Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pica?


zeta-lilly

Recommended Posts

zeta-lilly Apprentice

Okay, I'll preface this by saying that I never actually ate anything. I knew it was crazy, but when I was pregnant (pre-diagnosis), all I wanted to do was eat weird things. I have always had food cravings, but usually normal ones (cookies, bread). The biggest craving I had was permanent markers. I would sit there and fantasize about eating the marker in my drawer. I would get a whiff of gasoline, cleaning products, cedar, fresh paint, and all I could think about was eating it. It went away right after I delivered, at which point I craved hamburgers like crazy. I assume I was just extremely malnourished because of the celiacs and pregnancy.

Has anyone else had pica prior to being diagnosed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I did--when I was pregnant with my second child. I craved chemical smells like gasoline and paint.

MaryJones2 Enthusiast

I most often associate pica as a symptom of iron deficient anemia. Anemia was my initial symptom. When I was severely anemic I craved ice. It was so bad I had to have 3 crowns replaced because I cracked them. But now that you guys mention it I also used to love the smell of gasoline and markers too.

jerseyangel Proficient

I was anemic for years.....taking iron would keep it at "borderline" most of the time.

Mother of Jibril Enthusiast

My daughter has had problems with pica... sometimes she eats chalk like it's candy. She also loves ice cubes and paper. When I searched online it said that in kids with normal to high intelligence it's associated with iron deficiency and/or OCD. Both of these run in my dad's family. I had her tested and they said her iron levels were "normal," but I didn't get the exact figures and I didn't know as much about the CBC as I do now :rolleyes: The celiac/pica connection makes sense! Her pica has been better since we cut way back on her gluten intake.

Incidentally, I also craved hamburgers during my first pregnancy :P And raw tomatoes. Last time it was Mexican food (guacamole, beans, salsa) and root beer.

MaryJones2 Enthusiast

I think it would be a good idea to be checked out for anemia especially since you're pregnant. The CBC only checks hemoglobin and that isn't always a good indicator of anemia so you also need to have serum iron, ferritin, TIBC (total iron binding capacity).

Puddy Explorer

I chewed on ice for years. About 10 years ago, my dr. discovered I was anemic which he attributed to heavy periods. He told me to take iron pills and I slowly lost the cravings for ice. But about 3 years ago, it started again. I just thought it was a bad habit. This year I was diagnosed with celiac and severe anemia with no iron stores. Myy current dr. put me on heavy duty iron and I haven't had the cravings since. Now that you mention it, I've always loved the smell of markers, paint and especially gasoline.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zeta-lilly Apprentice
I think it would be a good idea to be checked out for anemia especially since you're pregnant. The CBC only checks hemoglobin and that isn't always a good indicator of anemia so you also need to have serum iron, ferritin, TIBC (total iron binding capacity).

I'm not pregnant now, she's two :-) Since I've gone gluten free I feel much better.

Also, I think to a certain degree thinking that gasoline, markers, and paint smell good is normal. Most of my friends think so, but wanting to eat them is totally different :-) I'm so glad that's over.

Darn210 Enthusiast

When my daughter was initially diagnosed and I was in my denial stage, I was asking the doctor if it could be some sort of bacterial infection or parasite because my daughter would "lick" all kinds of things . . . doorknobs and glass (windows and doors) were her favourite (I think because they felt cold) but other things, too. He looked at me like this . . . :huh: . . . then said that's a form of Pica and that's also a symptom of Celiac . . . Doh!!! I was just giving him more evidence!!! Not good for my "She can't possibly have Celiac" campaign!! :P

Mother of Jibril Enthusiast
He looked at me like this . . . :huh: . . . then said that's a form of Pica and that's also a symptom of Celiac . . . Doh!!! I was just giving him more evidence!!!

:lol::lol:

I used to get in trouble for that all the time when I was little! I remember licking the edge of the counter in the check-out line at Kmart when I was about four or five years old. It just happened to be at mouth-level and I remember liking the metallic taste. What kind of kid does that? :lol: Sooo many things are making sense in my life.

jerseyangel Proficient

When I was a kid, one of my favorite things to do was go the the gas station with my dad. I'd open the window, stick my head out and smell the gasoline. I also loved it when they re-surfaced the roads--loved the tar smell. And magic markers....moth balls.....Vicks Vapo Rub :ph34r:

The only time I had the urge to eat these things was when I was pregnant, though.

