Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Glutening Myself?


Karrin

Recommended Posts

darlindeb25 Collaborator

Tressemme does contain gluten, it's best you stop using it. I use Softsoap too, it's great. I can use Garnier Shampoo and Conditioner, yet my favorite is Pantene. St Ives has many lotions with wheat in them.

It is very difficult to read ingredients in these type of products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

Optimistic Mom -- I just happened to catch your signature and noticed your food exclusions due to a mold allergy and I feel a bit silly! I was DX with Celiac earlier this month but DX with a mold allergy as a child. I have continued to use gluten-free vinegar and smoked meats (when I'm sure they're gluten-free) but I never realized that reactions might also be due to mold!

Those signatures sure are handy :) I happen to be seeing my gastroenterologist this afternoon and will ask him about that and also for a referral to a dietitian or nutritionist.

Cheers

I've had gluten like tummy troubles after using Lawry's on chicken breast and from an off brand chili powder we used to make taco seasoning. No trouble so far with McCormick's spices or The Vegetarian Express spices.

I also have my own PB and my own jelly. The Family likes grape. Blahhh, I like marmalade.

Jana315 Apprentice

Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

GlutenGuy36 Contributor
Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

I agree, I seem to have a problem with nightshades too. I feel horrible after eating some hot dogs that I know are gluten free. It's amazing how your body can turn on you. I use to be able to eat anything and never had an issue. Then after being diagnosed with Celiac Disease, I feel bad when I eat anything with milk ( casein), soy and nightshades. I'm looking into corn. It's been a long tough road though.

babysteps Contributor
Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

For paprika substitute, you can try the spice form of sumac - used in Turkey, especially for kabobs. Not at every grocery store, but I know that Penzeys carries it and I bet a lot of natural food stores do, too.

Jana315 Apprentice
For paprika substitute, you can try the spice form of sumac - used in Turkey, especially for kabobs. Not at every grocery store, but I know that Penzeys carries it and I bet a lot of natural food stores do, too.

Babysteps - don't mean to hijack - but I was just exhausting myself looking for red/pink peppercorns that aren't in a mix...can't find any, so maybe powdered sumac will be easier to come by! YEA!!! I love Turkish foods, esp. the kebabs! thanks for the tip.

Karrin Rookie

Thanks for all the suggestions everyone. I might eventually look into some of them, but right now I find the nightshade family remote as being the culprit. I've had maybe one tomato the whole month of June and one hot dog - and its been awhile. My spices have been basic (salt & pepper - if any) and I've not had any eggplants etc. Right now nothing and everything seems at fault - that is, I have not had a single day of solid relief since the beginning. The changes I experience are so subtle that I'm forced to write most off as my old fluctuations (with exception of a few clear incidents - corn and my shampoo/lotion for one) - that is, the relief and bad days are quite in time with how I felt throughout a month pre-diagnosis. I've followed suggestions here from pots and pans to my own sugar/spices, eating simply, vitamins, cutting out certain items such as soy etc. The whole process is incredibly frustrating and I just can't pinpoint anything!! I just have to conclude for now that my body is healing and hopefully things will clear up. I've tried going back to that same diet of that first week to no effect. I'm really at a loss, but I'm holding out hope that time will help and right now my intestines are just upset with everything that goes in. I'm also exploring other autoimmune problems with my doctor, which might explain my still feeling so yucky - RA is at the top of the list, and my joints have been really swollen and achy this past 2 weeks - so much that I have a hard time standing up.

I sometimes also wonder if my monthly cycle has anything to do with how I'm feeling. I have endometriosis and my only relief from that is about 6 days after my period ends and a week before I ovulate.

