Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody Else Sensitve To Light


srthomas21

Recommended Posts

srthomas21 Explorer

especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.

Do you get the halo effect, where the light seems to fractionate into hundreds of little lights around the light source?

This happened to me immediately after the event which I am sure triggered my celiac response. My eyes then became sensitive to light during the day despite sunglasses all the time and would just stream in response. They told me I had "inadequate tears". Of course at the time they made this diagnosis I was also taking a medication that also had a side effect of potentially "making you blind" so I am assuming it had significant effect upon the eyes and muddied the waters. After I stopped the medication and stopped eating gluten this sensitivity and fractionation has gone away and driving at night is no longer such a nightmare. I no longer have to put the "adequate" tears in my eyes to stop them tearing. You figure it out because I can't. I do believe the gluten had a lot to do with it :rolleyes:

ravenwoodglass Mentor

The light sensitivity and night blindness could be a result of your not absorbing nutrients from your food. The night blindness can also be related to aging. Make sure you are getting enough vitamin A in your diet or in supplements. For me the light sensitivity has improved a bit but I am still effected by night blindness enough to have trouble driving at night but at my age the night blindness is unlikely to improve.

TrillumHunter Enthusiast

That's something that cleared up for me as I have healed. I do think it was related to deficiencies.

mommida Enthusiast

I had the sensitivity to light and fractionation of light after I had chicken pox at the age of 23. This had lasted for 2 years. I did have blood work done and found out I had an undiagnosed case of Mono with the antibodies in my system.

tarnalberry Community Regular

I am light sensitive, but I suspect it's related to me having fibro, as that is a central nervous system sensitization thing. I'm also sound sensitive. I'm not always equally sensitive to these things, but it can be pretty annoying sometimes. Stress levels affect it for me, and I try to do my best about moderating light levels - introduce myself to brightness gradually, make it darker gradually, in whatever way possible. (Traffic tunnels in sunny weather are the worst for me - that relatively sudden change from dark to *BRIGHT*.)

srthomas21 Explorer

Yes, I get that crappy fractional light thing. It stinks. I'm not sure what it is but it drives me crazy. Also, when a person is standing at a window and I'm facing the window talking to them the light from the window bothers me and it's hard to focus in on the person.

Whats the best way to check for nutritional d deficiencies?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



monkeypoo Newbie

YES!! I am very sensitive to light and have found I am more sensitive after having consumed peppers, tomatoes, potatoes or especially oranges or anything containing orange rind.

The Fluffy Assassin Enthusiast
especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.

Very. In my case, it's more likely the Asperger's than the celiac sprue. Biggest problem is getting to sleep, rather than night blindness or fractionalization. I slept with my head under the blankets or under a pillow for decades. Finally got a decent sleep mask a few years ago and things have been much better.

As to finding out about nutritional deficiencies (your question in your own reply), a simple blood test takes care of that. Or an array of blood tests, but they only need one sample of blood, so from your point of view it's one test.

Nadia2009 Enthusiast

I have light sensitivity and also sunlight sensitivity but only since last year for the later. After a bad sinus infection that went on for weeks and after 2 months of migraines (doctors said it was all due to the sinuses), I started having sunlight sensitivity. Now, I grew up in Africa and sunlight was never a problem actually I craved sunlight but now I need my sunglasses so much.

TinyOrchid Newbie

Yes! I'm incredibly night blind, especially when driving, headlights and street lights. Even the reflectors on the road etc...

crazy.

Dustda18 Rookie

I see starburst around lights at night, and when its sunny outside I must wear glasses cause it hurts my eyes to the point i almost close them. Got better though on a gluten free diet

nasalady Contributor

Yep....sensitive to light, loud noise. Mainly due to my fibromyalgia though.

  • 6 months later...
srthomas21 Explorer

Reviving an old thread.

Gluten free now for 6 months. The light fractionization thing is still bugging me.

The best way to describe it is when looking at a street lamp or headlights if you squint your eyes you can see many light rays that protrude from the light source. This is normal when you squint but I see these light rays without squinting. I can make them go away by opening my eyes really wide but I can't go around like that all the time.

Im not as sensitve to light since gluten free but definately more than normal people are. I have to wear a hat to sporting events such as pro basketball games and college football games because the lighting bothers me.

I wonder if this is a brain issue that will take more time to heal or maybe never get better. It sure is annoying.

Anyone else out there still with this or something similar?

  • 2 weeks later...
kayo Explorer

I have this as well and I believe it is due to Sjogren's which can be co-morbid with celiac and RA (and other auto immune illnesses).

In my case it causes severe dry eyes and I don't make enough tears. I also have dry mouth too. The lack of tears cause the corneas to dry and you get fractional light and sometimes foggy vision. Sometime you can have 20/20 vision but the dryness in the cornea causes sight issues. I went to see a cornea specialist and he's been a godsend. I use drops throughout the day and have had tiny little plugs (look like wine corks) placed in the tear ducts. They're called puntcal plugs. It's an easy in the office procedure and it's not painful or as scary as it sounds. This keeps the eyes moist as the tears don't drain out. I no longer need glasses because my cornea issues have been cleared up and I don't get the fractional light or foggy sight. In one eye the plug wouldn't stay so that tear duct was cauterized. Though that was NOT a pleasant experience that eye is doing amazingly well, better than my other eye that has the plugs.

I also believe my gluten and soy free diet is allowing me to make more tears. I noticed a slight increase when going gluten free and a bigger difference when I went soy free.

JillianLindsay Enthusiast

I am very sensitive to light! I also got a clean bill of eye-health from my optometrist. Someone (not an expert) told me a long time ago that it's simply because I have blue eyes and people with blue eyes are more sensitive to light. I have no idea if there is any truth in that. I've also never heard of vitamin deficiencies causing the sensitivity, that sounds much more plausible, perhaps I shall look into that further.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.