Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Blood Test Negative, But Can Still Be Gluten Intolerant?

dizzygrinch

Recommended Posts

dizzygrinch Enthusiast
dizzygrinch
Posted

If the celiac blood panel comes out negative, can a person still be gluten intolerant? I think I already know the answer, but just want to make sure, this is all so confusing!! Im doing better off the gluten, but the blood panel did come back neg, (I was gluten free for several weeks though)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Not only can they be gluten intolerant they can be full blown celiac. Of more importance in your case is that you had already been gluten free for a while. That will effect the tests. Did you get your hands on the actual test results? Sometimes just a point or two into positive will prompt a doctor to say the results were negative even though they are not.

ang1e0251 Contributor
ang1e0251
Posted

If you were gluten-free, that could cause a negative blood test or you could have had a false negative. If you feel better on the diet, maybe you should just choose to remain on it and feel better. I did. I won't eat gluten again just for a test to tell me what I already know.

If you feel it's necesary to have certain test results, you must eat gluten every day (I've read for 3 months) to get accurate results. Even then, you could have a false neg on blood tests. The gold standard is endoscopy of the small intestine. The intestinal damage can be spotty so it's necesary to have biopsies taken from various portions of the organ.

Either way you decide to go, we will support you. Good luck!

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

thanks everyone! good idea, I will get those tests results,, then I can post them here. I am wondering what the numbers are, I should have asked!! I really do feel better being gluten free, so I dont think Im going to eat gluten just for tests....

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

Yes, totally! That is my situation. My Celiac testing came back negative (falsely I believe - I had been gluten free for about 6 weeks) but I feel 100% better eating gluten free. My allergist agrees with that reasoning too and she is the one who dx me with gluten intolerance.

MollyBeth Contributor
MollyBeth
Posted

I had a negative blood test and then had a positive biopsy! If you fell better on the diet I would just stick with it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      1

      The Happy Tart review

      Was the card itself lost or just the record or both?
    2. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      1

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    3. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    4. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,848
    • Most Online (within 30 mins)
      7,748
    Francis M
    Newest Member
    Francis M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.