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Age Of Diagnosis?


foodiegurl

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Mrs. Smith Explorer
Looking back I'd say my symptoms started when I was 15 after I had a severe case of mono. I was just diagnosed though back in October. I'm 25 and very thankful I got my diagnosis now. Some of the stories on here from people who waited a life time for a diagnosis are bad enough to make me cry!

Diagnosed after a BAD episode at age 28. I think mine also started in teen years. I had terrible D after eating cream of wheat. Infertility and miscarraige were some signs and always gastro symptoms. In March of 2008 I started having muscle pain and tingling. All are improving 3mos gluten free. My Dad also has Diverticulitus and IBS. I wish he would get tested for Celiac, too.


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Wenmin Enthusiast

Diagnosed at 41. Although I've suffered for the last 6-7 years. GI doctor could not find anything and kept telling me I had Acid Reflux. I was in for my annual OBGYN visit and was telling my doctor some of the symptoms I had. He suggested I go home and look up Sprue Disease on the web. The more I read the more I could see myself. Did some intensive research on the net for about 3-4 days. Then went to see a nutritionists. She recommended that I see a GI doctor in another larger city that specializes in Celiac.

I have never been back to my GI doctor. But, I have gone back to thank my OBGYN! HE WAS THRILLED!!!

princesskill Rookie

i was diagnosed over the last year between 25 and 26 years old. it was sort of by fluke, i have polycystic ovarian syndrome, and my reproductive endocrinologist saw that i was severly deficient in several vitamins and was anemic, between her and my GP we figured it out and tests confirmed.

ranger Enthusiast

I was 62 when self-diagnosed with celiac. Had been sick for nearly 2 years. Constant D., wieght loss, extreme lack of energy, many symptoms. I found this sight and tried gluten-free diet and felt much better. Went to Doc who took blood test (only 1 ) that showed up neg. for celiac. Of course I knew it would, because I had been on the gluten-free diet. Took the huge leap of making an appt. with Gastro guy. Went on gluten challenge for 3 weeks ( I was instructed to eat 1 piece of bread a day) for endo. Took 1 biopsy and declared neg. for celiac.. Of course, by this time, I was sick as a dog! And then I found out that he had used the blood test from the first Doc.! Went back on gluten-free diet, have gained 11 lbs., and can finally get awy from the bathroom! Growing up, I don't recall any health issues, and I was a healthy wheat-eating adult untill this. I did have a problem with panic attacks (controlled)and consantly cracked fingers, but dismissed those. By the way, my ears itched consantly! Wierd. But, I feel so much better now. Just started B-12 4 days ago, and can feel the difference. I don't like Doc.

ranger Enthusiast

Forgot to mention. Sister dx with celiac at age 12. Mother dx with chrons, but I think she was probably celiac. If they can't get it now, they probably goofed in the 70's.

ranger Enthusiast

Forgot to mention. Sister dx with celiac at age 12. Mother dx with chrons, but I think she was probably celiac. If they can't get it now, they probably goofed in the 70's.

Lollie Enthusiast

I was 32ish....


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cyberprof Enthusiast

Age 48

I believe that I had first symptoms at 17. Started getting arthritis pain, and was tentatively diagnosed with Rheumatoid Arthritis. Had terrible stomach cramps (writhing on the floor) two-three times a week, mainly after eating big meals-- I thought it was stress or eating too much.

Other symptoms were frequent big D, depression, arthritis, anxiety, frequent mouth sores, early(quick) menopause.

~Laura

Glutenfreegirly Newbie

Hello my name is Rachel and I was 13 when I found out I had Celiac. I am a freshman and I have proudly been eating gluten free for two years. :rolleyes:

emcmaster Collaborator

21.

I had been sick for 2-1/2 years before that.

I feel fortunate that I wasn't sick for that long before I went gluten-free. Could have been a lot worse.

puggirl Apprentice

I was 27, in Aug, 08 is when I was diagnosed.. I've been gluten-free ever since... Except for acouple accidentel Glutens... But have gotten through it...

I've had Bad stomach problems since I can remember, young like 5-6yrs old.. I used to be a very nervous kid so I always had belly aches. I finally got FED-UP with the stomach pains I went to the doc and we figured this was my problem, and it seems to help for sure.. Every once in awhile I still get sick and have bad nights, but for the most part I've been better, I will find out more when I get a colonoscopy in a few weeks "Yeah Cant wait :rolleyes: "

mattathayde Apprentice

found out at 18 april 08(just a couple months before my 19th), i have had symptoms for years, probably all my life just never realized it. took a few months before i was trying to be 100% gluten-free but i did eat pretty gluten light and started to see some improvement, been trying to go 100% gluten-free since july of 08 (last gluten thing i can honestly remember eating know it had it was on july 4th my brothers girlfriend (who past away in aug from an aneurism) brought awesome cup cakes, looking back was well worth it).

i have been accidently glutening my self for a while though, stupid kellogs cornflake crubms i was using in a meatloaf recipe made with malt.

my mother had a wheat allergy when she was young and my dad has a sensitivity to wheat/gluten but neither have been check in any way for celiac disease yet.

only way i found out was an alternative medicine person we go to, my old doc said i had IBS and my current doc said theres no reason to do a test if gluten-free works for me the only thing the tests will do is tell us what we already know, raise insurance rates, and make me suffer a month of gluten

-matt

lenjac Newbie

I was 33 and kept complaining of reflux issues that the GI doctor would not agree with. Finally family practioner order the celiac blood panel. Felt soooo much better w/in 2 weeks! Have been gluten free for over 4 years.

To all the newbies, it gets easier as you go. But every accidental glutening seems harder to handle.

calgaryjill Newbie

Diagnosed in Nov 2002 at 48 but have never had gastric symptoms. Anemia was the red flag that got my Dr interested. Iron levels had been very low for many years even though I was peppy and had no troubles keeping up with the kids. I could pump the iron levels up with iron supplements but not sustain it. Even after being gluten-free for a year though my irons levels didn't recover and it was put down to my menstrual flow. Now that I'm done with that, iron levels are fine. Because I don't ever have a gastric reaction to gluten I sometimes sneak a taste of forbidden foods and don't worry too much when we travel although I do try to avoid gluten whenever and wherever I can. I know I'm tempting serious consequences but am willing to take that risk.

frecOregon Newbie

I was 46, but I'd had dangerously unpredictable digestion since college. One doctor told me I had irritable bowel--I said, "Isn't that just a medical term for we don't know what's wrong with you?" I gave up milk and that helped. I started eating bananas, rice, and eggs before any major event as they were the only foods that I knew didn't make me sick. A new young doctor referred me for a test when my reflux got so bad that I lost my voice for several months.

CMG Rookie

I was 43. First figured out that I did better on low-carb diet back when I was 30. At that point I had had many symptoms for 10 - 15 years. So, somewhere around 25 years of symptoms before figuring out that gluten is the culprit - including migraines, brain fog, vertigo, neuropathy, rheumatoid arthritis, possible sjorgrens syndrome, reflux and all the other digestive symptoms, and the list goes on.

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    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
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