Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutino Products : Reaction?


raisin

Recommended Posts

raisin Enthusiast

It seems like every time I eat a seemingly-safe Glutino brand item, i start feeling sick. Their bread, cereal, and everything else sets me off. They have soy in many of their products, but I don't buy those, and I don't react to trace amounts of dairy so it's unlikely for soy.

Does anyone else have a reaction to their products? What causes the reaction?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

I've never had a problem with Glutino products. Although they are not my favorites it's often all we can get in Hawaii.

Have you made sure there are no cross contamination issues with ovens or toasters?

ken

It seems like every time I eat a seemingly-safe Glutino brand item, i start feeling sick. Their bread, cereal, and everything else sets me off. They have soy in many of their products, but I don't buy those, and I don't react to trace amounts of dairy so it's unlikely for soy.

Does anyone else have a reaction to their products? What causes the reaction?

raisin Enthusiast

Yes, I have a 100% gluten-free kitchen, even my paper towels are gluten-free. There is no chance for CC in my toaster or oven, and their cereal also makes me feel bad.

psawyer Proficient

We have been using many Glutino products for years now, and I never have had a problem with any of them.

MaryJones2 Enthusiast

You might want to check their allergen chart and see if you can find a pattern. You might be sensitive to one of the ingredients. Open Original Shared Link

raisin Enthusiast

Thank you, but that was the first thing I checked, and it was not the problem.

ive Rookie

Is it possible that you are sensitive to corn / cornstarch? Glutino bagels and all of their bakery products contain corn in some form. Corn gives me a very similar reaction to glutening (not always digestive issues), so in the beginning of my gluten-free diet I thought I was getting glutened a lot, until I excluded corn from my diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



raisin Enthusiast

Someone suggested that to me months ago, when I first noticed reactions to Glutino products, but I am positive corn does not bother me; I can eat it in any form, even bake things from corn flour myself. I'm also not allergic to rice, and I am not positive I have a soy allergy (just avoid it to be safe).

ksymonds84 Enthusiast
Someone suggested that to me months ago, when I first noticed reactions to Glutino products, but I am positive corn does not bother me; I can eat it in any form, even bake things from corn flour myself. I'm also not allergic to rice, and I am not positive I have a soy allergy (just avoid it to be safe).

A shot in the dark, but what about xantham or guar gums? It took me months to finally nail down that xantham gum is a problem for me.

raisin Enthusiast

I don't react to Bob's Red Mill gluten-free corn muffin mix, which contains that, so couldn't be. :o

happygirl Collaborator

This is my least favorite answer - you may just not know what or why.

There is one brand of gluten free products that I repeatedly got sick from, even though everyone else did fine, and their products were truly gluten free. I was never able to isolate the ingredient, as I ate other products with those ingredients, and was perfectly fine.

I have issues with a particular ice cream brand - all of them - but its not gluten.

These are both brands that don't regularly have complaints. Interestingly, some of the companies that people often have issues with - I never do. :lol:

Still don't know what it is - I just had to quit eating those products/brands.

raisin Enthusiast

Sadly, I think you must be right.

I can't think of any explanation. I even emailed the,m to be sure they are a genuinely gluten-free dedicated line. :o Guess I just can't have Glutino.

psawyer Proficient
Sadly, I think you must be right.

I can't think of any explanation. I even emailed th,m to be sure they are a genuinely gluten-free dedicated line. :o Guess I just can't have Glutino.

Not just a dedicated line, but the entire plant is gluten-free. I have met the owner and president, Steven Singer (ssinger at glutino.com), and he is dedicated to serving us, and to getting his products into mainstream grocery stores.

I don't know the answer, but if those products don't agree with you, then don't eat them.

  • 2 weeks later...
meaganclaire Newbie
It seems like every time I eat a seemingly-safe Glutino brand item, i start feeling sick. Their bread, cereal, and everything else sets me off. They have soy in many of their products, but I don't buy those, and I don't react to trace amounts of dairy so it's unlikely for soy.

Does anyone else have a reaction to their products? What causes the reaction?

I'm so glad it's not just me! Fairly recently, I started to notice I would be horribly sick in the morning after eating a bagel for breakfast. I would be even more sick after I'd had one for dinner and then again for breakfast (I tend to eat a lot of the same things). At first it was a fairly mild nausea and I chalked it up to my Celiac morning sickness (which has not gone away despite the diet, to my chagrin). But when it went from mild nausea to painful cramping, I knew it must have been something I'd eaten. I noticed the symptom was a lot like when I'd eat home-made chocolate chip cookies. Those are gluten-free!

A poster above suggested Xanthan Gum as the culprit. I do use Xanthan Gum in my chocolate chip cookies, but my mother also uses it in her chocolate cake, and I use it in oatmeal cookies - so far no reaction.

I don't know what the deal is, but I had to give up all my cinnamon/sugar breakfast bagels to my mother who can tolerate them.

jerseyangel Proficient

I love the taste of the Glutino crackers, but they don't seem to agree with me. <_<

  • 7 years later...
Taras Light Rookie

I believe I've been reacting to Glutino pop tarts. I get panicked within an hour of eating them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.