Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results

Megan6516

Recommended Posts

Megan6516 Rookie
Megan6516
Posted

My 3 year old son's celiac panel came back today and the nurse today me that they ran 6 different test and 3 showed positve and 3 were perfectly normal. I guess I'm just confused. I thought it would be more like a yes or no question. Any one have a similar experiance?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sugarsue Enthusiast
sugarsue
Posted
My 3 year old son's celiac panel came back today and the nurse today me that they ran 6 different test and 3 showed positve and 3 were perfectly normal. I guess I'm just confused. I thought it would be more like a yes or no question. Any one have a similar experiance?

I have certainly noticed that with celiac, there does not seem to be any cut and dry answers. Do you have the test results? If not, I would ask for a copy. I have found that I had lots of questions for all the knowledgable people on this forum that was so helpful! I know you have tons of questions!

psawyer Proficient
psawyer
Posted

Testing in young children is often problematic. Results may or may not be accurate, and it is hard to know. In cases like this, the answer is "maybe."

Mother of Jibril Enthusiast
Mother of Jibril
Posted

If one of the tests was total IgA, you would actually want that to come out normal :) If that one is too low it's very difficult to get an accurate result on the other tests, even if you're really sick. Also, some test are more specific for celiac than others. Anti-gliaden indicates a general problem with gluten (which could manifest in any part of your body). Ttg is more specific for autoimmune damage to your intestines (celiac disease).

What are your plans now? Is your son being referred to a specialist? It's best to wait on the gluten-free diet if you're going to do an endoscopy, but otherwise... do give the gluten-free diet a try! Gluten intolerance can do a lot of damage. For kids, sometimes the first sign of a problem is when they stop growing. :(

happygirl Collaborator
happygirl
Posted

Get copies of your results - post them here - some tests are 'better' (i.e., more sensitive and specific) than others. The tests do not all correlate 1:1, so you wouldn't necessarily test positive on all of them (which is why there isn't just one test - none are perfect).

Megan6516 Rookie
Megan6516
Posted
  • Author

We go back to our specialist today. I'll get a copy of the results to post but what I do know is that his Total IgA was high (normal range was 20-150 and my son's was 202) and his tissue something or other was normal but his glaliadin Iga was a little high (normal was 1-11 and his was 15). I would rather just try the gluten free diet then put his little body through another surgery (he's already been through 2 this year). I will post a copy of the results, thanks for your help!

Mother of Jibril Enthusiast
Mother of Jibril
Posted

What kind of surgery is his doctor proposing? :huh: Sometimes you can "wait and see," sometimes you can't.

I hope his appointment today is helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Megan6516 Rookie
Megan6516
Posted
  • Author

Ok so I got the results and the ran 5 test (I thought it was 6, sorry) and his Total IgA was positive along with his gliadin IgG. His Gliadin IgA, Tissue Iga, and Tissue IgG were all negative. The doctor went ahead and set up an endoscopy for next thursday. Hopefully we'll know something after that =/

happygirl Collaborator
happygirl
Posted

Hi Megan - good luck and I hope the procedure yields some answers. You may want to talk to the doctor beforehand to make sure that multiple biopsies are taken. Celiac Disease can have 'patchy' damage, and when only one sample is taken (which sometimes doctors do), its often not as accurate.

Open Original Shared Link (see: Pitfalls in the biopsy diagnosis of celiac disease)

The total IgA test is not a Celiac test - so in terms of Celiac, his only elevated test was the AGA IgG.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,151
    • Most Online (within 30 mins)
      7,748
    max it
    Newest Member
    max it
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • N00dnutt
      Probably celiac but also confused

      By N00dnutt · Posted

      Hi @terrymouse Generally, after a Celiac Seriology Blood Test, if something anomalous shows up, the follow-up will be a Gastroscope. Your Endocrinonogist will be looking to see if you still have (Villi). Villi are Tenticles/Hairs that are prevalent throughout the small intestine; their function is to extract nutrients, vitamins and water. The absense of Villi will typically result in watery bowl movements, other telltale signs being, lethargy, feeling cold, always hungry (valuable nutrients are being bypassed). I was diagnosed 12 years ago. One other thing associated with an AutoImmune Disease, they generally have a companion, in my case I have Hypothyroidism, other may have Hyperthyroidism (Hashimoto's). Others may get Eczema, or some other skin disorder, usually due to not getting the proper nutrition your body needs.   HTH Mark.  
    • jeriM
      Can Celiac flares affect my eyes?

      By jeriM · Posted

      Thank you Knitty Kitty,   I have all the information for the nutritionist sitting in front of me, but I've procrastinated.   Between you and Scott - I'll contact him tomorrow and get started on a better me.   Thank you both for all the support and information.    
    • knitty kitty
      Can Celiac flares affect my eyes?

      By knitty kitty · Posted

      Hi, @jeriM, I can attest to Celiac and eye problems being connected!  There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease.  Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell.  Have your doctor check for Sjogren's.  Correct low Vitamin D, which regulates the immune system.  Talk to your nutritionist about including in your diet plenty of Omega Three's. Omega Three's help keep our eyes moist and lubricated.  You know how oil floats on water, same thing with our eyes!  Fun fact:  Our eyes are derived from the same sort of tissues as our digestive tract in a developing fetus. Oh, check your thyroid function, too.  Hashimoto's thyroiditis frequently occurs with Sjogren's. Autoimmune diseases tend to cluster in celiac disease.  I also have Diabetes type two.   Discuss with your nutritionist the benefits of a low histamine diet.  A low histamine diet can help reduce inflammation and gets those inflammation markers down.  I like the Autoimmune Protocol Diet, a Paleo diet that promotes intestinal health. Best wishes!  Keep us posted on your progress!
    • jeriM
      Can Celiac flares affect my eyes?

      By jeriM · Posted

      Ah, Scott,    Ha ha!  Thats almost a reasonable assumption given the prices during the shortage.  However, our eggs?  We always gave them away to friends and seniors we know, so no mansion here.  Now we have to buy eggs like everyone else.   The house we found, we loved so much that it made it worth it for us to give up the chickens.  A hard decision.   
    • Scott Adams
      gluten-free self diagnosed journey so far as well as what triggers. Eye crying like peeling onions?

      By Scott Adams · Posted

      Claritin is an allergy medication which can help with allergy symptoms, but may not be helpful with gluten exposure.
×
×
  • Create New...