Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prayer Request


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

My sister Carrie, who is 21 has been dealing with some issues in her health for the past few months, for awhile it was headaches of no origin and stomach problems, which no scans and tests could ever prove or find anything. Lately, her stomach aches have been real bad and she is bleeding *in her feminine area* She is on that birth control shot where you never get a period...so we were thinking that it might be spotting or her bodys way of trying to have a period.

The other day she is in the ER with stomach cramps again, nothing found on CT scans, X-rays or ultrasounds.

Yesterday she had bloodwork done for hyplori, celiac (my request), and stools samples for Samenilla....probably spelled that wrong sorry.

For awhile she was having major "D" after eating but now it seems more "C" than anything, so maybe she has IBS and is stressed out...my mom and I think it is more....

Please keep her in your prayers, she is such a warm caring person and I hate seeing her this way. These should be her best years.

PS-she is finished with college tomorrow, she is graduating early due to great grades....her insurance runs out tomorrow....so that is another big concern.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

I will defintely keep her in my prayers. And please keep us posted. Do you thinking maybe all the stress from grduating college would just been her trigger for celiac?

paula

jerseyangel Proficient

Of course, Amanda, I'll keep your sister in my prayers. I hope it all gets figured out soon.

dandelionmom Enthusiast

I just said a prayer for her. Is there a way to pay a little extra to extend her insurance coverage?

Cheri A Contributor

Saying a prayer for Carrie.

jennyj Collaborator

She will be in mine.

Fiddle-Faddle Community Regular

Adding my prayers.

If I were in her shoes, I would discontinue the birth control IMMEDIATELY. Who knows what preservatives and adjuvants are in those shots in addition to hormones that your body should only be producing on its own.

Think about it--how many MEN would consent to injections of hormones? Oh, wait, that's right, the sports world already does--and look at all the steroid health risks that we hear about all the time:

* premature balding or hair loss

* dizziness

* mood swings, including anger, aggression, and depression

* seeing or hearing things that aren't there (hallucinations)

* extreme feelings of mistrust or fear (paranoia)

* problems sleeping

* nausea and vomiting

* trembling

* high blood pressure that can damage the heart or blood vessels over time

* aching joints

* greater chance of injuring muscles and tendons

* jaundice or yellowing of the skin; liver damage

* urinary problems

* shortening of final adult height

* increased risk of developing heart disease, stroke, and some types of cancer

But do we ever hear about the risks of birth-control hormones for women? Of course not--it's (again) big $$$ for the pharmaceutical industry. But compare the list of side effects of Depo-Provera:

Side Effects:

*70% of women using Depo Provera gain weight. Almost half of the women using Depo Provera gain more than 5 pounds after one year of use. Many women gain more than 10 pounds.

*Irregular, heavy, or no bleeding are common side effects of Depo Provera. After a year of use, many women stop having periods. Lack of a period becomes increasingly common with longer use.

*Other side effects of Depo Provera can include headaches, nervousness, mood changes, bloating, hot flashes, decreased interest in sex, breast tenderness, acne, hair loss, and back ache.

*After the last shot of Depo Provera, it can take over 6 months for the drug to leave the body. Side effects may linger until the drug is completely gone

The more research I do, the more I learn that if we swallow what the pharmaceutical industry feeds us (including their "medicines"), we pay a huge price...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Oh Manda, your family has been through a lot this year, both happy and sad. I will keep your sister in my prayers and hope that they find something soon.

UR Groovy Explorer

Amanda,

Also saying prayers for your sister.

I wanted to add that a few years ago when I was taking DEPO shots, my whole system went completely haywire - very irregular bleeding (of concern), huge moodswings, headaches (some migraines), I was very out of control on that stuff. All kinds of really nasty stuff happened to me. It may be the DEPO with your sister. I had to get off that stuff ASAP.

Hope she's doing better soon.

kat

blueeyedmanda Community Regular

I know she just started the BC shot. She had been having problem for some time before that. She is still pretty ill tonight and with the nasty winter weather I wont be able to get home to see her this weekend.

Green12 Enthusiast

Amanda,

I hope your sister finds some answers and gets to feeling better soon.

Green12 Enthusiast

Amanda,

I hope your sister finds some answers and gets to feeling better soon.

debmidge Rising Star

Some health insurance advice....however I don't know if this applies to every state in US but it's worth checking out.

