Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep Number Bed = Toxic Mold

CarlaB

By CarlaB
in Related Issues & Disorders

Recommended Posts

ShayFL Enthusiast
ShayFL
Posted

How does moisture get in.....We sweat A LOT at night. More than you might think....

Me and my hubby solved our bedding issue by buying 2 twin extra longs. We each picked out the bed we wanted. I like a firm and he likes a soft. We each got what we wanted. They are pushed together with rubber disks to keep them in place. The dont move unless we really work it. We each have our own bedding as well because one of us steals all of the covers....wraps up like a sardine he does. :P The covers match exactly, so when the beds are made it looks perfectly nice.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 73
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted
  • Author

Here's what I posted on OMG thread ....

Here's the mattress we bought. Open Original Shared Link Nora, it's exactly as you describe .... and we were told Europeans use this type of mattress, so I'm glad to hear that's true, LOL. It is the most comfortable bed I've ever been on.

This company makes sure the bed has ventilation. That is what the mold guy had told me at the party a couple months ago ... that old houses aren't sealed that well. I talked to him yesterday and he said the mold could be a problem, or getting the source out could be adequate.

Mold is everywhere. He said when he tests, he tests outside, in the room in question, and in another room so he can compare the mold contents of the various places. It's $400 for the testing. He said he'd gauge it by my health. If I don't get better by getting rid of the mattress then have it tested.

I remember talking to him about mold at that party because I knew my symptoms could be mold-related, but I didn't think they were the house because I moved two and a half years ago. So, I started getting sick at our old house, not here. Never thought of the bed!

I'm going to try airing the room out, it's not too hot today. I can stay in the air conditioned downstairs when I open up the upstairs. He said wiping things down just spreads it, so no sense in trying that. He said the next step after testing would be vacuuming it (walls, everything) with a hippa (sp?) vacuum. That's how they get the mold out.

My doctor is sending me a script for mold testing on ME!

The bed might get delivered today. I got the new pillows on the website .... I did breathe better just like they say.

CarlaB Enthusiast
CarlaB
Posted
  • Author

If you have a Sleep Number Bed or Select Comfort Bed be sure you unzip it all the way and look at the entire air bag. If you just lift a corner you will not see the mold. If you go to the pictures at the website I posted on post #1 you will see pictures of what the mold looks like.

The guy at the place where I bought my new bed said that we all sweat out a pint each night!!! That's where the moisture comes from.

The man I know who does mold remediation said that there are mold spores everywhere, so that's where the spores come from.

Tonight is my first night on my new bed. :) Aside from the thread, the whole bed is toxin free! The gov. makes them use a certain type of thread. I'm excited as it was very comfortable .... my 20 year old daughter slept on one in the store for 1 1/2 hours! :lol: :lol:

Judyin Philly Enthusiast
Judyin Philly
Posted
Here's what I posted on OMG thread ....

Here's the mattress we bought. Open Original Shared Link Nora, it's exactly as you describe .... and we were told Europeans use this type of mattress, so I'm glad to hear that's true, LOL. It is the most comfortable bed I've ever been on.

This company makes sure the bed has ventilation. That is what the mold guy had told me at the party a couple months ago ... that old houses aren't sealed that well. I talked to him yesterday and he said the mold could be a problem, or getting the source out could be adequate.

Mold is everywhere. He said when he tests, he tests outside, in the room in question, and in another room so he can compare the mold contents of the various places. It's $400 for the testing. He said he'd gauge it by my health. If I don't get better by getting rid of the mattress then have it tested.

I remember talking to him about mold at that party because I knew my symptoms could be mold-related, but I didn't think they were the house because I moved two and a half years ago. So, I started getting sick at our old house, not here. Never thought of the bed!

I'm going to try airing the room out, it's not too hot today. I can stay in the air conditioned downstairs when I open up the upstairs. He said wiping things down just spreads it, so no sense in trying that. He said the next step after testing would be vacuuming it (walls, everything) with a hippa (sp?) vacuum. That's how they get the mold out.

My doctor is sending me a script for mold testing on ME!

The bed might get delivered today. I got the new pillows on the website .... I did breathe better just like they say.

Carla.....happy you like the pillows and are getting to the bottom of this

Did the dr say what test they would be doing for the mold testing on YOU.

