Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerance


sssmith1

Recommended Posts

sssmith1 Newbie

I was lactose Intolerant when I initially came down with Celiac Disease. I was fine after going on a gluten-free diet. Now, a year later I have been sick multiple times after I ate some form of dairy product. Is it possible for the lactose intolerance to resurface even after going on a gluten free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kehaulani Newbie

hi! i don't know if i can answer your question but i found some interesting information about lactose intolerance. i am also lactose intolerant and was diagnosed with celiac disease about 2 months ago and have been on a gluten free diet for about 3 months. i read in a book (Living Gluten-free for Dummies) that the enzyme lactase, which breaks down lactose, is found on the tips of the villi in our small intestine. so after being on a gluten free diet and your villi heal, you are most likely able to tolerate dairy products again. is it possible that you may have accidently ate gluten (maybe cross-contamination)? becasue a small amount of gluten in your body may have caused an attack on just the tips of your villi, thus causing the lactase enzyme to be destroyed and causing your lactose intolerance again. this may not be the case, but you never know!

psawyer Proficient

Many people with celiac disease develop other food intolerances. Lactose intolerance is usually temporary, as kehaulani noted.

You may have developed an intolerance to casein, which is the protein in milk. This is the most common intolerance in celiacs after gluten. If you are casein intolerant, you must avoid all dairy products, even those which have little or no lactose. Casein is more difficult than gluten to avoid completely, as it shows up in places you would not expect, and is not always obvious in the ingredients.

I tolerate casein myself, so I am not that knowledgeable in this area, but there are a number of board members who could offer more insight.

sssmith1 Newbie
Many people with celiac disease develop other food intolerances. Lactose intolerance is usually temporary, as kehaulani noted.

You may have developed an intolerance to casein, which is the protein in milk. This is the most common intolerance in celiacs after gluten. If you are casein intolerant, you must avoid all dairy products, even those which have little or no lactose. Casein is more difficult than gluten to avoid completely, as it shows up in places you would not expect, and is not always obvious in the ingredients.

I tolerate casein myself, so I am not that knowledgeable in this area, but there are a number of board members who could offer more insight.

Thank for your insight. Both were very helpful. I will definitely look into this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      40

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,381
    • Most Online (within 30 mins)
      7,748

    Becky Coleman
    Newest Member
    Becky Coleman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.