Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody Else Sensitve To Light


srthomas21

Recommended Posts

srthomas21 Explorer

especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.

Do you get the halo effect, where the light seems to fractionate into hundreds of little lights around the light source?

This happened to me immediately after the event which I am sure triggered my celiac response. My eyes then became sensitive to light during the day despite sunglasses all the time and would just stream in response. They told me I had "inadequate tears". Of course at the time they made this diagnosis I was also taking a medication that also had a side effect of potentially "making you blind" so I am assuming it had significant effect upon the eyes and muddied the waters. After I stopped the medication and stopped eating gluten this sensitivity and fractionation has gone away and driving at night is no longer such a nightmare. I no longer have to put the "adequate" tears in my eyes to stop them tearing. You figure it out because I can't. I do believe the gluten had a lot to do with it :rolleyes:

ravenwoodglass Mentor

The light sensitivity and night blindness could be a result of your not absorbing nutrients from your food. The night blindness can also be related to aging. Make sure you are getting enough vitamin A in your diet or in supplements. For me the light sensitivity has improved a bit but I am still effected by night blindness enough to have trouble driving at night but at my age the night blindness is unlikely to improve.

TrillumHunter Enthusiast

That's something that cleared up for me as I have healed. I do think it was related to deficiencies.

mommida Enthusiast

I had the sensitivity to light and fractionation of light after I had chicken pox at the age of 23. This had lasted for 2 years. I did have blood work done and found out I had an undiagnosed case of Mono with the antibodies in my system.

tarnalberry Community Regular

I am light sensitive, but I suspect it's related to me having fibro, as that is a central nervous system sensitization thing. I'm also sound sensitive. I'm not always equally sensitive to these things, but it can be pretty annoying sometimes. Stress levels affect it for me, and I try to do my best about moderating light levels - introduce myself to brightness gradually, make it darker gradually, in whatever way possible. (Traffic tunnels in sunny weather are the worst for me - that relatively sudden change from dark to *BRIGHT*.)

srthomas21 Explorer

Yes, I get that crappy fractional light thing. It stinks. I'm not sure what it is but it drives me crazy. Also, when a person is standing at a window and I'm facing the window talking to them the light from the window bothers me and it's hard to focus in on the person.

Whats the best way to check for nutritional d deficiencies?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



monkeypoo Newbie

YES!! I am very sensitive to light and have found I am more sensitive after having consumed peppers, tomatoes, potatoes or especially oranges or anything containing orange rind.

The Fluffy Assassin Enthusiast
especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.

Very. In my case, it's more likely the Asperger's than the celiac sprue. Biggest problem is getting to sleep, rather than night blindness or fractionalization. I slept with my head under the blankets or under a pillow for decades. Finally got a decent sleep mask a few years ago and things have been much better.

As to finding out about nutritional deficiencies (your question in your own reply), a simple blood test takes care of that. Or an array of blood tests, but they only need one sample of blood, so from your point of view it's one test.

Nadia2009 Enthusiast

I have light sensitivity and also sunlight sensitivity but only since last year for the later. After a bad sinus infection that went on for weeks and after 2 months of migraines (doctors said it was all due to the sinuses), I started having sunlight sensitivity. Now, I grew up in Africa and sunlight was never a problem actually I craved sunlight but now I need my sunglasses so much.

TinyOrchid Newbie

Yes! I'm incredibly night blind, especially when driving, headlights and street lights. Even the reflectors on the road etc...

crazy.

Dustda18 Rookie

I see starburst around lights at night, and when its sunny outside I must wear glasses cause it hurts my eyes to the point i almost close them. Got better though on a gluten free diet

nasalady Contributor

Yep....sensitive to light, loud noise. Mainly due to my fibromyalgia though.

  • 6 months later...
srthomas21 Explorer

Reviving an old thread.

Gluten free now for 6 months. The light fractionization thing is still bugging me.

The best way to describe it is when looking at a street lamp or headlights if you squint your eyes you can see many light rays that protrude from the light source. This is normal when you squint but I see these light rays without squinting. I can make them go away by opening my eyes really wide but I can't go around like that all the time.

Im not as sensitve to light since gluten free but definately more than normal people are. I have to wear a hat to sporting events such as pro basketball games and college football games because the lighting bothers me.

I wonder if this is a brain issue that will take more time to heal or maybe never get better. It sure is annoying.

Anyone else out there still with this or something similar?

  • 2 weeks later...
kayo Explorer

I have this as well and I believe it is due to Sjogren's which can be co-morbid with celiac and RA (and other auto immune illnesses).

In my case it causes severe dry eyes and I don't make enough tears. I also have dry mouth too. The lack of tears cause the corneas to dry and you get fractional light and sometimes foggy vision. Sometime you can have 20/20 vision but the dryness in the cornea causes sight issues. I went to see a cornea specialist and he's been a godsend. I use drops throughout the day and have had tiny little plugs (look like wine corks) placed in the tear ducts. They're called puntcal plugs. It's an easy in the office procedure and it's not painful or as scary as it sounds. This keeps the eyes moist as the tears don't drain out. I no longer need glasses because my cornea issues have been cleared up and I don't get the fractional light or foggy sight. In one eye the plug wouldn't stay so that tear duct was cauterized. Though that was NOT a pleasant experience that eye is doing amazingly well, better than my other eye that has the plugs.

I also believe my gluten and soy free diet is allowing me to make more tears. I noticed a slight increase when going gluten free and a bigger difference when I went soy free.

JillianLindsay Enthusiast

I am very sensitive to light! I also got a clean bill of eye-health from my optometrist. Someone (not an expert) told me a long time ago that it's simply because I have blue eyes and people with blue eyes are more sensitive to light. I have no idea if there is any truth in that. I've also never heard of vitamin deficiencies causing the sensitivity, that sounds much more plausible, perhaps I shall look into that further.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,649
    • Most Online (within 30 mins)
      7,748

    Alexandersgirl
    Newest Member
    Alexandersgirl
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
    • Julie 911
      Good day! New members here and I have a question about medication. My gastroenterologist made me stop some medication during the gluten challenge beforenthe screening test but I have a little surgery tomorrow and I need to know if I can use tylenol for half a day or if it will give me false results using it.   Thanks 
    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.