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Headaches?


JustCan

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JustCan Explorer

Need your expert opinions. We have a friend who is suffering from extremely painful cluster headaches to the point that someone had to drive him home from work today. He's also often very tired and gets sick more than average (colds and stuff). Over the past few weeks, he's been to several doctors and the ER and had tons of tests done. They haven't found anything. He did mention that he used to think the headaches were related to beer but doesn't think so anymore. Headaches were one thing that never happened to me so my question to all of you is: Did you have severe headaches before getting diagnosed? The beer thing is just a huge red flag for me...


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MELINE Enthusiast
Need your expert opinions. We have a friend who is suffering from extremely painful cluster headaches to the point that someone had to drive him home from work today. He's also often very tired and gets sick more than average (colds and stuff). Over the past few weeks, he's been to several doctors and the ER and had tons of tests done. They haven't found anything. He did mention that he used to think the headaches were related to beer but doesn't think so anymore. Headaches were one thing that never happened to me so my question to all of you is: Did you have severe headaches before getting diagnosed? The beer thing is just a huge red flag for me...

Yes, extremely painful headaches was one of my symptoms, and still is when I get CC.

Best wishes for your friend..

lizard00 Enthusiast

Add me to that list. Throbbing headaches... and I get them too when I get glutened. It's the first sign...

Asillem4 Newbie

Looking back, my husband has had a lot of symptoms of celiac disease over the years. He even sometimes gets the mystery rash (it goes away quickly, unlike mine which seems to love me). His headaches are debilitating.

I've been telling him to keep a food diary because I believe a lot of his problems are either diet or medication related.

Well, we're soon to be gluten-free and when he has problems with his tummy, headaches, skin irritations, I have no doubt we'll be able to quickly narrow it down to something he ate that is different from a gluten-free diet.

Your friend needs to think about a food and activity diary. It's hard to convince someone how important things like that are though. Don't loose your mind if he shrugs it off and macho's up.

RiceGuy Collaborator

Besides gluten, I do know that MSG can cause headaches and migraines. Beer does contain MSG, as does basically anything made with yeast. Obviously, most people tolerate the typical amounts of MSG found in various foods, but many people do find that they are sensitive to it.

JustCan Explorer

Thanks everyone! My husband already suggested a food diary to him so we'll see what happens.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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