Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Platform For Celiac Cause


jmd3

Recommended Posts

jmd3 Contributor

I am so excited for my daughter, Jenna, who was chosen to compete for this event, as her title of "Miss Indiana" (town) for Miss Pennsylvania International 2010 .... :D

.... BUT - more so excited about the platform she chose to run with, yes, Celiac Disease! When she spoke with the pageant representatives about her special cause they hadn't even heard of this, so what a great chance to bring more awareness to our group! There are only UP to twelve women selected to be in the running of Miss Pennsylvania International, and she is ONE of those chosen 12 to participate in the final.

Jenna selected celiac disease because of the terrible plight I had/have been having....

While in college, last year she intern shipped with Lisa Lundy on the release and promotion of her Celiac Cookbook, and helped promote Lisa for a radio spot to focus on celiac disease.

Now after learning she will be running for Miss Pennsylvania International 2010 with her platform about Celiac Disease, she found out less than 2 weeks ago she has celiac too.

I am so proud of my daughter, and hoping that she will have support from fellow celiacs and help promote awareness about just what gluten IS and put celiac disease into a spotlight for good.

Any help with ideas would be of value. Please forgive me if I have posted in the wrong board forum, and be directed to the right board for this topic.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

I am so excited for your daughter! Tell her congratulations!

As a parent of a 6 year old girl with Celiac and EE, it is so important to show an example of why you don't let Celiac stop you from going after what you want in life. The diet restrictions are a tough part, but it won't hold you back if you don't let it.

Ahorsesoul Enthusiast

Keep me informed on how she does. Tell her I'm proud of her for talking about Celiac Disease.

hannahp57 Contributor

Congratulations to both of you!!!

What a good role model for young celiacs to have.

Do they have talent competitions and things like that? it would be really neat to see her bake gluten free goodies on there if that's her thing!

keep us informed. especially if its televised on a news station.. i can always search youtube for it

jmd3 Contributor

Thank-you for the positive replies, it is so appreciated.

I know Jenna is working very hard to be a positive role model, in all that she is doing, and has accomplished already, she is a very determined women. Jenna never ceases to amaze me, she did start a blog about her life enroute to a state title.

There isn't any talent that is judged with this and 50% is based on your interview to speak about your platform in front of a live audience. I "think" they only get about 3 min to speak on their chosen platform - hers of course is celiac disease. There is also a gown, and sports wear judging too... must have some girly things in there too for fun, hehe. :o)

One very exciting prospect is that if she would happen to make Miss Pennsylvania 2010, and go on to be Miss International 2010, she would get to work full time for a year raising awareness for celiac disease, and it is GLOBAL! I think this could be extremely important to out celiac disease, and what gluten is even more - and to include how many people she may touch and be able to help! !

I am so excited to share this info with our community here, thanks for your support. I will post additional updates.

  • 10 months later...
jmd3 Contributor

A bit of an update to all. Although Jenna (@GFJenna) did not win the title of Miss Pa International 2010, she would have made EVERYONE in the gluten free world proud!

I have received several letters and even emails from teachers, and people in our area that because of her they were able to help their students and/or their relatives because of her speaking out.

She has been doing amazing work all over Pa for awareness with celiac disease. In fact the March issue of the NFCA newsletter called her a *rock star* in their monthly newletter. She also has been working on other aspects to help gluten free bloggers and also coordinating the 2nd annual "celiac awareness day" with the Pittsburgh Pirates. (she did the 1st as well) Proceeds will go to the NFCA, and GIG.

Thank-you to all that wished her well!!

P.S. - she is in the running for Miss Pa USA 2011

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,066
    • Most Online (within 30 mins)
      7,748

    MamaMercedes
    Newest Member
    MamaMercedes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.