MAN THE HOUSE AND YOU.......... ;) WOULDN'T THIS BE WONDERFUL IF YOU SAW AMAZING RESULTS JUST GETTING THIS MATTRESS OUT OF THE HOUSE!

CarlaB Enthusiast
CarlaB
Posted
  • Author

Judy, so far the results are amazing! :)

I need to go over to hubby's office to see what the mold test is, I'll try to remember to let you know. It's a blood test at a normal lab. :)

I have not had "air hunger" (sort of like being short of breath) all day today ... this is remarkable. So far, so good. I did some major cleaning with a HEPA vacuum .... if this doesn't do the trick, I'll have to have it tested and have the cleaning done by a pro .... but I'm thinking that the mold was pretty well contained ... I zipped it right back up and hubby just trusted me it was there and didn't look till he got the mattress to the garage.

Judyin Philly Enthusiast
Judyin Philly
Posted
Judy, so far the results are amazing! :)

I need to go over to hubby's office to see what the mold test is, I'll try to remember to let you know. It's a blood test at a normal lab. :)

I have not had "air hunger" (sort of like being short of breath) all day today ... this is remarkable. So far, so good. I did some major cleaning with a HEPA vacuum .... if this doesn't do the trick, I'll have to have it tested and have the cleaning done by a pro .... but I'm thinking that the mold was pretty well contained ... I zipped it right back up and hubby just trusted me it was there and didn't look till he got the mattress to the garage.

i'M So happy for you Carla.

The air hunger I've heard you talk about in OMG for so long ........amazing!

I'll look forward to your report.

Congrats.....it's been a long haul for you i know.

Judy

jerseyangel Proficient
jerseyangel
Posted

Sounds good--glad you're feeling better!.......Keeping my fingers crossed about all the testing :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
  • Author

Thanks guys. :) I'm not "there" yet, but this sure was finding a big piece of the puzzle and could be the last missing piece. :D :D I have some major detoxing to do, I think! So, more of the same in that regard.

jerseyangel Proficient
jerseyangel
Posted
Thanks guys. :) I'm not "there" yet, but this sure was finding a big piece of the puzzle and could be the last missing piece. :D :D I have some major detoxing to do, I think! So, more of the same in that regard.

:D Yeah, for sure, but this has got to make a huge difference. It's so lucky you found out--I shudder to think of you trying to get well with that mold right there where you sleep. Just sickening.

CarlaB Enthusiast
CarlaB
Posted
  • Author
:D Yeah, for sure, but this has got to make a huge difference. It's so lucky you found out--I shudder to think of you trying to get well with that mold right there where you sleep. Just sickening.

What's sickening is that they didn't recall the beds!!!! Ugh!

jerseyangel Proficient
jerseyangel
Posted
What's sickening is that they didn't recall the beds!!!! Ugh!

I know--that's unbelieveable.

debmidge Rising Star
debmidge
Posted

Wow...for the past few years I've been tempted to purchase one of these beds.

As to fungicide, if I am not mistaken isn't bedding sold in Calif. treated with an "anti-fire" chemical and many bedding manufacturers use this chemical for the sole purpose of being able to sell their products in Calif.? I had a pillow once that smelled and the manufacturer told me that the smell would go away as it was this

"anti-fire" chemical that was making it smell. The smell did go away....

CarlaB Enthusiast
CarlaB
Posted
  • Author

Yeah, the beds have to pass fire tests.

My new "organic" bed does not have the chemicals, but the materials are naturally fire resistant, so pass the test. The only non-organic thing in the bed is the thread as they have to use this certain thread for fire reasons. My new bed does not smell.

If you check out the website I posted, the beds are also available in CA. I HIGHLY recommend them! I love, love, love my new bed!!!!! :wub: I also bought the pillow and it's as good as the say.

I don't know if this will make sense .... I never smelled the mold (I normally get an itchy nose and eyes around mold), and I've never noticed the chemical off gassing from bedding .... but last night I really, really noticed the lack of the smells.

Jestgar Rising Star
Jestgar
Posted

Carla, thanks for posting this. :)

My parents and my brother have these beds. My brother no longer uses his and I've been trying to convince my parents that they need to check theirs. My mom's been having trouble breathing lately and I suggested the possibility that the bed may be an issue. Hopefully they'll check it.