At least my head fog is mostly gone and most my lower back pain. It's moved into my hands, wrists, pelvis and knees though! UGH! I'm terrified I'll wind up with twisted, unusable hands and legs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer
Thanks for all the suggestions everyone. I might eventually look into some of them, but right now I find the nightshade family remote as being the culprit. I've had maybe one tomato the whole month of June and one hot dog - and its been awhile. My spices have been basic (salt & pepper - if any) and I've not had any eggplants etc. Right now nothing and everything seems at fault - that is, I have not had a single day of solid relief since the beginning. The changes I experience are so subtle that I'm forced to write most off as my old fluctuations (with exception of a few clear incidents - corn and my shampoo/lotion for one) - that is, the relief and bad days are quite in time with how I felt throughout a month pre-diagnosis. I've followed suggestions here from pots and pans to my own sugar/spices, eating simply, vitamins, cutting out certain items such as soy etc. The whole process is incredibly frustrating and I just can't pinpoint anything!! I just have to conclude for now that my body is healing and hopefully things will clear up. I've tried going back to that same diet of that first week to no effect. I'm really at a loss, but I'm holding out hope that time will help and right now my intestines are just upset with everything that goes in. I'm also exploring other autoimmune problems with my doctor, which might explain my still feeling so yucky - RA is at the top of the list, and my joints have been really swollen and achy this past 2 weeks - so much that I have a hard time standing up.

I sometimes also wonder if my monthly cycle has anything to do with how I'm feeling. I have endometriosis and my only relief from that is about 6 days after my period ends and a week before I ovulate.

At least my head fog is mostly gone and most my lower back pain. It's moved into my hands, wrists, pelvis and knees though! UGH! I'm terrified I'll wind up with twisted, unusable hands and legs.

Karrin, take a look at the GAPS diet. Open Original Shared Link It sounds like you might be a candidate for it. I'm in just preparing to start it next week.

Karrin Rookie
Karrin, take a look at the GAPS diet. Open Original Shared Link It sounds like you might be a candidate for it. I'm in just preparing to start it next week.

I took a look and I actually eat very similar to the guidelines they have posted! :) Lots of fresh fruit for snacks and veggies and fresh meat like chicken for meals, natural decaff teas (I have a sensitivity to caffeine). It's a rare thing that I eat processed foods, especially after being diagnosed. I did have a little breakdown a week or two back and I got some gluten free chocolate donuts (also dairy and soy free, I believe they were made with tapioca flour?). They were from a dedicated gluten free company and I had no tummy issues with them thankfully - I really needed a bakery fix!

I'm hoping my continuing symptoms are just my body healing yet and will cool off within another month or two so I can actually tell if and what might be making me ill. So far the only noticeable items was an accidental glutening, roughly a month back now, and corn, which gives me instant tummy issues.

Korwyn Explorer
I took a look and I actually eat very similar to the guidelines they have posted! :) Lots of fresh fruit for snacks and veggies and fresh meat like chicken for meals, natural decaff teas (I have a sensitivity to caffeine). It's a rare thing that I eat processed foods, especially after being diagnosed. I did have a little breakdown a week or two back and I got some gluten free chocolate donuts (also dairy and soy free, I believe they were made with tapioca flour?). They were from a dedicated gluten free company and I had no tummy issues with them thankfully - I really needed a bakery fix!

I'm hoping my continuing symptoms are just my body healing yet and will cool off within another month or two so I can actually tell if and what might be making me ill. So far the only noticeable items was an accidental glutening, roughly a month back now, and corn, which gives me instant tummy issues.

Oh good! Are you taking a good pro biotic? PB-8 Vegetarian is a good one and is reasonable priced if you get it on line.

Lisa79 Enthusiast

I had the same problem, I found I was intolerant to lots of foods, nightshades, dairy (mainly milk) cheeses and yoghurts seemed ok, soy.

I think I have posted a very similar post a couple of times.

I do see a great naturopath and its been 4 months now and I am feeling better, not 100 but definately on the road to recovery.

I am finding the other intolerances are settling down now, you can have such an inflamed gut for quite a while.

Try giving up some other foods for a while, apparently it takes at least 4 months for some cells to renew (my naturopath says) so give it time.

Keep doing what your doing, sounds like your been careful, just continue to check everything and avoid contamination, check all medications and you will see improvement eventually, everyone is so different.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,071
    • Most Online (within 30 mins)
      7,748

    Gigic
    Newest Member
    Gigic
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.