Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medications & Frustrating Pharmacists


pdx.lila

Recommended Posts

pdx.lila Rookie

Yesterday my doctor called in a prescription for me (nothing serious,just a little infection) and when I went to pick it up I asked the pharmacist to make sure the medication was gluten-free. I explained to him that I have celiac disease and even the smallest amount of gluten can be harmful. He stared at me and then said he'd look in to it. He spent about 30 minutes trying to figure it out before telling me he didn't think it had gluten in it,but that the manufacturer was closed.

Today I called the pharmacy back and told them that I needed them to call the manufacturer again to make sure there was nothing in it that would make me sick. The pharmacist asked me what happens when I have gluten and then told me that because I didn't have an anaphylactic reaction than she didn't understand why it was such a big deal if I ingested some. I nearly started crying,I was so frustrated that she was telling me this.

I just needed to vent,thanks everyone! Has anyone else had this problem with pharmacists? I know lots of meds don't have gluten,but it seems important to make sure any ones we take absolutely don't.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator
Yesterday my doctor called in a prescription for me (nothing serious,just a little infection) and when I went to pick it up I asked the pharmacist to make sure the medication was gluten-free. I explained to him that I have celiac disease and even the smallest amount of gluten can be harmful. He stared at me and then said he'd look in to it. He spent about 30 minutes trying to figure it out before telling me he didn't think it had gluten in it,but that the manufacturer was closed.

Today I called the pharmacy back and told them that I needed them to call the manufacturer again to make sure there was nothing in it that would make me sick. The pharmacist asked me what happens when I have gluten and then told me that because I didn't have an anaphylactic reaction than she didn't understand why it was such a big deal if I ingested some. I nearly started crying,I was so frustrated that she was telling me this.

I just needed to vent,thanks everyone! Has anyone else had this problem with pharmacists? I know lots of meds don't have gluten,but it seems important to make sure any ones we take absolutely don't.

What Pharmacy was it? What Country / State or other information? If it's a Chain, Email the home office.. Contact the Goverment body that the Pharmacist holds their License in...

Lisa Mentor

That was a very cold response and none of her darn business. But, you will come across many people who are ignorant to our issues. That's why self education is such a big part of our success.

It is best to contact that manufacturer and use the experience of hundreds here, who have been where you are now. There's great information here.

ravenwoodglass Mentor

This pharmacist needs to be educated. Meanwhile is there another pharmacy you could go to? I also agree that the pharmacist should be reported, they are responsible for making sure that what they give you is safe for you. As to a lot of meds being safe, well unfortunately that really isn't the case. All your meds need to be checked and if they are generic they need to be checked at each refill. I would never wish celiac on anyone but it this persons case.......

If you can tell us what the med is someone here may know if it is safe or not.

missy'smom Collaborator

My pharmacist doesn't get it either and thought they could just read the label. I always ask the doc. to write the generic and brand name of the med down for me. That way if I can't track one down maybe I'll have better luck with the other. I often end up with a day or so delay. I also have to call them myself and often have to track down the phone numbers myself. They finally are starting to get used to me so last time I was able to call from the pharmacy phone. If I have to look up the numbers myself, I try the manufacturers website or one of the gluten-free meds lists, but I'm not sure how up to date they are. There needs to be a better way! Unfortunately, I've heard your story many times here before from others.

pdx.lila Rookie

The medication is metronidazole, for treating BV and it was at a Walgreens. I asked for either the manufacturer's name/number or for them to call. They called and told me that the one thing that could possibly have gluten in it is made from potato. I'm still suspicious because they were so dismissive,but I think it's safe. has anyone else had experience with this? As I understand it,this is the generic of Flagyl.

Thanks everyone! It's always nice to hear the comforting comments and "oh yeah,I've been there". I know it's just a matter of informing them and patiently reminding them of what I need.

Lisa Mentor

Here is a list that was updated in 2008. It might point you in a direction, but I would also recommend that you get confirmation from the manufacturer as things change frequently.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Thanks Momma Goose for the updated list.

lizard00 Enthusiast

I just finished taking that very drug for that very reason. Flagyl (the brand name) is gluten free, but it is hard to find and is super expensive... even with our insurance 7 days was going to cost me $75.

Metronidazole is a serious antibiotic, and it's likely it will make you feel sick, but not from gluten. Make sure you take it after you eat a full meal to ease the stomach affects.

**I should add that mine was made my Pliva (which is part of Teva Pharmaceuticals). I'm not sure if someone else also manufactures it, though.**

jerseyangel Proficient
Metronidazole is a serious antibiotic, and it's likely it will make you feel sick, but not from gluten. Make sure you take it after you eat a full meal to ease the stomach affects.

And by all means, don't drink any alcohol while on it.

finally diagnosed Apprentice
The medication is metronidazole, for treating BV and it was at a Walgreens. I asked for either the manufacturer's name/number or for them to call. They called and told me that the one thing that could possibly have gluten in it is made from potato. I'm still suspicious because they were so dismissive,but I think it's safe. has anyone else had experience with this? As I understand it,this is the generic of Flagyl.

Thanks everyone! It's always nice to hear the comforting comments and "oh yeah,I've been there". I know it's just a matter of informing them and patiently reminding them of what I need.

i just finished a dose of this "flagyl" is the brand name and metronidazole is the generic name. i had no problem with it. i too use walgreens, but my pharmacist understands celiac. i had to tell him about it, and in the beginning there were many times that i could call the manufacturer myself. they will give you the number or the company's name. on every drug website you can call, there is a pharmacy or allergy promt. the person on the other end will ask you many questions, ie: allergies, doc, address etc. they will put you on hold for a little bit, but when they come back they will tell you with 100% if there is gluten in it, or in the generic brand. most of the time my pharm with do the research, but sometimes it is easier for me. i would report your pharmacist for their words, they of all people understand contraindications with medications. that remark was uncalled for. I am sorry you had a hard time with this particular pharmacist. i finally have one i trust, to the point that my nasal inhaler is now only covered by generic brand and it had gluten. it took them about a week but they found one that i could use and ordered for me. sometimes its all about customer service, one person can make everyone else bad. good luck. remember with this medicine absolutiely no alcohol, or red wine vinegar. it will give you an antibuse effect and you will vomit until the cows come home. make sure you drink plenty of water with this to prevent a yeast infection in your throat. don't forget as well side effects to this med as well as other antiinfectives is diarrhea, headache, cramping, and metallic taste in your mouth. the do subside eventually, but the taste is awful, use sugar free hard candies to help with that (gluten free of course) good luck

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.