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Additional Autoimmune Disease

holdthegluten

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holdthegluten Rising Star
holdthegluten
Posted

what percentage of celiacs develop additional autoimmune disorders?

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Ann1231 Enthusiast
Ann1231
Posted
what percentage of celiacs develop additional autoimmune disorders?

I don't know what the percentages are but after reading on this board, I'd say it's fairly high! I have developed rheumatoid arthritis plus my hypothyroid, hypoglycemia and fibromyalgia.

Generic Apprentice
Generic
Posted

I don't know if they have a hard percentage number, but it is very common. Scientist for years have thought all the auto-immune diseases are linked to celiac plus many other things. They have even linked schizophrenia with celiac. A interesting book to read that talks about this is called Dangerous Grains, can't remember the author right now. My mom is borrowing my copy.

I personally have asthma, hypoglycemia plus fibromyalgia.

2kids4me Contributor
2kids4me
Posted

I dont know ther percentage , but if you read my signature...my kids and I are a statistic, see this article: Open Original Shared Link

it may be helpful.

Anyone with one autoimmune disease is more susceptible to developing another autoimmune problem.

pixiegirl Enthusiast
pixiegirl
Posted

I'm not sure I'd buy the statistic if I saw one! There are so many undiagnosed Celiac's that I'm not sure a % of current celiac's would be representative and probably won't be until doctors are more open to making a celiac diagnosis.

I will say that from reading this list and talking to other celiac's it sure seems like a lot of us have other issues going on. I have allergies and eosinophilic gastroenteritis.

But I wish there was a lot more study on autoimmune system disorders.

Susan

wowzer Community Regular
wowzer
Posted

I have asthma and thyroid. My arthritis symptoms pretty much went into remission when I went gluten free.

darlindeb25 Collaborator
darlindeb25
Posted

Sometimes, I wonder if the problem is that so many celiac's go undiagnosed for so long, then other autoimmune diseases work their way into the process. Many times, other diseases are diagnosed before celiac disease has been found. Some say, if the celiac disease is diagnosed soon enough, then possibly the other autoimmune diseases just will not happen. Personally, I do not think they know enough yet about celiac disease to know what is what yet!

I have Raynauds and Peripheral Neuropathy, along with Celiac Disease. As of yet, the doctors haven't figured anything else out, so who knows.

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elye Community Regular
elye
Posted

One in eight type one diabetics are also celiac. Again, I strongly suspect that the number is higher, but many diabetics have celiac without knowing it.

CMCM Rising Star
CMCM
Posted

There is an association of celiac disease with various other autoimmune diseases. However, not all people with autoimmune diseases have celiac disease, but a great many with celiac disease (especially, untreated celiac disease) go on to develop other autoimmune diseases, perhaps because of the continual assault of gluten on the immune system, thus weakening it. I've read many places that one excellent reason to take even the POSSIBILITY of celiac disease seriously is to eliminate gluten and thus be in a better position to prevent another autoimmune disease from developing in the first place. Once something else crops up, such as arthritis, eliminating gluten may reduce symptoms but you are less likely to get rid of it entirely. Prevention is a much better option.

Also, there are many people with autoimmune diseases whose symptoms are greatly reduced by eliminating gluten and dairy, even though they aren't celiac and don't have the genes.

The more I read, the more evidence points to the general and widespread evils of gluten on our systems. I really believe that everyone, celiac or not, should never eat gluten. However, I doubt if it will be in any of our lifetimes that the medical community accepts this conclusion. And even if they did, I'll bet most people wouldn't give up gluten.

Respira Apprentice
Respira
Posted

Rheumatoid Arthritis and Crohn's disease here...

taweavmo3 Enthusiast
taweavmo3
Posted

Yep....my 8 year old was diagnosed with psoriasis two years ago, but the rashes started when he was three. He tested negative for Celiac, but he's gluten/casein free anyway. The diet hasn't really helped his psoriasis. I guess like with any other auto immune disorder, once the trigger has been pulled, the damage is done. But I'm hoping the diet will at least slow his psoriasis down, or hopefully prevent some of the major complications that can arise from it.

It's a running joke that just like our family, even our immune systems are dysfunctional, lol. On my mom's side of the family, we have colitis, chrons and rheumatoid arthritis.

taweavmo3 Enthusiast
taweavmo3
Posted

sorry, double post.

Electra Enthusiast
Electra
Posted
what percentage of celiacs develop additional autoimmune disorders?

I have Pernicious Anemia

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
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      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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