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Dr. Amy De Felice

luciasmom

By luciasmom
in Doctors

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luciasmom Rookie
luciasmom
Posted

Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!

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gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

I don't know about your Dr. But many of us have hit or miss experiences with doctors in general. To help make your appt a better experience research Celiacs. Have a list of questions. Bring all of your info with you about what is wrong with your child and why you suspect Celiacs. Food & symptom log. Then be open to the Dr ruling out other diseases. I would ask for a gene test in addition to the Celiac blood work.

ENF Enthusiast
ENF
Posted
Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!

I have been to the Columbia Celiac Center in New York, to see Dr. Lee, and the resident Celiac nutritionist. I also had all blood tests and an endoscope at the facility - my second time for Celiac, but the first time at Columbia. There was an improvement in my blood tests, but still some damage in to the villi. It is not unusual for adults to heal slower. I had the bone density scans done there as well.

I know that you have been looking for a doctor for your daughter, and I thought I read in another post that she has been gluten free for a few months. This could cause the tests to be negative. If she's already been diagnosed by blood test and/or endoscopy before going gluten free, and tested positive, then you can see if she has improved - but if this is the first time being tested she must consume gluten for a specified time beforehand in order to insure an accurate diagnosis. Children tend to heal fast, which could cause a false negative.

Just thought I'd let you know, in case you were not aware of it.

luciasmom Rookie
luciasmom
Posted
  • Author

Thanks! I spoke with the doctors' nurse today and she said that my daughter should be eating gluten for at least 4 to 6 weeks prior to her appointment, so i guess i have to start soon because her appt is on June 5th. The news hit hard because she's so little (only 2) and her symptoms are very intense. But i guess i have to go thru with it all if i really want to be sure she has celiac disease or not.

She also said that if the blood tests came out positive then we wouldn't have to do the Endoscopy, which only confused me because i thougth the Endoscopy was "the gold standard in diagnosing celiac disease". Am i wrong?

I guess i'm going to call her back and ask her again.

Thanks again!

Lucy

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
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