Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be Diabetes Instead?


invalidcharacter

Recommended Posts

invalidcharacter Newbie

I haven't been diagnosed, since my health insurance doesn't kick in until August, but I was feeling so poorly that I began an elimination diet nonetheless. I'm subsisting mostly on avacados, meat, rice, and vegetables.

Recently, I've noticed that I'm incredibly thirsty (I always chalked it up to chronic dehydration), and am going to the bathroom at least once an hour.

In addition to this, I get very sleepy and befuddled after eating, despite the lack of wheat.

I have some symptoms of diabetes, but I'm also somewhat thin. My BMI is only 22 and at 5'8'', my waist is 26''. I'm 28 years old.

Are the symptoms I've been experiencing typical of beginning an elimination diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
Recently, I've noticed that I'm incredibly thirsty (I always chalked it up to chronic dehydration), and am going to the bathroom at least once an hour.

That combination is a huge red flag for diabetes.

But diabetes would not have to be "instead" -- it could very well be "as well." Type I diabetes and celiac have a positive correlation. I am an example of someone with both.

invalidcharacter Newbie
That combination is a huge red flag for diabetes.

But diabetes would not have to be "instead" -- it could very well be "as well." Type I diabetes and celiac have a positive correlation. I am an example of someone with both.

Poor fellow, that sounds terrible.

I'm still hoping that the whole ordeal can be chalked up to my reluctant thyroid and a dash of boredom-induced somatization.

Here's hoping.

invalidcharacter Newbie

I forgot to mention this: I also have developed a small, white patch in the back of my throat and my lymph node is tender and enlarged. This may just be the result of my body fighting off a head cold, though.

missy'smom Collaborator

As Peter said, those are red flag symptoms for diabetes. Far better to get tested and find that it's not that, than to go undiagnosed. Early detection and awareness is KEY and makes a HUGE difference, which is why I strongly urge anyone with symptoms to get tested. Noone wants to face that diagnosis, not even doctors, it's much easier and more comfortable to put it off, but knowledge is power! There is a type of diabetes that is commonly found in thin people. It is a slow progressing autoimmune form. I am thin and so was dismissed by my doctors for decades because I didn't fit the profile, but after finally insisting on testing, I found that I was right all along and it appears that I am catching it at near end stage so my choices are now very limited. Even so, it's not the end of the world, but I might have had more choices if it had been caught earlier. Be aware that a glucose tolerance test will provide more information than just a fasting blood sugar reading and the more info you have, the better it can be assesed and treated. If I had gone by just a fasting number I would most likely have gone undiagnosed and ended up in an ER with full blown type 1. I had frequent urination for years and thought that was just me or normal, or chalked it up to being female or dehydrated. Now that I manage by blood sugar, I go about as often as anyone else. I never could understand how someone could visit my home, stay for hours, even eating or drinking and not use the restroom once! Now I can do the same.

invalidcharacter Newbie
As Peter said, those are red flag symptoms for diabetes. Far better to get tested and find that it's not that, than to go undiagnosed. Early detection and awareness is KEY and makes a HUGE difference, which is why I strongly urge anyone with symptoms to get tested. Noone wants to face that diagnosis, not even doctors, it's much easier and more comfortable to put it off, but knowledge is power! There is a type of diabetes that is commonly found in thin people. It is a slow progressing autoimmune form. I am thin and so was dismissed by my doctors for decades because I didn't fit the profile, but after finally insisting on testing, I found that I was right all along and it appears that I am catching it at near end stage so my choices are now very limited. Even so, it's not the end of the world, but I might have had more choices if it had been caught earlier. Be aware that a glucose tolerance test will provide more information than just a fasting blood sugar reading and the more info you have, the better it can be assesed and treated. If I had gone by just a fasting number I would most likely have gone undiagnosed and ended up in an ER with full blown type 1. I had frequent urination for years and thought that was just me or normal, or chalked it up to being female or dehydrated. Now that I manage by blood sugar, I go about as often as anyone else. I never could understand how someone could visit my home, stay for hours, even eating or drinking and not use the restroom once! Now I can do the same.

Thank you for the input. As soon as my insurance kicks in, I'll be able to discuss my concerns with a doctor and request a glucose tolerance test.

ravenwoodglass Mentor
Thank you for the input. As soon as my insurance kicks in, I'll be able to discuss my concerns with a doctor and request a glucose tolerance test.

You might want to see if you can find a clinic in your area. If you call your local Health Dept they can tell you where one is located. Many will charge on a sliding fee scale.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
Thank you for the input. As soon as my insurance kicks in, I'll be able to discuss my concerns with a doctor and request a glucose tolerance test.

As ravenwoodglass said, diabetes is nothing to fool around with. Please don't wait months to be seen. Diabetes can be controlled, but there can be serious side effects from lack of control, and these are permanent. Some people only become aware that they are diabetic when they lose their eyesight to glaucoma. Please do not wait.

ravenwoodglass Mentor
As ravenwoodglass said, diabetes is nothing to fool around with. Please don't wait months to be seen. Diabetes can be controlled, but there can be serious side effects from lack of control, and these are permanent. Some people only become aware that they are diabetic when they lose their eyesight to glaucoma. Please do not wait.

Peter is right about the risks to vision. One of the most serious is diabetic retinopathy which is permanent and progressive. Here is a link to info on it from the NIH

Open Original Shared Link

RollingAlong Explorer

I understand that folks are worried about your vision, but I am actually more concerned that you could end up in the hospital.

Could you afford to have a T1 diabetes dx as a pre-existing condition? Probably not. It is best to avoid getting a dx until you are insured and you could get an ER dx at this rate. You need to get your blood sugar under control until you get health insurance and have your appointment. (You're already on the wait list for the endo, right? It takes months to get in with those guys....)

Bloodsugar101.com has a lot of basic info and get a copy of Bernsteins book - you can read parts of it online.

Also get over to the forum

www.diabetes-book.com/cgi-bin/yabb2/YaBB.pl

The forum has been down this weekend (maintenance?) but will be up shortly.

If you want to be sure that we're all a bunch of over-involved worry warts... go buy a glucose meter. You can often get them free after rebate. I think Bernstein is recommending the Accucheck Aviva.

Keep us posted!

glutenfreejenny Apprentice

Since I've gone gluten free I've noticed I've been really dehydrated. A few times I've rushed to the drugstore to get some Gatorade to help. And I do also have frequent urination. But I am a normal weight. Do you have to be underweight?

missy'smom Collaborator
Since I've gone gluten free I've noticed I've been really dehydrated. A few times I've rushed to the drugstore to get some Gatorade to help. And I do also have frequent urination. But I am a normal weight. Do you have to be underweight?

The prevailing assumtion is that diabetes occurs most often in those who are overweight. The truth is that there are several kinds of diabetes and it can occur in people of any weight. Also sudden weight loss can be a warning sign of diabetes.

Nancym Enthusiast

Just as an aside, you can be slender and have type 2 diabetes also. It isn't all that rare actually.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,554
    • Most Online (within 30 mins)
      7,748

    Becky 0163
    Newest Member
    Becky 0163
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.