Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Needing Reassurance

kyga

By kyga
in Related Issues & Disorders

Recommended Posts

kyga Rookie
kyga
Posted

After years of 'strange' symptoms, including vertigo and infertility and a host of other 'random' problems, I finally thought to look into the possibility of celiac disease. I started a gluten-freen diet about a month ago, and then last week went to a doctor who is very knowledgeable about gluten sensitivity. My blood test results will be in probably Tuesday. Anyway, I reasoned that if I am sensitive to gluten, I'll need an endoscopy and will need to eat some gluten in preparation for that. If I am not sensitive to gluten, it won't matter anyway. So I ate gluten all weekend.

Then, on a lark, because my period was late, I took a pregnancy test and it was positive! However, instead of feeling completely happy about it, now I'm worried that if I'm gluten sensitive, I have dramatically increased the likelihood of miscarriage by eating gluten. Anyone out there 'get glutened' during pregnancy without a disastrous result? I need to look on the bright side!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sydneysmommy Apprentice
sydneysmommy
Posted

no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

congratulations!!!!!!!

pregnancy & celiac can work! and eating gluten will not hurt your child! it may upset your stomach... but it wont hurt your baby!

good luck!

kbtoyssni Contributor
kbtoyssni
Posted
no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

Are you sure? I'm pretty sure that if you do have celiac, eating gluten will be harmful to the baby. If you're not absorbing nutrients properly, that can't be good for the baby. Many celiacs have fertility problems and miscarriages. Maybe someone can cite some research here. I don't want to freak you out, but I do think that you want to seriously consider whether eating gluten for traditional medical testing is a good idea right now.

maryjoali Newbie
maryjoali
Posted
Are you sure? I'm pretty sure that if you do have celiac, eating gluten will be harmful to the baby. If you're not absorbing nutrients properly, that can't be good for the baby. Many celiacs have fertility problems and miscarriages. Maybe someone can cite some research here. I don't want to freak you out, but I do think that you want to seriously consider whether eating gluten for traditional medical testing is a good idea right now.

I know there are mixed messages out there, but my doctor told me that throughout pregnancy, I needed to maintain a 100% gluten-free diet, especially during the first trimester. It was much easier for me, though, since I had already been diagnosed and I know how sick I would be if I cheated even a little (I am craving gluteny foods like crazy!) I would definitely check into it further if I were you and remember that you're going to have to do a lot of self-advocacy.

loraleena Contributor
loraleena
Posted

I noticed you said you went gluten free and then had the blood work after. If this is the case it is very likely that your tests will be negative. You have to eat gluten for the tests to show anything. Anyway, I would stay on the diet now that you are pregnant. I wouldn't eat it on purpose, but I don't think a mistake would hurt the baby. I don't know for sure.

shanluts Apprentice
shanluts
Posted

I was gluten-free with my 1st pregnancy AND 2nd Preg (lost this one at 12 weeks). With my 3rd they said I was JUST sensative to wheat so I ate tons of gluten. She was a healthy baby girl. THEN when she was ill (unrelated to gluten) I was retested per her doctors request AND I do have celiac disease SOOOOOO if it is any consolation I ate gluten for an entire pregnancy NOT just a short time. The risks with eating gluten (I was told) was vitamin deficiancies which are taken care of with all the extra we take with pregnancy.

Best of luck to you.

Shannon

kyga Rookie
kyga
Posted
  • Author

Thanks to everyone who replied. I feel better now. I am not eating gluten, but I have decided not to freak out if I accidentally ingest some.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted
no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

congratulations!!!!!!!

pregnancy & celiac can work! and eating gluten will not hurt your child! it may upset your stomach... but it wont hurt your baby!

good luck!

Yes, yes, yes, gluten WILL increase your risk of miscarriage! But getting glutened at times won't. I did have five healthy babies while eating gluten, but I also had eight miscarriages. Plus, I had AWFUL pregnancies, I was sick for nine months every time.

Kyga, I am glad you have decided not to go through with eating gluten again for a test, as you would put your baby at risk (as well as yourself) otherwise.

Make sure you get tested for nutritional deficiencies, so you know which extra supplements (on top of your regular prenatal vitamins) you may need to take. The most common deficiencies with celiac disease are vitamin D, ferretin (iron), calcium, magnesium, vitamins B12 and B6, vitamin K, potassium. Make sure you have enough folic acid!

Try not to worry too much, and do your best to stay gluten-free, that is all you can do.

I agree, even if your blood test comes back negative (which is very likely), that won't mean that you don't have celiac disease. Those blood tests aren't all that accurate to begin with, and having it done after being gluten-free for several weeks is pretty useless.

TLT Newbie
TLT
Posted

Don't get too worked up about it, I didn't realize I had the gluten issue until I was pregnant, so I ate gluten up and through the first month of pregnancy and my little girl is perfect as can be, so do your best to get it out of your system and lay off of it, but you can't change the past. By the way you will feel a ton better when you are off the gluten, it seems you are a million times more sensitive while pregnant. Be careful and good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    3. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    4. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    5. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748
    Tc clark
    Newest Member
    Tc clark
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.