Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hand And Food On One Side 'drawing Up'


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I have been having episodes lately where my second and third toes will draw up like they are cramping. It is uncomfortable but not as painful as it looks like it would be. It tends to happen to my foot after I lay down at night. I have just been getting up and walking the foot off then yesterday it started to happen to the third and fourth fingers hand on the same side. It eventually frees up after I shake the hand for a bit. While it is not unknown for me to have my hands spasm if I am holding something this out of the blue thing is getting annoying. I won't be able to continue my search for a doctor until the weather clears a bit, I have been looking for one for a couple years now, so if there is anything you guys know of that might help please let me know.

I don't think this is gluten related as I have none of my 'glutened' symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I did used to get something like what you describe. One or two toes would just be drawn sideways or upwards, and the best I found for immediate relief was to apply pressure to the top of the effected foot with the heel of the other foot. But not against a surface. In other words, using the ankle joint to push that foot upward against something - I used the heel of my other foot.

While I can't offer anything specific, if it was me I'd be thinking along the lines of mineral (or vitamin) deficiencies, toxic levels of something like artificial flavors/colors, or naturally occurring substances which aren't well tolerated. I do know that the toxic alkaloids in nightshades effect motor nerve function. A quick Google suggests deficiencies in magnesium, potassium, and calcium.

Thankfully, it has not happened in a while, which I attribute to the supplements I take.

Here's a link which may help:

Open Original Shared Link

ravenwoodglass Mentor

Thanks for the reply. I knew about the magniesium and thought I was taking a supplement that had it. Turns out the amount is 1% of the daily value so I think I'll pick up a supplement as well as googling high mag foods. Do you know if I should supplement that above the daily value for a while? Thanks for the link, these are spasms more than cramps by their definition. I've been eating a lot of potatoes lately, my favorite cold weather comfort food so perhaps I'll cut down on those also just to be on the safe side.

jerseyangel Proficient

Hi Ravenwood,

I get the toe thing you described--the middle toes on my left foot will sometimes draw up/back painlessly for no reason. With my hands, if I grab something tightly sometimes they seem to lock into that position and then slowly release.

I was just on another thread the other day (restless legs) and a couple of us were talking about muscle cramping and tightness. Another thing that happens to me, as I said over there, is if I stretch my legs out in bed, my calf muscles frequently sieze up, as well as the arch in my foot.

One thing I notice is that when I make sure I drink plenty of water, it's not as frequent. Magnesium is another good thought, but I'm leery of taking that myself since I'm so prone to D.

Fiddle-Faddle Community Regular

I think the B-vitamins and vitamin D also play a role in neuro issues, and DH (a PhhD chemist) says that multivitamin supplements contain the RDA which according to him is a bare minimum, not an optimum amount.

I would also wonder if something else is going on to cause either a malabsorption issue or if something is bonding to the vitamins (in supplement form or in food) that you are consuming?

I know I was told that thyroid hormone supplements, for example, should not be taken within 5 hours of vitamins as they bind to the vitamins.

Is it possible that a virus could cause this sort of thing if it attacks in the brain? Or could this even be a kind of mini-stroke?

I remember seeing both hands and feet draw up in a friend who was in a coma. The PT put her hands and feet in splints to prevent locking and atrophy.

SOrry I have no definitive answers to help. :(

RiceGuy Collaborator
Thanks for the reply. I knew about the magniesium and thought I was taking a supplement that had it. Turns out the amount is 1% of the daily value so I think I'll pick up a supplement as well as googling high mag foods. Do you know if I should supplement that above the daily value for a while? Thanks for the link, these are spasms more than cramps by their definition. I've been eating a lot of potatoes lately, my favorite cold weather comfort food so perhaps I'll cut down on those also just to be on the safe side.

I haven't ever read anything that suggested taking a lot of magnesium to bring levels up faster, and I'd think there'd possibly be a laxative effect in that case. Some forms are less prone to the laxative effect, but it's really only something to expect with high doses. However, calcium tends to balance out magnesium, so you can always take calcium with it if you need to. Otherwise, it is suggested to take calcium apart from magnesium, so they don't compete for absorption. The typical recommendation I've seen is to start with 200-400mg. The citrate form is supposed to be well-absorbed.

