Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diet Related Question


woolwhippet

Recommended Posts

woolwhippet Explorer

Hello! I havebeen on and off gluten for the past year or so after gradually getting sicker and sicker. The reason for the off and on was a negative blood test. I took the neg as permission to go ahead and eat as always. Of course, I wound up sicker than I have ever been. So last week I gave up gluten entirely. The 4 days ago I started the specific carbohydrate diet. The "d" stopped yesterday. I am happy! BUT since I have now eliminated all grains, starches, refined sugar, and lactose (still eating cheese so milk protien must not be the problem) so I do not know which one of these things caused my problems!

Any advice from someone whose been there? I think I should stay on the specific carb diet for a month or so and then start adding things back. But how and in what order?

Thanks so very much!

Lenore


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It can take up to a week for the D to stop gluten-free. This would not be unusual. If you are feeling better I would stay with what you are doing for a month and then you would add in suspect items one at a time. Add them in in pure form, for example when you add back in wheat add it back in as cream of wheat or triscuits. Eat the suspect food for at least 5 days three times a day. Drop the food when you get a reaction and if you don't add another food the next week. I could be wrong but I think your cessation of the D was related to your going gluten free and dairy free and the addition of the other diet restrictions was coincidental but continuing on may help you to heal faster because you are doing what we all really need to do as far as dropping processed foods as eating pure naturally gluten free stuff.

woolwhippet Explorer

Thank you thank you! I think what you say makes perfect sense. I will add rice 1st and go from there. I don't think I will go back to those proccessed foods in any great quantity. Thanks again.

kbtoyssni Contributor

I guess there's two ways to add food back in: in the order that's most likely to make you sick (so milk first) or the order that's least likely to make you sick! It might be easier on the body and on you to add them in the least likely order. If you add rice back, it's unlikely that's the problem so it's not like you'd have a week or two of "recovering" which you might have if you added a bad food back in. Plus you'll have more food options if you do the least likely foods first.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,037
    • Most Online (within 30 mins)
      7,748

    cbattiato
    Newest Member
    cbattiato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.