ShayFL Enthusiast
ShayFL
Posted

If something has a funky smell, out on the porch it goes to "out gas" for a week or so. Then I bring it in and re-smell. This usually does the trick. Most of the out-gassing is at first and if you do it outside it doesnt get trapped indoors.

CarlaB Enthusiast
CarlaB
Posted
  • Author

I hope they do, Jes! Tell them to open it up so they can see the whole airbag! My mom looked at just a corner of hers and thought it was enough .....

elye Community Regular
elye
Posted

Thank you SO much for taking the time to post all of this, Carla. I dunno if this mattress brand is available in Canada, but I shall spread the word.

If something has a funky smell, out on the porch it goes to "out gas" for a week or so. Then I bring it in and re-smell. This usually does the trick. Most of the out-gassing is at first and if you do it outside it doesnt get trapped indoors.

Man... .. . I should try this with my husband..........talk about needing to be out-gassed... . . ..and he's gluten-free! :huh: Out on the porch for a week or so, huh?......... :lol::rolleyes:;)

ShayFL Enthusiast
ShayFL
Posted

Emily that cracked me up..... :lol::D:lol:

In our house EVERYONE including the dogs would be on the porch. :P

home-based-mom Contributor
home-based-mom
Posted
Carla, thanks for posting this. :)

My parents and my brother have these beds. My brother no longer uses his and I've been trying to convince my parents that they need to check theirs. My mom's been having trouble breathing lately and I suggested the possibility that the bed may be an issue. Hopefully they'll check it.

Really urge them to check it.

This morning during the "meet and greet" time at church one of the ladies came up to me with a big hug and thanked me for sending an e-mail about the beds to the church body. Her husband has been having sinus problems that were not responding to anything and she had been praying for healing.

You guessed it. She opened up their Sleep Number bed and there was the mold! He should be just fine in a few days!

ShayFL Enthusiast
ShayFL
Posted

You know.....I think I will send an email to everyone in my email address book. Maybe someone is having issues and has one of these beds and this could be the answer.

ShayFL Enthusiast
ShayFL
Posted

I posted a bulletin on My Space to all of my friends and already I am getting responses:

Sharon thank you so much!! I have one of these beds and have to get up in the middle of the night and sleep on the couch..suffering horrible asthma attacks and my hubby doesn't believe it. I opened it up and there it was to my horror.......mold!!! This is wonderful, maybe I'll be able to sleep well again! :)

You did help at least one of us lol :)

CarlaB Enthusiast
CarlaB
Posted
  • Author

Thanks for letting me know!

I have been sleeping through the night for the first time in several years. I am feeling much better than I have been. The change has been dramatic, though I know I need to do some heavy detoxing now of the biotoxins from the mold.

I took a test on biotoxin.info for the likelyhood of being toxic and scored 99.99% chance. That's no surprise with Lyme Disease and now with no known exposure to mold. Now I know why anything I do to help with detox has a real effect on how I feel.

So, I still have a long way to go, but I'm on the right track and this might be the last missing piece! (I hope!)

mamaw Community Regular
mamaw
Posted

What a scary thread. Thanks Carla for posting this. We just bought one of these a few months ago. I hate it & hubby loves it!

I did unzip it & nothing to be found.. I'll continue to check it monthly now.

Our old mattress we both loved but it was over twenty years old & getting shabby . We searched & searched for a new mattress & forover ayear couldn't make a decision on what to buy. Now boy I'm sorry we bought this one. The price is high. I haven't read the article as yet .

Carla , I guess I missed the organic one you now have--- what is the company that sells it or where did you buy from?

I hope you feel better & I hope you are sleeping better on your new mattress....

blessings

mamaw

CarlaB Enthusiast
CarlaB
Posted
  • Author

Hi Mamaw, now they use foam that prevents mold growth so I think you're okay. :) Won't hurt to check though.

My bed is a sleepworks .... www.sleepworks.com

I love it and have been sleeping like a baby!

ShayFL Enthusiast
ShayFL
Posted

Yeah, I have a regular type mattress....but I unzipped my dust protective cover and looked under just to be sure. This thread gave me the creeps. :huh:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.