The suggestion of B-complex and vitamin D seems like sound advice as well.

You can search foods by nutrient Open Original Shared Link.

sbj Rookie

Sounds like cramping due to dehydration or lack of potassium - drink plenty of water and eat bananas!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I picked up a Calcium-Magnesium supplement this morning. I take a multi that is pretty high in most everything but I also take a D3 and a biotin supplement. We'll see if the additional Cal-Mag supplements help a bit. I will up my daily water intake. I never really get hungrey or thirsty and I may be consuming less than I should. If Things don't improve I guess I will have to speed up my search for a new doctor. Not an easy thing in my neck of the woods. Thanks for everything guys.

maile Newbie
Sounds like cramping due to dehydration or lack of potassium - drink plenty of water and eat bananas!

I'll second this one as I get the toe creeping thing as well the arches of the foot. at one point I was on a Dr monitored very low carb, low fat diet and was supplemented with potassium daily. my cramping/creeping continued until I was on a fairly high dose supplement (liquid), apparently it's quite common when you eat lower carb.

Not sure if this applies to your situation but adding in a daily supplement might be worth trying.

JNBunnie1 Community Regular
I picked up a Calcium-Magnesium supplement this morning. I take a multi that is pretty high in most everything but I also take a D3 and a biotin supplement. We'll see if the additional Cal-Mag supplements help a bit. I will up my daily water intake. I never really get hungrey or thirsty and I may be consuming less than I should. If Things don't improve I guess I will have to speed up my search for a new doctor. Not an easy thing in my neck of the woods. Thanks for everything guys.

I also get a non-painful spasm, but it's always been in my left hand, very rarely in my left foot. My pinky and ring finger mostly, will curl up uncontrollably. I started twitching a lot all over about six months ago, mentioned it to my health guru, and she also said to take magnesium. I take it 250 mgs every other day and not only has the all-over twitching gone away (thank god, you look really wierd when your eyelid twitches) but the left arm spasming has gone too. I can tell you also, Patti, I also have an unfortunate propensity to D at the slightest provocation, and have had zero problems with this new supplement. I get those cramps in my legs when I stretch at night too, that hasn't gone away though, so I guess that's not a magnesium thing.

Fiddle-Faddle Community Regular

You know, I had occasional eyelid twitching before going gluten-free, usually when I was really tired.

It never occurred to me that I don't have it any more til you mentioned it.

If it has to do with magnesium, maybe it's because I wasn't absorbing my multivitamin?

Anyway, Raven, how are you doing? Keep us posted, okay?

ravenwoodglass Mentor

Thanks all for the replies. It most likely was the magnesium issue. I started taking a calcium-magnesium supplement 1000-500. I have also added a D3 to my daily supplements. It does seem to be helping as the cramping has stopped. I have never been a fan of supplements but I have been doing just a little research and some of us do have issues with absorption from food even after we have healed. Mostly of course folks like me who were undiagnosed for so long. Oh well, if I still have to live off pills at least they aren't the toxic drugs I was given for so long.

pookie91260 Rookie

I have had the same problem for several years now. I cramp in my toes, hands, and legs. my mom always said grab on to something metal thats cold and squeeze. beleive it or not it works! I tried magnesium but it didn't help. I started doing a lot of walking and that has helped with night cramps. I also take an excercise class that invloves a lot of stretching. I strech out every night before bed and every morning when I get up.

