Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Amy De Felice

luciasmom

By luciasmom
in Doctors

Recommended Posts

luciasmom Rookie
luciasmom
Posted

Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

I don't know about your Dr. But many of us have hit or miss experiences with doctors in general. To help make your appt a better experience research Celiacs. Have a list of questions. Bring all of your info with you about what is wrong with your child and why you suspect Celiacs. Food & symptom log. Then be open to the Dr ruling out other diseases. I would ask for a gene test in addition to the Celiac blood work.

ENF Enthusiast
ENF
Posted
Has anyone seen Dr. De Felice?? I just made an appointment with her to have my 2 yr old daughter diagnosed for celiac disease. We live in Mexico and are willing to go wherever we have to in order to see a GOOD Dr. so if u have any suggestions or comments i would very much appreciate it.

As a note.....I made the appointment with her because I was originally interested in seeing Dr. Peter Green but since he doesn't see Pediatrics they told me to contact Dr. Felice.

All i want is a good doctor who really really knows about celiac disease.

Thanks!!

I have been to the Columbia Celiac Center in New York, to see Dr. Lee, and the resident Celiac nutritionist. I also had all blood tests and an endoscope at the facility - my second time for Celiac, but the first time at Columbia. There was an improvement in my blood tests, but still some damage in to the villi. It is not unusual for adults to heal slower. I had the bone density scans done there as well.

I know that you have been looking for a doctor for your daughter, and I thought I read in another post that she has been gluten free for a few months. This could cause the tests to be negative. If she's already been diagnosed by blood test and/or endoscopy before going gluten free, and tested positive, then you can see if she has improved - but if this is the first time being tested she must consume gluten for a specified time beforehand in order to insure an accurate diagnosis. Children tend to heal fast, which could cause a false negative.

Just thought I'd let you know, in case you were not aware of it.

luciasmom Rookie
luciasmom
Posted
  • Author

Thanks! I spoke with the doctors' nurse today and she said that my daughter should be eating gluten for at least 4 to 6 weeks prior to her appointment, so i guess i have to start soon because her appt is on June 5th. The news hit hard because she's so little (only 2) and her symptoms are very intense. But i guess i have to go thru with it all if i really want to be sure she has celiac disease or not.

She also said that if the blood tests came out positive then we wouldn't have to do the Endoscopy, which only confused me because i thougth the Endoscopy was "the gold standard in diagnosing celiac disease". Am i wrong?

I guess i'm going to call her back and ask her again.

Thanks again!

Lucy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748
    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.