Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diarreah In The Am


therearemiracles

Recommended Posts

therearemiracles Newbie

It's taking me so long to get to this point, a lot of hitting my head on the wall of people telling me "maybe your problem is gluten" and doctors saying it's not. Well every morning for 2 hours straight on and off the toilet I have this diarreah and it's not water just mush and it's long and skinny stool with no formation at all. I hurt so bad with pain and cramping that I don't voluntary push it out my body just throws it up out of my butt. Seriously, has anyone delt with this? My legs cramp, my guts ache and all I do is crawl back in bed and wait for the pain to go away.

Here's my other symptoms my stomach will stick out like I'm 5 months pregnant nothing will get it down until the next morning when I'm dying in the bathroom.

Does this sound like gluten? If so, I've been this way for 3 years now and today is my second day gluten free. Finally, I've noticed my guts don't hurt when I breath. No pain in my abdomen at all.

I guess the diarreah is what is freaking me out. I understand diarreah is anything not formed and mine are all mushy 99% of the time.

Thanks for the feed back and advice, suggestions and/or comments. I'm new here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, to be as blunt as Celiac villi, yes, it sure does sound like Celiac to me. Especially when going gluten-free appears to be helping already. Do give it time though, as it can take a while before the intestines heal enough to see noticeable improvement. It was about six months before I noticed much of anything.

You've come to the right place. I'm sure you'll get many helpful responses.

Welcome to the board!

Ridgewalker Contributor

I can tell you that before going gluten-free, my diarrhea was pretty much only in the morning. Over a few years it got worse and worse, until it was every morning, 5 or 6 times. After I had been up a while, it would ease off. That all stopped when I went gluten-free. My cramps weren't as bad as yours, but I can tell you that it's perfectly possible to have symptoms at certain times of the day like that.

Edited to Add... My symptoms improved within a couple weeks, and a few months later I finally became a regular, poop once in the am, once in the pm, person for the first time in my memory! :lol:

ksymonds84 Enthusiast

I too was a morning only diarreah girl. After 4 months gluten free, I am normal 99% of the time now (unless gluten sneaks its way in). It also helped me to take caltrate with vitamin D two times a day. I need the calcium and the calcium bicarbonate helps firm me up as well. The calcium with magnesium made it worse by the way. Welcome to the board we are all here to help!

therearemiracles Newbie

Thank you for responding. What I struggle wiht the most is the urgency and when I pass gas mucus or whatever flys out with it, it truly is a explosion I can't control.

I've stocked up on gluten free foods and I'm really going to try it wholeheartedly.

I do need a multi which I ordered pure encapsulation 280 (it's a milder multi) and a cal/mag, but the last thing I want it to go to the bathroom with too much cal/mag. I'll start out slow on both and see how it goes. I do pray for a healing in all of this. My nails are a wreck, I feel I've aged 5 years when I thought I looked young at one time. It's very discouraging to see myself with so many "bad days" when all I use to have was great days.

I'm not giving up. I wasn't like this before I feel I can get back to great health.

ravenwoodglass Mentor

Sounds like my D routine for years. I went through 10 years of the morning D before it progressed to the point where it lasted all day and then would wake me with extreme pain every night for another 5 years. I also showed up negative on blood tests, even at the end when I was close to death. Unfortunately noone told me what celiac sprue was so I never had the chance to even try and eliminate it until after I was finally diagnosed with a doctor led elimination diet.

You have come to a good place for info and support. I hope you have some relief soon.

missy'smom Collaborator
I can tell you that before going gluten-free, my diarrhea was pretty much only in the morning. Over a few years it got worse and worse, until it was every morning, 5 or 6 times. After I had been up a while, it would ease off. That all stopped when I went gluten-free. My cramps weren't as bad as yours, but I can tell you that it's perfectly possible to have symptoms at certain times of the day like that.

Edited to Add... My symptoms improved within a couple weeks, and a few months later I finally became a regular, poop once in the am, once in the pm, person for the first time in my memory! :lol:

Yup, this describes me too. And I had that pregnant tummy too. As you go down this new gluten-free road, you may realize that you have other symptoms too. Here's a list if you haven't see one yet. Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator
My nails are a wreck, I feel I've aged 5 years when I thought I looked young at one time.

