Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Wonderful Milestone

blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi Everyone!

I finally made it to that point and I just want to share with people who can totally understand and relate. It is 3 1/2 years after my diagnosis. I felt well the past years once going gluten free but I finally feel like me again and it is amazing. Preceliac I was a very active person and I was always on the go. I had this amazing personality. Once I spent 2 years sick with no answers I turned into a hermit, only leaving the house for work and that was a challenge in itself. I got very down and worried and everything fell apart. My now husband was by my side the whole time.

Anyway, about a year ago I started having sleeping problems and was relying on sleeping pills in all sorts of combinations to get to bed on work nights, on the weekends I had no problems at all....yet I could not pinpoint why my habits changed, I may not love going to work but I never dreaded it.

Over the past months I have become active again, heading to the gym and now in the nicer weather I have been walking every night with my neighbor and her baby. On the nights when she is at work and we have the baby I continue to walk. I have been rollerblading and tonight I was jogging. I have been eating much healthier as well.

My neighbors baby stays with us on weekends while she works 3rd shift so that has been keeping me busy as well.

My entire attitude has changed I am once again the happy go lucky person I used to be. I am always up for activities and I look forward to gatherings and other functions I used to dread so.

My battle with sleeping pills has seemed to be won! I have been getting to bed on my own the past week and that is such a great feeling. My nights seem longer now and I really wake up refreshed and am ready to get to work. Things are getting better.

Work has been very busy but nothing keeping me down. I am just me again and no one can ever understand what a great feeling that is until they have gone through what all we have gone through!

So I hope you guys all can relate and if not, have something to look forward to. It may seem like things will be hard forever once going gluten free but honestly I am myself again and its so 2nd nature.

Good Luck Everyone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


curlyfries Contributor
curlyfries
Posted

Bravo!!! That is truly inspiring!!! I know there is more to me than what I have felt like for so many years. I am sometimes not sure who the real me is. The other day someone was joking with me and I had a really good snappy comeback. I think I surprised everyone. I'm usually much too subdued (interpret: brain-foggy) to be so clever! I usually think of a response days later :lol I look forward to one day finding that energy as you have!

Lisa

Lisa Mentor
Lisa
Posted

Cheers to you Amanda! What good inspiration to so many.

home-based-mom Contributor
home-based-mom
Posted

What an encouraging post! :DB)

psawyer Proficient
psawyer
Posted

Amanda, this is great stuff to hear. I am so happy for you. I went through celiac hell too, and came back. Keep moving forward!

lizard00 Enthusiast
lizard00
Posted

Amanda, that is beyond rockin!!!! I am soo happy for you, and a little jealous :rolleyes:

That is very inspiring, it's good to be reminded that there really is a light at the end. Thank you!!

ksymonds84 Enthusiast
ksymonds84
Posted

Amanda,

Thank you for the encouraging words, it give us newbies hope for the future!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

Fabulous! So glad for you.

I hope we all get to that "happy place". Your accomplishment give us all hope, and even more to look forward to than ever!

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

Thanks everyone for your warm words. I can't wait till you guys can post the same. Don't be discouraged if it takes awhile either.

spunky Contributor
spunky
Posted

Congratulations!!!

Thanks for the encouragement and inspiration!

I'm right on your heels, with 2 years and 2 months gluten free... I can still tell my body is healing.

Joni63 Collaborator
Joni63
Posted

I am so happy for you! I used to be the way you are now. Get up eager for the day and get so much accomplished. Glad you were able to resolve your sleep problems, I think that makes such a difference!

Thank you for posting - it's really encouraging!

jerseyangel Proficient
jerseyangel
Posted

This is such wonderful news, Amanda--I couldn't be happier for you :D

missy'smom Collaborator
missy'smom
Posted

Thank you for sharing. It is a long process. I'll be gluten-free 2 years at the end of this coming summer. I'm still struggling with some of the things that you mentioned so that gives me hope to hang in there. I'm happy to report that I'm finally gaining weight so that's a good sign to me that my healing is progressing. I know I need to get exercize but I'm so afraid of wearing myself out. I'm not sure where the line is between my body saying it's not ready and my body being ready but me not getting over that mental hurtle. Do you know what I mean?

Guhlia Rising Star
Guhlia
Posted

Amanda, I am so glad that you have finally gotten your life back. :) It is a wonderful feeling, isn't it? I'm still on the uphill, but even just knowing that things are steadily getting better is such a good feeling. I've been gluten free for 4 years now and its such a long climb back to your pre-celiac self (or what you should have been). I feel better now than I think I ever have and things are STILL getting better. :)

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
Amanda, I am so glad that you have finally gotten your life back. :) It is a wonderful feeling, isn't it? I'm still on the uphill, but even just knowing that things are steadily getting better is such a good feeling. I've been gluten free for 4 years now and its such a long climb back to your pre-celiac self (or what you should have been). I feel better now than I think I ever have and things are STILL getting better. :)

It makes you wonder what you will be like at the end of the summer or such! It is just amazing! We need to do CIP one of these days soon, Annika is probably almost 7 months now....Landen is a month younger!

Guhlia Rising Star
Guhlia
Posted
It makes you wonder what you will be like at the end of the summer or such! It is just amazing! We need to do CIP one of these days soon, Annika is probably almost 7 months now....Landen is a month younger!

Annika is 7.5 months. :) She's getting so big! We really should do CIP soon. I haven't been there yet, but I'm dying to try it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    3. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    4. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
    5. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748
    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.