[

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Usually when I digest gluten or wheat I have a 4 hour window before reacting.  If it is immediate it may be an intollerence to another food.  Dairy, Frutose, and bacteria (SIBO) will react with many of the celiac disease symtoms.Has your Doctor ran a  Fructose test which is measuring your Fruit Sugar?  A Hydrogen Beath Test which checks your intestinal bacteria and Dairy?After my biopsy and blood work, these (3) tests were also ran, along with allergy tests, which allery test was sent out of State.  It was a mouth swab. How fast you heal depends on the diet you are following… The following are my personal recommendations to healing. I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. For some there may be other factors involved, but most just aren’t letting their body heal properly. I blame the internet, and misinformation it contains. People want a quick fix, not realizing this is a life long disease. They need a good support group, with people who have been through this and knows what works!  This is what I have found will work for you.                                                                                            First 6 weeks should be:                                                                                                                                 lean meat (beef, pork, chicken, turkey, salmon, sardines, buffalo, deer)                                                   fresh vegetables (steamed or roasted with a little Olive Oil) with 2 cups per day being raw (5 servings; a serving is 1/2 cup)                                                                                                                                      fresh fruit (3 servings; include strawberries, blackberries and blueberries daily)  Makes good shakes with Almond milk.                                                                                                                                        A hand full of almonds daily (pecans and walnuts can be substituted)                                                        brown rice, lentils, Citrucel daily (or the equivalent) Good source of fiber. I use Calm because my body doesn’t absorb Magnesium and I only need to take once in evening.                                                    No dairy of any kind (milk, cheese, yogurt, No breads, No past,  No oats, No pizza, No gluten-free beer, No snacks like cake, biscuits, pies, donuts.                                                                                                Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us.                                                                                              10% of people with gluten-free will be intolerant to dairy                                                                                  10% can not tolerate oats                                                                                                                     After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food.                                                                                                  Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable.                                                                                                                                              You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. This works if you have constipation or diarrhea.                                                                                                        Meanwhile make sure you have had a Dexa test (bone density) and a blood test to check your vitamin and mineral levels: Zinc, D,K,B,C and iron levels.                                                                                  Don't take supplements while healing as your body is not accepting them and they will flush through your body.                                                                                                                                              Have you had a breath test for Dairy, Fructose, and bacteria overgrowth? Should have done when first diagnosed.                                                                                                                                        How fast you heal depends on the diet you are following… The following are my personal recommendations to healing. I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. For some there may be other factors involved, but most just aren’t letting their body heal properly. I blame the internet, and misinformation it contains. People want a quick fix, not realizing this is a life long disease. They need a good support group, with people who have been through this and knows what works! This is what I have found will work for you. First 6 weeks should be: lean meat (beef, pork, chicken, turkey, salmon, sardines, buffalo, deer) fresh vegetables (steamed or roasted with a little Olive Oil) with 2 cups per day being raw (5 servings; a serving is 1/2 cup) fresh fruit (3 servings; include strawberries, blackberries and blueberries daily) a hand full of almonds daily (pecans and walnuts can be substituted) brown rice lentils Citrucel daily (or the equivalent) Good source of fiber. No dairy of any kind (milk, cheese, yogurt) No breads No pasta No oats No pizza No gluten-free beer No snacks like cake, biscuits, pies, donuts. Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us. 10% of people with gluten-free will be intolerant to dairy 10% can not tolerate oats After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food. Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable. You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. This works if you have constipation or diarrhea. Meanwhile make sure you have had a Dexa test (bone density) and a blood test to check your vitamin and mineral levels: Zinc, D,K,B,C and iron levels. Don't take supplements while healing as your body is not accepting them and they will flush through your body. Have you had a breath test for Dairy, Fructose, and bacteria overgrowth? Should have done when first diagnosed. Remember to have a tTg IgA blood test repeated at 6 months then every year after, with another scope done in 3 years. Only way to know if you are healed. I don’t have all the answers; we are learning everyday new ways of doing things, but this is a start! Remember to have a tTg IgA EMA blood test repeated at 6 months then every year after 
    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal".  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning by biopsy with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63 and my wife 10 years dead.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) in the small intestine in Celiac Disease, and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  'Why' is poorly understood.  In fact, it wasn't even known that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So, as part of your recovery you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were symptoms. Our western diet has many deficiencies built into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks so the symptoms of Gastrointestinal BeriBeri can come and go quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, an indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog symptoms by deficient choline, iodine, thiamine B1. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study  
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.