Sounds like you could use a B12 supplement. The best type is methylcobalamin, in sublingual form. Take at least 3mg per day. Obviously, make sure it is gluten-free!

Jestgar Rising Star
I feel I've aged 5 years when I thought I looked young at one time. It's very discouraging to see myself with so many "bad days" when all I use to have was great days.

I'm not giving up. I wasn't like this before I feel I can get back to great health.

I think I look about 10 years younger after 2 years gluten-free. Most of the gray hair grew back brown, the wrinkles around my eyes are much less pronounced, I no longer have the old lady shuffle (well, just in the mornings, but less often).

jerseyangel Proficient
I think I look about 10 years younger after 2 years gluten-free. Most of the gray hair grew back brown, the wrinkles around my eyes are much less pronounced, I no longer have the old lady shuffle (well, just in the mornings, but less often).

I don't know about 10 years, but I look younger almost 3 years gluten-free. This was apparent when I got my new driver's license this past December--I compared the picture from the last one (2004) and now, and it's quite astounding. I wish there were some way I could post the two side by side.

I not only looked older 4 years ago--I looked sick. If I looked that way on the outside, can you imagine how bad my insides must have been?

missy'smom Collaborator
I think I look about 10 years younger after 2 years gluten-free. Most of the gray hair grew back brown, the wrinkles around my eyes are much less pronounced, I no longer have the old lady shuffle (well, just in the mornings, but less often).

I don't know about 10 years, but I look younger almost 3 years gluten-free. This was apparent when I got my new driver's license this past December--I compared the picture from the last one (2004) and now, and it's quite astounding. I wish there were some way I could post the two side by side.

I not only looked older 4 years ago--I looked sick. If I looked that way on the outside, can you imagine how bad my insides must have been?

Wow, that's encouraging to hear from you both. At the young age of 38, I still feel so old so often. I have to laugh at the old lady shuffle, that's me in the morning! :lol:

therearemiracles,

Your nails should get better as you heal and absorb nutrients again. You may still want to take a supplement. Early on, all of a sudden I found myself clipping mine so often(once a week)? and was very suprized by it, I realized that I had been only clipping them very infrequently (about once a month?) and hadn't really realized before that that wasn't normal.

  • 6 months later...
jackgf Newbie

I know ive come to the right place!

I would like to describe my issues to see if anyone can relate,

No one has described my morning issues specifically.

1. Like many have said here, I get woken up by my urge to go, unfortunately earlier then i would like to wake up.

2. I have to go at least 3 times

3. The FEELING is like the poo is in the upper part of my belly then shifts downward. Then out.

4. BUT, it cant all get out at once. It takes AT LEAST 3 times because it takes time for IT ALL to move down and out.

5. When it all doesnt make it out, that is when I think it gets painful.

6. I notice much worse with lactose.

7. IS THIS A FLARE? Im not sure what people mean by the term except i feel like flares are going off in my stomach.

8. Finally, all this made me get paranoid that i have crohn's disease...mainly bc the symptoms are so similar with the "D", any thoughts?

jerseyangel Proficient
I know ive come to the right place!

I would like to describe my issues to see if anyone can relate,

No one has described my morning issues specifically.

1. Like many have said here, I get woken up by my urge to go, unfortunately earlier then i would like to wake up.

2. I have to go at least 3 times

3. The FEELING is like the poo is in the upper part of my belly then shifts downward. Then out.

4. BUT, it cant all get out at once. It takes AT LEAST 3 times because it takes time for IT ALL to move down and out.

5. When it all doesnt make it out, that is when I think it gets painful.

6. I notice much worse with lactose.

7. IS THIS A FLARE? Im not sure what people mean by the term except i feel like flares are going off in my stomach.

8. Finally, all this made me get paranoid that i have crohn's disease...mainly bc the symptoms are so similar with the "D", any thoughts?

Hi and welcome to the board.

Given your morning issues, I would suggest asking your GI about Microscopic Colitis. It's associated with Celiac--and is thought to have an autoimmune link. It's diagnosed by a biopsy of samples taken from the colon during a colonoscopy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,953
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.