Puddy Explorer

Oh, Vicks VapoRub! I love the smell of that. I used to put some on a tissue and carry it around so I could sniff it during the day. I thought it was because it reminded me of my mother when she would rub it on my chest when I was little. Who knew!!! LOL

larry mac Enthusiast

When I was a kid, I used to burn matches and after they cooled let them dissolve in my mouth. I remember it tasting good. lm

zeta-lilly Apprentice
When I was a kid, I used to burn matches and after they cooled let them dissolve in my mouth. I remember it tasting good. lm

Wow! I can't even imagine that tasting good. And I hate the taste of metal. It sounds like you guys had it worse than I ever did! It's funny though, they just redid the elevator at the gym and it smells like paint, so good! Someone asked me why I came to the gym to run a few miles then lift weights, but I took the elevator instead of the stairs. I made up some excuse. I didn't tell them the real reason. ;)

julirama723 Contributor

This is a wild thread!

When I was a kid, I'd always sneak play-doh and eat it. I liked that it was salty and slightly rubbery and had that wierd chemical smell. I also loved to put keys in my mouth, they had this sort of metallic heat. (Just typing that...I can taste them now!) I would also always want to put coins in my mouth for this same reason, but my parents would freak out. (I freak out about that now, thinking of how many germs I ingested, ewwww.)

I also love the smell of gasoline and the smell of burnt matches/blown out candles.

I had no idea this was considered pica! My doctor just asked me about this at my last appointment, and I said, "Of course I don't have pica, I've never eaten dirt!" Ooops.

Mother of Jibril Enthusiast

Oh yeah... keys and coins!! :P And metal railings on the playground at school. Ugh. No wonder I had a lot of colds... I was putting all kinds of nasty things in my mouth.

My daughter has been really healthy, but I catch her doing the same behaviors... We couldn't leave her alone with the playdoh for a long time because she would eat it like a dinner roll.

This thread makes me laugh so hard!! :lol: It just really hits the nail on the head.

AliB Enthusiast
When I was a kid, one of my favorite things to do was go the the gas station with my dad. I'd open the window, stick my head out and smell the gasoline. I also loved it when they re-surfaced the roads--loved the tar smell. And magic markers....moth balls.....Vicks Vapo Rub :ph34r:

Me too! Me Too! I used to wind the window down and take deep breaths of the fuel smells! But I did wonder whether it is a kid thing, too. Young people are very drawn to strong fume-y stuff like glue-sniffing which is generally confined to teenagers.

Perhaps it is something to do with a deficiency of some kind! There's something for the 'powers that be' to investigate - who knows, perhaps they could prevent kids glue-sniffing by getting them on a decent diet with plenty of fresh raw fruit and veg containing plenty of vitamins and minerals and enzymes, and give them supplements if necessary.

Get plenty of the fresh raw food and you feel so great that you don't need to be doing that stuff. Wish I'd eaten more fruit and veg as a kid - come to that I wish I'd eaten more fresh fruit and veg my whole life - maybe I wouldn't be in this mess now.

I am eating more of it now though, and it is working. Anything much that is cooked or 'heavy' and I am back in the quagmire with a struggling digestion and extreme fatigue.

  • 2 months later...
curiousgeorge Rookie

OH geeze, I'm just seeing this thread now.

WOW.

I ate everything as a kid but was REALLY good at keeping it a secret. I quite literally ate story books. I'd rip bits of paper out of them and chew on it like gum. I ate the paint of my tricycle by scraping at it with my teeth (loads ofl ead in that I'm sure). I also used to eat/drink mucilage glue at school. I can still taste that if I really concentrate. I am convinced I was un dx celiac even as a kid. I've never liked bread and I remember it was a special treat to have english muffin pizzas but I'd always feel HORRID after eating them. Funny, I was the pickiest eater on the planet yet I'd eat paint?

MollyBeth Contributor

My iron and ferratin levels are still kindof low. I'm still eating ice all the time...and once when I was in high school I ate powdered laundry detergent. My mom caught me and was like whatis worng with you. I told her I didn't know and the urge was so great I couldn't stop myself. That's the way it is with ice too. After that she didn't buy the powdered detergent anymore... I also love the smell of magic markers an gasoline...

chatycady Explorer

I had pica until they found I had pernicious anemia. (ice) B-12 shots solved that. But I still crave salt. I just ate a whole jar of dill pickles tonight. I figure I must need it. I have low blood pressure.

I still like the smell of burned matches. And I ate play doh too as a child I still like the smell of a fresh can!

  • 1 year later...
anabananakins Explorer

I'm wondering now if my insane cravings for uncooked pasta are pica. I'm new to all this and not yet diagnosed (had the blood tests this morning) but I've craved dried pasta since I was a kid. If it's cooked I think meh, whatever,it loses all power over me but if it's still dry ...ohhhhh. It seems ridiculous that I can take or leave chocolate and all my friends tease me for it :-P

I figured for my gluten challenge I might as well have a final fling. My family will be thrilled if I give it up though; I'm always getting into trouble for getting into the spaghetti when I visit my mum's place - the crunching drives my sister nuts :-)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,260
    • Most Online (within 30 mins)
      7,748

    HaleighA
    Newest Member
    HaleighA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
×
×
  • Create New...