Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Amy De Felice

luciasmom

By luciasmom
in Doctors

Recommended Posts

luciasmom Rookie
luciasmom
Posted

Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

I don't know about your Dr. But many of us have hit or miss experiences with doctors in general. To help make your appt a better experience research Celiacs. Have a list of questions. Bring all of your info with you about what is wrong with your child and why you suspect Celiacs. Food & symptom log. Then be open to the Dr ruling out other diseases. I would ask for a gene test in addition to the Celiac blood work.

ENF Enthusiast
ENF
Posted
Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!

I have been to the Columbia Celiac Center in New York, to see Dr. Lee, and the resident Celiac nutritionist. I also had all blood tests and an endoscope at the facility - my second time for Celiac, but the first time at Columbia. There was an improvement in my blood tests, but still some damage in to the villi. It is not unusual for adults to heal slower. I had the bone density scans done there as well.

I know that you have been looking for a doctor for your daughter, and I thought I read in another post that she has been gluten free for a few months. This could cause the tests to be negative. If she's already been diagnosed by blood test and/or endoscopy before going gluten free, and tested positive, then you can see if she has improved - but if this is the first time being tested she must consume gluten for a specified time beforehand in order to insure an accurate diagnosis. Children tend to heal fast, which could cause a false negative.

Just thought I'd let you know, in case you were not aware of it.

luciasmom Rookie
luciasmom
Posted
  • Author

Thanks! I spoke with the doctors' nurse today and she said that my daughter should be eating gluten for at least 4 to 6 weeks prior to her appointment, so i guess i have to start soon because her appt is on June 5th. The news hit hard because she's so little (only 2) and her symptoms are very intense. But i guess i have to go thru with it all if i really want to be sure she has celiac disease or not.

She also said that if the blood tests came out positive then we wouldn't have to do the Endoscopy, which only confused me because i thougth the Endoscopy was "the gold standard in diagnosing celiac disease". Am i wrong?

I guess i'm going to call her back and ask her again.

Thanks again!

Lucy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,336
    • Most Online (within 30 mins)
      7,748
    DME
    Newest Member
    DME
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Struggling to get into a good pattern

      By trents · Posted

      Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. 
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point).  So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
    • Scott Adams
      Newbie with Celiac / NCGS symptoms

      By Scott Adams · Posted

      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could salvage the results of your tTG-IgA test, as long as you were eating lots of gluten beforehand.
    • Scott Adams
      celiac, chocolate and alcohol

      By Scott Adams · Posted

      Given your strong reactions it would be wise not to eat things offered to you without reading the ingredient labels. It's possible there was indeed gluten or some allergen in the chocolates--barley malt is a common ingredient in some chocolates.
    • trents
      Newbie with Celiac / NCGS symptoms

      By trents · Posted

      Yes, an IgG panel is the logical next step. However, you would still need to be consuming normal amounts of gluten to ensure valid IgG testing. Since it has only been a week that you have been off gluten, there is still likely time to restore antibodies to detectable levels before the blood draw. IgG antibody tests are not quite as specific for celiac disease as are the IGA tests but they are certainly valuable in the case of IGA deficiency. They also seem to have a little more "staying power" in the sense of detecting celiac disease in the case of those who may have already started a gluten-free diet as long as they haven't been on it for an extended period of time. But don't rely on that. Get back on gluten if you can possibly endure it if you intend to go forward with IgG testing. This might be helpful:   
×
×
  • Create New...