that is under control now, but apparently they almost lost him. :blink:

Please, if you have a moment for another prayer on his behalf, he really needs it.

Thanks, everyone.

I am so sorry to hear this. You are all still in my prayers daily.

irish Contributor
irish
Posted

I will certainly pray for him and his family. Loretta

little d Enthusiast
little d
Posted

My daughter and i will say prayers for his family

donna

  • 1 month later...
Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author

I update this with tears in my eyes. I don't even know what kind of prayers to ask you guys for. I received this yesterday from Noah's dad:

"Thank you for all of your kind words, thoughts, prayers and actions. I know that Noah would truly appreciate all of the support he has been given. Unfortunately, for all of us, his case prognosis does not look very good at all. IF, and now it is a big IF, he is able to come off of the heavy sedation drug, he is still not aware or awake of his surroundings. They believe that he will have severe neurological deficits in terms of motor control and function, as well as cognition. The Noah we all knew and loved is never coming back to us. We are not sure if any version of him will ever return to us either. We continue to be hopeful, yet the reality is becoming all too true. We are now hoping that Noah will declare himself, rather than us having to make an unthinkable decision.

Thanks again for your support. It helps sometimes to write things out, because saying them aloud is too painful."

lonewolf Collaborator
lonewolf
Posted

I will pray for their family and the decisions they have to make. My heart breaks for them.

wolfie Enthusiast
wolfie
Posted

I am so sorry. I will pray for Noah and his family.

confused Community Regular
confused
Posted

I am so sorry for what they are going threw. I continue praying for noah and the whole family. I cnt even imagine how hard this is on all of them.

paula

Cheri A Contributor
Cheri A
Posted

:bawling:

My heart is breaking for Noah and all who love him. Many prayers.

taweavmo3 Enthusiast
taweavmo3
Posted

I will be praying for this family......I used to work in a pedi ICU, and it is gut wrenching when families have to make the agonizing decision to take their child off life support, especially after such a long fight. I can't even imagine the pain they are in, no parent should ever have to go through that. I'm so sorry to hear he isn't doing well, I will be praying for the family, as well as yours. This must be difficult for your son as well, how is he doing?

AndreaB Contributor
AndreaB
Posted

We'll keep the family in our prayers through this difficult time. :(

Lisa Mentor
Lisa
Posted

Peace for Noah and his family.

jerseyangel Proficient
jerseyangel
Posted

I am so very sorry.

I will continue to remember Noah and his family in my prayers.

Cheri A Contributor
Cheri A
Posted

I was thinking about Noah and his family. Saying a prayer for them today, and for all of the medical staff caring for him.

ravenwoodglass Mentor
ravenwoodglass
Posted
I update this with tears in my eyes. I don't even know what kind of prayers to ask you guys for. I received this yesterday from Noah's dad:

"Thank you for all of your kind words, thoughts, prayers and actions. I know that Noah would truly appreciate all of the support he has been given. Unfortunately, for all of us, his case prognosis does not look very good at all. IF, and now it is a big IF, he is able to come off of the heavy sedation drug, he is still not aware or awake of his surroundings. They believe that he will have severe neurological deficits in terms of motor control and function, as well as cognition. The Noah we all knew and loved is never coming back to us. We are not sure if any version of him will ever return to us either. We continue to be hopeful, yet the reality is becoming all too true. We are now hoping that Noah will declare himself, rather than us having to make an unthinkable decision.

Thanks again for your support. It helps sometimes to write things out, because saying them aloud is too painful."

I am just seeing this now. I am so sorry things look so bleak. I will continue to pray for Noah and his family. Miracles do sometimes happen. I am praying for one here. When I was 11 and in a coma my family was told the same thing. All we can do is pray and wait.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author

I can't bear to write this, but--Noah died earlier today. The funeral will be on Sunday.

If anybody has any advice what I can say to his parents that might actually be comforting, please let me know....

taweavmo3 Enthusiast
taweavmo3
Posted

I am so,so sorry......poor baby. I can't imagine the agony the family must be in right now. Definately makes you realize how precious life is, we can't take for granted the time we have with our children. Rest in peace Noah.

lonewolf Collaborator
lonewolf
Posted
I can't bear to write this, but--Noah died earlier today. The funeral will be on Sunday.

If anybody has any advice what I can say to his parents that might actually be comforting, please let me know....

You hug them, cry with them and say, "I'm so sorry". I don't think that anything could be very comforting at this time. I know that they will appreciate your sympathy and tears. I'm so very sorry for them - I can't imagine losing one of my children and at this time of year too... I have tears for them.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
:( Im so sorry, my prayers are with noah and his family.

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