Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migraines

jeanbean

Recommended Posts

jeanbean Newbie
jeanbean
Posted

Hi there

I am 40 and was just diagnosed with Celiac about 4 weeks ago (positive blood test) and am awaiting my biopsy scheduled in May. I used to get severe migraines weekly for years and now that I'm adjusting to my new diet, I haven't had one single episode. I wonder if there is any connection?

Also, my doctor recommended I take Bentylol (prescription) in case I ingest gluten unknowingly. He says it would help with the abdominal pain - has anyone tried this medication?

Signed,

Cold in Toronto

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I also haven't had a migraine since I went gluten free, 5 years now. I use good old pepto bismal for the stomach pain if I happen to get CC'd. It helps almost instantly and has no nasty side effects or adverse reactions other than making the stool dark for a day or two. I never even have to take a second dose. One word of caution, the script your doctor gave you needs to be confirmed as gluten free. Get the name and phone number of the maker from the fact sheet the pharmacist will give you and call the maker yourself, many pharmacists will assume something is safe and or be too busy to check.

Guest Jemenii36
Guest Jemenii36
Posted
Hi there

I am 40 and was just diagnosed with Celiac about 4 weeks ago (positive blood test) and am awaiting my biopsy scheduled in May. I used to get severe migraines weekly for years and now that I'm adjusting to my new diet, I haven't had one single episode. I wonder if there is any connection?

Also, my doctor recommended I take Bentylol (prescription) in case I ingest gluten unknowingly. He says it would help with the abdominal pain - has anyone tried this medication?

Signed,

Cold in Toronto

I, also, had migraines before going on the gluten free diet. I was on an anti-seizure medication to helpthe mirgraines subside. However,once i went gluten free they also went away immediately. This was one of thelargest changes i had. I have never taken nor heard of the medication but good look with it! Since you are glong gluten free i don't think you will need it tho :)

jeanbean Newbie
jeanbean
Posted
  • Author

Thanks for your replies. I guess it's just an added perk not to have headaches. And I'll try P.Bismol instead of some pricey medication I've never heard of.

I guess having Celiac physically affects people in different ways. Well I'm still in the learning stages and it's clear that we have to educate others - in my case, my husband thinks I'm going overboard with the utensils and asking him to clean up his crumbs on the counter (he does not have Celiac). I can't seem to persuade him that we have zero tolerance, not even a crumb. I told him he should feel my pain for one day. They just don't get it.

I'm so much happier now and easier to live with. Just feeling good after a meal makes me enjoy food again.

psawyer Proficient
psawyer
Posted

I had severe migraines for years. A couple of years after going gluten-free due to celiac disease, I read something about the connection and realized: Hey, I haven't had one since I went gluten-free. I have been off gluten for seven and a half years, and not one migraine in that time. Yay! :)

tarnalberry Community Regular
tarnalberry
Posted

I'm one of the few unlucky ones on the board who did *not* have his/her migraines go away when he/she went gluten-free, so it doesn't happen for *everyone*. :)

Annie/NM Apprentice
Annie/NM
Posted

Just a thought, if you are having a biopsy in May you should still technically be eating gluten. They want you on it for the biopsy as well. At least my doctor did. In terms of migranes, I had them pre diagnoses a lot more frequent. I still get them but that is usually a sign of getting glutened. Hope that helps.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa16 Collaborator
Lisa16
Posted

My migraines are also a thing of the past-- I am sure you have some relief to look forward to on that front. Thank goodness!

I also took bentyl for the IBS-- over many years I had a standing RX for it because of the IBSD-- I feel it was completely worthless. It did not stop the D or the pain. Instead I take a papaya enzyme chewable tablet that you can get OTC-- I read a study that says this enzyme can zap small amounts of gluten that accidentally get in the system. But the best for me is a warm bath.

Good luck with the biopsy results. I was in your shoes about 8 years ago. The blood results were a high positive, but then they got a negative biopsy. Should this happen to you (and it well might, esecially since it sounds like you are gluten-free now,) I hope you do continue with the gluten-free lifestyle and do still consider yourself a celiac. Please do not believe them if they say a negative biopsy means you do not have the disease. Let the gluten-free diet be your guide. I made the mistake of believing them and my symptoms got exponentially worse until the DH appeared.

Lisa

dksart Apprentice
dksart
Posted

I used to have a serious migraine that lasted for almost three days once a month and then a few others whenever I was stressed or for no apparent reason. It started when I was 14 and lasted until I was 37.

I have been migraine free since going gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. annamarie6655
      - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum. Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains...
    2. trents
      - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    3. Celiac and Salty
      - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously...
    4. Rogol72
      - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748
    DJD
    Newest Member
    DJD
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • annamarie6655
      Airborne Gluten?

      By annamarie6655 · Posted

      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      Rectal pain

      By trents · Posted

      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      Rectal pain

      By Celiac and Salty · Posted

      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.