Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bob's Red Mill?


darkmoonsinger

Recommended Posts

darkmoonsinger Newbie

Hey all,

Okay, so I searched the forum and only really found posts from 2-3 years ago, so I'm hoping something has changed. Has anyone recently been glutened by Bob's Red Mill gluten-free flours? I was so excited to see them in Wal*Mart that I bought a bag of pizza crust mix, a bag of biscuit mix, and a bag of cookie mix. I had some pizza last night, and I'm feeling awful today. I've had nothing but foods I've cooked myself, from "whole foods", for the past week and a half.

The problem is that it usually takes me two full days to get GI symptoms, and I have psych symptoms during those two days. I felt pretty blah emotionally last night, but this is much faster than before. ...Though, I'm finally back out on my own now that uni is out for the summer and I'm controlling what I eat, so I've moved to a very "whole foods" diet-- lots of fresh meats and produce, only one or two processed foods (literally; I'm rather proud of how I've been cooking). Maybe finally being fully gluten-free has sped up the process? I don't know, but I'm feeling rather frustrated right now.

Anyway, any thoughts anyone can give me would be great.

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jrc121 Newbie

I used Bob's Red Mill flours often for the past few months and haven't noticed anything. I wouldn't doubt that it is possible for you to have run into a contamination issue. Make sure it is at least labeled "gluten-free." Not all their flour is labeled gluten free, like the corn flour, though I have tried it and didn't notice any reactions there either.

TrillumHunter Enthusiast

Bob's Red Mill is one of the mainstream companies that takes extra steps to ensure our safety. If the product says gluten-free then it is produced in a dedicated facility and batch tested. Perhaps you are having trouble tolerating one of the flours in the mix? Bean flour is hard on the tummy for most newly diagnosed folks.

I don't work for BRM. To be honest, I don't like most of their mixes. :( But I do think they are a responsible and trustworthy company.

brigala Explorer

I have a theory that maybe people who react to Bob's Red Mill gluten-free stuff are people who are very sensitive to oats. Although their gluten-free stuff is all done in a dedicated facility, they do process certified gluten-free oats there. How are you with oats?

It's just a guess, of course. Personally, I've never had an issue with Bob's stuff. But I don't react to oats, either (I'll even risk small quantities of non-certified oats from time to time).

-Elizabeth

TrillumHunter Enthusiast
I have a theory that maybe people who react to Bob's Red Mill gluten-free stuff are people who are very sensitive to oats. Although their gluten-free stuff is all done in a dedicated facility, they do process certified gluten-free oats there. How are you with oats?

It's just a guess, of course. Personally, I've never had an issue with Bob's stuff. But I don't react to oats, either (I'll even risk small quantities of non-certified oats from time to time).

-Elizabeth

Good thinking! I have never tried oats at all so that wouldn't have crossed my mind.

You get the Sherlock Holmes Award of the day! :lol:

Jamie, hang in there. It gets easier and you can find stuff you like and can tolerate. It just takes longer for some.

MaryJones2 Enthusiast

I know it's frustrating. The best advice I can offer is to try several brands and go with the one that works for you. Every body is different and we all have one or two things that bother us despite being gluten-free!

sylviaann Apprentice
Hey all,

Okay, so I searched the forum and only really found posts from 2-3 years ago, so I'm hoping something has changed. Has anyone recently been glutened by Bob's Red Mill gluten-free flours? I was so excited to see them in Wal*Mart that I bought a bag of pizza crust mix, a bag of biscuit mix, and a bag of cookie mix. I had some pizza last night, and I'm feeling awful today. I've had nothing but foods I've cooked myself, from "whole foods", for the past week and a half.

The problem is that it usually takes me two full days to get GI symptoms, and I have psych symptoms during those two days. I felt pretty blah emotionally last night, but this is much faster than before. ...Though, I'm finally back out on my own now that uni is out for the summer and I'm controlling what I eat, so I've moved to a very "whole foods" diet-- lots of fresh meats and produce, only one or two processed foods (literally; I'm rather proud of how I've been cooking). Maybe finally being fully gluten-free has sped up the process? I don't know, but I'm feeling rather frustrated right now.

Anyway, any thoughts anyone can give me would be great.

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. :P

I was suspicious that I may have been suffering from a reaction (neurological) after using Bob's All Purpose Flour to bake with. I recently stopped using it and recently switched to Tom Sawyer flour.

Sylviaann


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sixtytwo Apprentice

I am using BRM bread mix as my main bread. I LOVE it, smells glorious coming out of the over. I LOVE bread, it means a lot to me to have good bread. I even make little pizzas with the bread, toasting it first and then putting spaghetti sauce on it and then mozzarella cheese/under the broiler. Not like Pizza Hut, but also safe!!!!! The BRM brownie mix is good too and I use their flour in place of regular all the time. None of it has made me sick. Barbara

darkmoonsinger Newbie
Bob's Red Mill is one of the mainstream companies that takes extra steps to ensure our safety. If the product says gluten-free then it is produced in a dedicated facility and batch tested.

That's very true... I guess I've become really distrustful in the whopping 6 months it's been. :\

Perhaps you are having trouble tolerating one of the flours in the mix? Bean flour is hard on the tummy for most newly diagnosed folks.

Hmm... I hadn't heard that. I guess being tummy ill because of an alternative flour (no bean flour in what I ate) and being generally blah could look like I'd been glutened.

Thanks,

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. tongue.gif

darkmoonsinger Newbie
I have a theory that maybe people who react to Bob's Red Mill gluten-free stuff are people who are very sensitive to oats. Although their gluten-free stuff is all done in a dedicated facility, they do process certified gluten-free oats there. How are you with oats?

It's just a guess, of course. Personally, I've never had an issue with Bob's stuff. But I don't react to oats, either (I'll even risk small quantities of non-certified oats from time to time).

-Elizabeth

Hmm, I hadn't heard of that correlation (but then, I only know one other coeliac/gluten-free). I actually don't know how I react to oats; I didn't eat them that much before I knew that it was gluten beating me up, and I've been unwilling to test out what will make me ill or not, because life won't slow down for long enough for me to be ill.

I might want to test this one, however, so I know. I'll be giving the BRM mix another try this week, hoping it was a coincidence or that I was accidentally contaminated by my flatmate.

Thanks!

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. :P

  • 2 months later...
slimchance Newbie
I am using BRM bread mix as my main bread. I LOVE it, smells glorious coming out of the over. I LOVE bread, it means a lot to me to have good bread. I even make little pizzas with the bread, toasting it first and then putting spaghetti sauce on it and then mozzarella cheese/under the broiler. Not like Pizza Hut, but also safe!!!!! The BRM brownie mix is good too and I use their flour in place of regular all the time. None of it has made me sick. Barbara

Have you doctored up the recipe at all? I use canned milk in my bread mix.. it seems to work better, and I also use a bit more yeast.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.