Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated Liver Enzymes


kimis

Recommended Posts

kimis Collaborator

If your liver enzymes are high for years and years dose that cause damage to your liver? Mine were high for about 6 years and they are not completely normal yet. I have had all kinds of tests, and my doctor says it will go down on the gluten-free diet...I think it will too, but I wonder how my liver is doing...could there be scar tissue from this, or could I possibly get liver disease or liver failure over time of the levels staying high? What if I never found out I have Celiac Disease....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Here is some information for you to brows through:

https://www.celiac.com/categories/Celiac-Di...Celiac-Disease/

ShayFL Enthusiast

Mine were slightly elevated prior to gluten-free and have returned to normal.

jerseyangel Proficient

Mine were also slightly elevated before diagnosis and returned quickly to normal on the gluten-free diet.

Recently, after a prolonged glutening (long, stupid story on my part), they went up again. After exhaustive testing, after which my levels returned to normal, my GI feels the episode was "Sprue-related".

Hopefully yours will normalize after you're on the diet for a while. Your doctor should keep tabs on it, and if it's truly persistant after a reasonable amount of time it might warrent further testing.

kimis Collaborator
Mine were also slightly elevated before diagnosis and returned quickly to normal on the gluten-free diet.

Recently, after a prolonged glutening (long, stupid story on my part), they went up again. After exhaustive testing, after which my levels returned to normal, my GI feels the episode was "Sprue-related".

Hopefully yours will normalize after you're on the diet for a while. Your doctor should keep tabs on it, and if it's truly persistant after a reasonable amount of time it might warrent further testing.

I would love to hear you glutening story!

jerseyangel Proficient
I would love to hear you glutening story!

:ph34r:

I was going along fine and last spring I decided to lose some of this weight I've gained as a result of menopause and too many gluten-free baked goods. I had success years ago with a low-carb diet, so I did it again, only this time gluten-free.

Being a snacker, I found myself eating more nuts and to save time I bought bags of Diamond shelled walnuts. I swear, I had checked them for safety previously......(famous last words!)

So, I'm eating these daily--mixed into my trail mix, out of the bag--you name it. Even after I found myself getting sick much more often, I thought well, gee--maybe it's another intolerance, an ingredient in my shampoo, my nerves, the heat, the chiropracter..... :lol: I considered everything but these stupid nuts! :P You'd have thought I might have followed some of my own advice! :lol:

Well, during this whole time, I had my regular visit with my GP--and that's how the elevated liver enzymes came up. Two of them were slightly elevated, and after retesting a week later, they were all elevated.

I get referred to the GI, and cut to the testing story above. Somewhere along the line at this point, I get the bright idea to have a look at the bag of nuts--and there it was...."made on the same equipment as wheat....." :huh: does not cover how I felt at that moment.....

When I called the company to confirm this (still in shock at my own stupidity), I was told that "yes, the shelled walnuts are now make along the same lines as the newer flavored walnuts".

B)

trents Grand Master

I had mildly elevated liver enzymes for about 12 years before Celiac dx. After going gluten free for 3 months they were in the normal range. My albumin and total protein remained supressed for about four years after going gluten free, however and are just now back into the low end of normal. I attribute it to live damage 'cause albumen is manufactured by the liver. So I think the answer to your question is yes, it can cause liver damage. The good news is the liver is the most resilliant organ in the body.

Steve


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



photobabe42 Newbie

I had elevated liver enzymes (about 10x too high) during a CMV overload combined with a sinus infection over the summer. At the time, we thought it was due to the amount of Tylenol that I was taking for the headache and fever. The enzymes eventually subsided, but not before I started experiencing some Celiac symptoms like unexplained nausea and D that were attributed at the time to my Crohn's disease. I tested negative for Celiac after asking for the Enterolab test but have started gluten-free anyway (and trying to do casein free too). I wonder if there was any connection to my liver enzymes and the Celiac symptoms. I'm having mixed results on the diet so far and am wondering if I need to cut out other foods for awhile. I would be interested to hear about others who have experienced elevated liver enzymes.

kimis Collaborator
:ph34r:

I was going along fine and last spring I decided to lose some of this weight I've gained as a result of menopause and too many gluten-free baked goods. I had success years ago with a low-carb diet, so I did it again, only this time gluten-free.

Being a snacker, I found myself eating more nuts and to save time I bought bags of Diamond shelled walnuts. I swear, I had checked them for safety previously......(famous last words!)

So, I'm eating these daily--mixed into my trail mix, out of the bag--you name it. Even after I found myself getting sick much more often, I thought well, gee--maybe it's another intolerance, an ingredient in my shampoo, my nerves, the heat, the chiropracter..... :lol: I considered everything but these stupid nuts! :P You'd have thought I might have followed some of my own advice! :lol:

Well, during this whole time, I had my regular visit with my GP--and that's how the elevated liver enzymes came up. Two of them were slightly elevated, and after retesting a week later, they were all elevated.

I get referred to the GI, and cut to the testing story above. Somewhere along the line at this point, I get the bright idea to have a look at the bag of nuts--and there it was...."made on the same equipment as wheat....." :huh: does not cover how I felt at that moment.....

When I called the company to confirm this (still in shock at my own stupidity), I was told that "yes, the shelled walnuts are now make along the same lines as the newer flavored walnuts".

B)

I can't belive your story....Maybe that is why mine are still high! I eat Nature's Path cereal everyday....on the bag it states something about being prossesedin the same facility as wheat. It is the puffed corn cereal, there is no forms of gluten in the cereal.......that CC sucks

jerseyangel Proficient
I can't belive your story....Maybe that is why mine are still high! I eat Nature's Path cereal everyday....on the bag it states something about being prossesedin the same facility as wheat. It is the puffed corn cereal, there is no forms of gluten in the cereal.......that CC sucks

Well, like I said, my GI said that Celiac can affect our liver. Like all the other lovely symptoms, it doesn't happen to everyone and that's why they like to rule out other causes.

Maybe go through your foods and topical products and get out the suspicious stuff and see if that makes a difference :) .

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.