When a health policy is stopped or ends due to end of employment etc. your state might require that an employer offer a COBRA extension if the employer you work for is large enough and qualifies.

If coverage is thru school there might be a way to convert it to an "Individual Policy" for a premium cost of course.

Generally, in some states, if your health coverage lapsed more than 60 days, and you take out new insurance you are subject to a "pre-existing condition" rule. If you take a policy out within that 60 day window, a "pre-existing condition" rule does not apply. To verify if your state has this rule or not, you should talk to a health insurance agent in your state.

Manda, have your sister check with the school's Health Care Coverage Administrator about an extension and its cost; or call a local health insurance agent (but you have to bug them as an individual health policy doesn't make much commission and agents tend to ignore clients with lower premiums - for example, a business health policy could cost $30,000 per year and that's the phone call the agent would most likely call back immediately and not an individual whose coverage would cost only $2000 per year. Sorry to say this, but I know my own industry & how they think.)

She might want to call a Blue Cross/Blue Shield health insurance office in her state of permanent residence and get a quote from them directly.

If she's married, and her husband has coverage at work, he should add her to his work coverage immediately.

Now, having taken hormones and had bleeding as a young 20ish woman I can testify that you can get some really bad "breakthrough bleeding" on it. Estrogen does stimulate fibroids and makes them grow...and if a fibroid is located on an artery in uterus, the bleeding is more and sometimes never really stops after a menstrual period....(yeah, I had this going on too) perhaps she has these benign fibroid tumors?

ravenwoodglass Mentor

I will pray that they get to the bottom of this quickly. Sounds like you aren't the only celiac in the family.

Fiddle-Faddle Community Regular
I know she just started the BC shot. She had been having problem for some time before that. She is still pretty ill tonight and with the nasty winter weather I wont be able to get home to see her this weekend.

If she had problems before, her doctor should NEVER have started her on BC shots.

I think she needs a new doctor. And possibly a malpractice attorney.

blueeyedmanda Community Regular
I will pray that they get to the bottom of this quickly. Sounds like you aren't the only celiac in the family.

If she is celiac that will be interesting, my sisters were both adopted :) I have no biological siblings.

wolfie Enthusiast

Saying a prayer for Carrie. I hope that she gets some answers and starts feeling better soon.

confused Community Regular
If she is celiac that will be interesting, my sisters were both adopted :) I have no biological siblings.

its just like me and my stepson, no blood relation but are both celiac, so go figure lol.

paula

Guhlia Rising Star

Any updates on Carrie?

DingoGirl Enthusiast

Amanda......I am late to this thread! I had no idea.....any updates?

Saying a prayer.....let us know.

hugs......

blueeyedmanda Community Regular

Still waiting on test results. I did talk to her and she is not in as much pain, no more bleeding but still not feeling well. She said when she is better she will go snow tubing with me and my Little Leah.

Little Leah is a child who was a baby in my parents foster home and she then got adopted when she was 3. We remained in close contact with her adoptive family who lives about 15 minutes away. She always said I was her best friend. She turned 8 yesterday. We are penpals now since she can read and write letters. I live 2 hrs away and don't get to see her as much now.

Judyin Philly Enthusiast

AMANDA, PRAYERS BEING SENT FOR YOU AND CARRIE

ravenwoodglass Mentor
If she is celiac that will be interesting, my sisters were both adopted :) I have no biological siblings.

Well I have two children both biologically mine but with different biological fathers from opposite sides of the world. Both show up in blood work, I don't. They both got a celiac gene from their Dads also. This is really an extremely common genetic difference that does not follow the normal dominent - recessive pattern that other genes do. She sounds very much like she should be on the diet also, I am praying that if that is the case that she will show up in blood work. If she is not I hope they get to the bottom of her problems soon.

blueeyedmanda Community Regular

Carrie's Salmonela and Hpylori both came back negative....sorry for the misspellings.

blueeyedmanda Community Regular

Carrie went to a GI dr today, she has insurance coverage until Jan. 1st. So up until now the family dr was treating her, but said it would be a good idea to see a GI dr.

Carrie called me tonight in tears, she said the DR did not listen to her at all and just kept saying IBS IBS IBS.....well yea that could be an option but lets look at them all. She said he didnt seem to care about what she was describing. In part of the exam he did a rectal exam and she was very uncomfortable with that....I think that really upset her.

I suggested a new dr. She needs to see someone who will listen, she is young and the sooner we figure out the problem the better....

Celiac panel still pending....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.