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Bronchitus Gone?

ranger

By ranger
in Coping with Celiac Disease

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ranger Enthusiast
ranger
Posted

Someone mentioned bronchitus and it just made me realise I DID'T GET IT THIS YEAR! I have gotten it every year since I was a kid. A cough that lasted 2-3 weeks and got so bad that I had to sleep sitting up. It was so bad, I remember haveing to run out of class, job, whatever. It was such an inevitable thing that I called it my yearly ( got it every spring and sometimes in the fall, too) This spring, I didn't get it. Only diff is the gluten free diet. Halalua(sp). Any one else have this experience?

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CeliacMom2008 Enthusiast
CeliacMom2008
Posted

My son was in the doctor's office for bronchitis every spring and fall like clock work until he was diagnosed. We were thrilled. So far it's been 2 spring and 1 fall with no illnesses at all - including the yearly strep he used to get (one year he got it back to back to back - literally 3 prescriptions of antibiotics because it wouldn't go away/would come right back). I can tell a huge difference in his immune system now.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had bronchitus every year since childhood. I never had a Christmas without it. By 5 years before I was diagnosed I had added asthma also and my inhalor and singulair were part of my multiple med routine. Every doctor I saw insisted it was a result of my smoking, I do have to admit I have smoked now for over 41 years. Yes I do know how bad it is for me. :( Within a couple months gluten-free my asthma and chemical sensitivities were gone and I have not had even a cold let alone bronchitis now for over 7 years. Who would have ever thought that gluten intolerance and the resulting full body inflammation were responsibe, not me or my doctors.

YoloGx Rookie
YoloGx
Posted

Ditto for me--almost ever since they put me back on gluten when I was 4. By age 5 or 6 I had bronchitis every year. Towards the end it wasn't uncommon for me to get ill for more than a month or even two or three. The last time I really got sick was initially from several incidents of Cross Contamination (CC). But then it was bacterial, whereas normally it was viral. The other time I got ill was this Feb after an ex boyfriend who was visiting kissed me. Said he had brushed his teeth--but didn't bother to rinse!! Fortunately the cold only last 2 weeks. Since then I have been very careful to avoid CC--and no more colds or flue or bronchitis, not even a sniffle!

ranger Enthusiast
ranger
Posted
  • Author

I am soooo happy. The thaught of being bronchitus free is worth going on the gluten free diet alone! And I'm so happy for you guys. We'll see if I make it through the fall. It will be a miricle!

YoloGx Rookie
YoloGx
Posted
I am soooo happy. The thaught of being bronchitus free is worth going on the gluten free diet alone! And I'm so happy for you guys. We'll see if I make it through the fall. It will be a miricle!

I am betting that miracle will happen as long as you are careful to not get glutened--it truly is something to celebrate!

Bea

VioletBlue Contributor
VioletBlue
Posted

Hmmm, I've had chronic bronchitis for about 12 years now. I've been gluten-free since 12/06. It hasn't made a difference for me. Nothing really has, I've tried everything. I refuse to go back on a steroid inhaler so I live with it. Chronic bronchtis is however a different beast from the bronchitis that follows colds.

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YoloGx Rookie
YoloGx
Posted
Hmmm, I've had chronic bronchitis for about 12 years now. I've been gluten-free since 12/06. It hasn't made a difference for me. Nothing really has, I've tried everything. I refuse to go back on a steroid inhaler so I live with it. Chronic bronchtis is however a different beast from the bronchitis that follows colds.

Hi Violet Blue--your chronic condition is truly unfortunate. Have you considered going without grains? It often helps with multiple chronic conditions. It is of course a bigger commitment than just going without gluten. But it can help a great deal. Am now trying the specific carbohydrate diet (scd). There is a group here on celiac.com for it. Am finding already I can now eat things I haven't been able to in years as a result--and this chronic nasal congestion is going away.

Detox herbs too can help of course. Am learning however its important to avoid the mucilaginous herbs according to the scd diet... Plus exercise and saunas help a lot too if you can handle it. Gradual is the key...

Bea

VioletBlue Contributor
VioletBlue
Posted

Please believe when I say EVERYTHING, I mean everything. I've removed entire catagories of foods from my diet, I've added different supplements, herbs, done all of the above in combination, etc etc etc. I've had three years of experimentation. Nothing makes a difference. Herbs are a relative thing since most of those a herbalist would want me to use I'm allergic to.

I am at the point where I accept and recognize that no one's life is perfect. The idea of striving to remove or protect from every sneeze, bumb or bruise is no longer worth the time it takes away from living my life. So I live with the morning cough/hack up a lung.

Hi Violet Blue--your chronic condition is truly unfortunate. Have you considered going without grains? It often helps with multiple chronic conditions. It is of course a bigger commitment than just going without gluten. But it can help a great deal. Am now trying the specific carbohydrate diet (scd). There is a group here on celiac.com for it. Am finding already I can now eat things I haven't been able to in years as a result--and this chronic nasal congestion is going away.

Detox herbs too can help of course. Am learning however its important to avoid the mucilaginous herbs according to the scd diet... Plus exercise and saunas help a lot too if you can handle it. Gradual is the key...

Bea

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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