Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Big Comeback Of 2009


jshelton999

Recommended Posts

jshelton999 Apprentice

Over the last 15yrs, I've made countless comebacks...from hypothyroidism...pituitary failure...sleep apnea...asthma/allergies...

I started 2009 with a great deal of optimism. My pituitary disorder had been miraculously been reversed and I had finally withdrawn from the main steroid medication (Cortef) used to treat it...but then all hell broke loose and I was on the couch sicker than I had been in years... Apparently, the steroid medication which is an immune-suppressant muted the underlying gluten disorder although I still had frequent bouts of what was explained as stomach flu or adrenal fatigue.

After months of being told it might just be all in my head, I finally put the pieces together and a stool test from Enterolab confirmed that I indeed had a serious gluten disorder...

I've been on a gluten-free diet for 2 months and just like all my comebacks before, I'm finally back on my bike...training for a hilly 50-mile ride in October...

Here's a video I made using the pocket-cam I take on the bike with me... I hope you enjoy it... :)

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Isn't it great when we feel better. I am glad you have improved so much.

ang1e0251 Contributor

Good job seeking your own dx!

jshelton999 Apprentice

Thanks guys :)

It's so great to find this forum with people who actually know how it feels to go through so many years of misdiagnosis and often being treated as if their medical condition was a character flaw...

Dan300 Newbie

Hi Jim, glad to see your feeling so great ! I to started sleep apnea therapy in Jan, that helped a lot of my problems but I still had a skin problem that I was dealing with for over 30 years , went to doctors for 25 years , told take these antibiotics, don't scratch , all in my head , ect ! on sleep apnea.org some one mentioned celiac and the different symptoms which lead me here with all these helpful people, started GFD end of march and 95% of my DH problems have resolved. I'm 61 years old and I'm so thankful to finally get some answers. after 8 months of research I found www.dogtorj.com (net ?) a member of this forum , who explains in detail what's going on with food intolerances, he also says that god made us perfect and that our problems are caused by what we knowingly and unknowingly do to ourselves. take care , Dan

maile Newbie

congrats on beginning the training for the ride :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,836
    • Most Online (within 30 mins)
      7,748

    maegan.s
    Newest Member
    maegan.s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.