Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Something Worse Than Celiac?


FlourShopGirl

Recommended Posts

FlourShopGirl Explorer

I feel like I have something worse than Celiac. As I watched Oprah a few days ago a woman commented on Dr. Oz and how she had constant diarrhea & blood in stool. She went to the doctor's and at 32 found out she had colon cancer, stage 3. Scary! After I gave birth to my kids, they were both HUGE babies (my daughter was over 9 pounds), I got hemmroids which I would consider severe. Here and there after a bowel movement I see red. Maybe twice a year but those are also hurting at the same time. I didn't think too much of it until I heard of the lady who got colon cancer at my age. I'm three and 1/2 week into this diet with NO results and chronic diarrhea. I eat and 10-20 minutes later use the restroom 3-4 times. Should I be concerned? I've always had stomach problems but now I thinking I have something worse. I would have thought this diet would be working for me by now and my husband says I am not giving it a chance. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

You are only a few weeks into the diet. It can take much longer for you to recover, depending on the extent of the damage to your system and your age. Many of us saw improvement in just days, and others took weeks or months.

Keep strictly to the gluten-free diet. Yes, there may be something more serious, but I would give it at least another month to see if the diet is working. Your husband is right that this can take more time.

I was in severe distress after several years of undiagnosed and uncontrolled celiac disease. I had explosive diarrhea, malabsorption, anemia, and other problems. It took about four months for most things to return to normal. My bones are still weak (osteoporosis) after more than six years gluten-free.

Things will get better for you. Stay gluten-free.

I've been there. If there is anything I can help you with, just ask. You can post a question here, or send me a PM.

celiac-mommy Collaborator

If there's still blood, you need to call your dr!!! I always tell my patients to ere on the side of caution-better safe than sorry. I have yet to see a dr. angry/upset to rule out a heart attack. I can't imagine one to be upset to rule out colon cancer. If there's no blood, maybe wait. BUT if this is going to be weighing on your mind for the next month, call your dr. and request a colonoscopy. Blood in the stool usually gets their attention pretty quick!!

ksymonds84 Enthusiast
I feel like I have something worse than Celiac. As I watched Oprah a few days ago a woman commented on Dr. Oz and how she had constant diarrhea & blood in stool. She went to the doctor's and at 32 found out she had colon cancer, stage 3. Scary! After I gave birth to my kids, they were both HUGE babies (my daughter was over 9 pounds), I got hemmroids which I would consider severe. Here and there after a bowel movement I see red. Maybe twice a year but those are also hurting at the same time. I didn't think too much of it until I heard of the lady who got colon cancer at my age. I'm three and 1/2 week into this diet with NO results and chronic diarrhea. I eat and 10-20 minutes later use the restroom 3-4 times. Should I be concerned? I've always had stomach problems but now I thinking I have something worse. I would have thought this diet would be working for me by now and my husband says I am not giving it a chance. :(

I would definately give your doc a call but also relax. I used to get bloody diarrhea when I was younger and was diagnosed with ulcerative colitis along with my ibs. I don't get diarrhea anymore as long as I stay gluten free. Give the diet a chance, it take some months to a year to heal but as long as your careful with cross contamination etc. you will see improvements along the way.

debmidge Rising Star

Hi

Been through rectal bleeding (my husband has celiac not me) but I have had internal and external hemmorroids AND rectal fissures that bled. This can be fixed outpatient. But please see a gastro for colonoscopy and he'll tell you if you need to see just a protologist for hemmorroids.....chances are that is all it is....but don't take it lightly.

FlourShopGirl Explorer

I have the internal and external. After the birth of my son 12 years ago, I got them pretty bad. I was upset being so young and I wanted to get them removed. I would read on the net how much trouble and pain it was to get them removed though and it turned me off. i only get this about twice a year but the blood is scary where I question it.

I really appreciated the answers here. I feel discouraged from the diet sometimes, I am one of those instant gratification sort of people even though I can't expect that. It's just frustrating to use the restrooms 10 times a day and barely make it. I think an internal exam could rule out a bunch of stuff though so I might as well go.

ravenwoodglass Mentor
I have the internal and external. After the birth of my son 12 years ago, I got them pretty bad. I was upset being so young and I wanted to get them removed. I would read on the net how much trouble and pain it was to get them removed though and it turned me off. i only get this about twice a year but the blood is scary where I question it.

I really appreciated the answers here. I feel discouraged from the diet sometimes, I am one of those instant gratification sort of people even though I can't expect that. It's just frustrating to use the restrooms 10 times a day and barely make it. I think an internal exam could rule out a bunch of stuff though so I might as well go.

Have you eliminated dairy as well? We often need to in the beginning to heal and may remain symptomatic if it is not eliminated. Also have you checked all meds, toiletries, are you the only one at home that is gluten-free? That really makes CC very likely.

I agree with your husband that you need to give it a bit more time, also eliminate the dairy for at least a month and be aware that you may experience more anxiety and moodiness during the first month or two. In addition, the mucous membranes reation to gluten can make hemmies really bad. They will likely fade the longer you are gluten free. If you are really bothered about the thought of colon cancer then do contact your GI doctor and see if he thinks a scope is warrented.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.