Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Needing Reassurance


kyga

Recommended Posts

kyga Rookie

After years of 'strange' symptoms, including vertigo and infertility and a host of other 'random' problems, I finally thought to look into the possibility of celiac disease. I started a gluten-freen diet about a month ago, and then last week went to a doctor who is very knowledgeable about gluten sensitivity. My blood test results will be in probably Tuesday. Anyway, I reasoned that if I am sensitive to gluten, I'll need an endoscopy and will need to eat some gluten in preparation for that. If I am not sensitive to gluten, it won't matter anyway. So I ate gluten all weekend.

Then, on a lark, because my period was late, I took a pregnancy test and it was positive! However, instead of feeling completely happy about it, now I'm worried that if I'm gluten sensitive, I have dramatically increased the likelihood of miscarriage by eating gluten. Anyone out there 'get glutened' during pregnancy without a disastrous result? I need to look on the bright side!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sydneysmommy Apprentice

no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

congratulations!!!!!!!

pregnancy & celiac can work! and eating gluten will not hurt your child! it may upset your stomach... but it wont hurt your baby!

good luck!

kbtoyssni Contributor
no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

Are you sure? I'm pretty sure that if you do have celiac, eating gluten will be harmful to the baby. If you're not absorbing nutrients properly, that can't be good for the baby. Many celiacs have fertility problems and miscarriages. Maybe someone can cite some research here. I don't want to freak you out, but I do think that you want to seriously consider whether eating gluten for traditional medical testing is a good idea right now.

maryjoali Newbie
Are you sure? I'm pretty sure that if you do have celiac, eating gluten will be harmful to the baby. If you're not absorbing nutrients properly, that can't be good for the baby. Many celiacs have fertility problems and miscarriages. Maybe someone can cite some research here. I don't want to freak you out, but I do think that you want to seriously consider whether eating gluten for traditional medical testing is a good idea right now.

I know there are mixed messages out there, but my doctor told me that throughout pregnancy, I needed to maintain a 100% gluten-free diet, especially during the first trimester. It was much easier for me, though, since I had already been diagnosed and I know how sick I would be if I cheated even a little (I am craving gluteny foods like crazy!) I would definitely check into it further if I were you and remember that you're going to have to do a lot of self-advocacy.

loraleena Contributor

I noticed you said you went gluten free and then had the blood work after. If this is the case it is very likely that your tests will be negative. You have to eat gluten for the tests to show anything. Anyway, I would stay on the diet now that you are pregnant. I wouldn't eat it on purpose, but I don't think a mistake would hurt the baby. I don't know for sure.

shanluts Apprentice

I was gluten-free with my 1st pregnancy AND 2nd Preg (lost this one at 12 weeks). With my 3rd they said I was JUST sensative to wheat so I ate tons of gluten. She was a healthy baby girl. THEN when she was ill (unrelated to gluten) I was retested per her doctors request AND I do have celiac disease SOOOOOO if it is any consolation I ate gluten for an entire pregnancy NOT just a short time. The risks with eating gluten (I was told) was vitamin deficiancies which are taken care of with all the extra we take with pregnancy.

Best of luck to you.

Shannon

kyga Rookie

Thanks to everyone who replied. I feel better now. I am not eating gluten, but I have decided not to freak out if I accidentally ingest some.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

congratulations!!!!!!!

pregnancy & celiac can work! and eating gluten will not hurt your child! it may upset your stomach... but it wont hurt your baby!

good luck!

Yes, yes, yes, gluten WILL increase your risk of miscarriage! But getting glutened at times won't. I did have five healthy babies while eating gluten, but I also had eight miscarriages. Plus, I had AWFUL pregnancies, I was sick for nine months every time.

Kyga, I am glad you have decided not to go through with eating gluten again for a test, as you would put your baby at risk (as well as yourself) otherwise.

Make sure you get tested for nutritional deficiencies, so you know which extra supplements (on top of your regular prenatal vitamins) you may need to take. The most common deficiencies with celiac disease are vitamin D, ferretin (iron), calcium, magnesium, vitamins B12 and B6, vitamin K, potassium. Make sure you have enough folic acid!

Try not to worry too much, and do your best to stay gluten-free, that is all you can do.

I agree, even if your blood test comes back negative (which is very likely), that won't mean that you don't have celiac disease. Those blood tests aren't all that accurate to begin with, and having it done after being gluten-free for several weeks is pretty useless.

TLT Newbie

Don't get too worked up about it, I didn't realize I had the gluten issue until I was pregnant, so I ate gluten up and through the first month of pregnancy and my little girl is perfect as can be, so do your best to get it out of your system and lay off of it, but you can't change the past. By the way you will feel a ton better when you are off the gluten, it seems you are a million times more sensitive while pregnant. Be careful and good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.