Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Ways We've Been Glutened


OptimisticMom42

Recommended Posts

OptimisticMom42 Apprentice

Hello everyone,

I know this was stupid and I should have thought of it ahead of time but if it can happen to me maybe it could happen to other busy folks.

A co-worker brought in cherry tomatoes from his garden in a reused plastic grocery bag. I grabbed one out of the bag, rubbed it clean on my shirt and popped it in my mouth. A couple hours latter I'm wondering how I got glutened from cherry tomatoes. It had to have been whatever the bag was used for originally. All I can think of is how flour leaks out of those paper bags and gets all over everything.

Another good reason to stop using those plastic sacks and to wash my veggies!

Hope this helps protect someone else,

RA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor

I'm only glten free while waiting for enterolab results, so I'm not truly confirmed celiac about 1.5 weeks into the diet and feeing great I made "the cravings place" allergen free cookies and a hot one fell off the sheet coming out of the oven and landed on the floor. I know I saw stuff all over the floor but I popped it in my mouth anyway.

Later I was really sick and I remembered doing that. And I was reminded that my sister made real cupcakes there a little before me and that "stuff" I saw on the floor must have been flour!!

JillianLindsay Enthusiast

Mine's a real bonehead move! It was one of my first days on the diet and my first visit to Starbucks gluten-free. The person I was speaking to couldn't help me so after a long time hemming and hawing I just ordered a regular coffee. When I went to put cream & sugar into it I saw a vanilla powder and thought it would be nice to add a little flavour... duh! I sprinkled it on and could have kicked myself. After spending all that time trying to pick a drink I indiscriminately sprinkled on some random powder lol d'oh :rolleyes:

Mtndog Collaborator

So many butthead moves here- the latest one was REALLY wanting a fudgsicle, being really tired and not noticing "malt powder" at the end of ingredients.

That and shampoo or conditioner- so stupid!

Lisa16 Collaborator

I have a short list:

1. vitamins. When I first started I was taking a multi and two days into gluten-free, I looked at the ingredients and it said "derived from wheat."

2. a banana bread lara bar OR the de-icer on the plane. I was going to HI and ate a larabar, once I was firly sure we would be taking off. We were delayed and, well... see the funny ancedotes thread

3. a box of rice chex. I had bought three on special (a 3 for deal) and didn't realize I had gotten one of the old boxes. I was halfway through it and wondering why the heck I was sick when I noticed. DUMB.

4. Teabags. Yep. I got glutened by tea. Always read the ingre3dients-- never assume.

SGWhiskers Collaborator

Eating grapes with freshly washed hands. The soap had vitamin E.

Picking up a bag of garbage with used birdseeds at the bottom. Woosh. Up with a plume of gluten in the face.

Jonbo Apprentice

I've had a few "duh" ones. One was friend offering some craisins from bag she had. Me knowing they are OK, I eat a handful. Not 1 minute after that, my mind thinks outside the box. She's eating fried food and reached in before me. Needless to say not long after it went a little downhill but recovered by the next day fully. When I inquired, she said "Oh yeah, I also ate some of my cheez-its before also when eating them". <_<

Other time was not long after I was diagnosed and still learning, and same friend offered some doritos. They weren't in bag (plastic baggy from home with some in it). I think "Doritos must be fine, corn chips and cheese powder". Eat a few. Learn the hard way. Reading online, fathoms me the original ones have wheat but most other ones didn't.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ranger Enthusiast

At the hospital with a friend. There was a box of donuts and a pump type coffeepot on the table. She handled several donuts, then got her self some coffee. Then, I got some coffee, opened up my bag of gluten-free crackers and proceeded to eat them. Sick for 3 days - learned that donut crumbs can live on handles! It's a learning curve!

  • 3 weeks later...
StacyA Enthusiast
Eating grapes with freshly washed hands. The soap had vitamin E.

Picking up a bag of garbage with used birdseeds at the bottom. Woosh. Up with a plume of gluten in the face.

I don't understand the concern about vitamin E - or is it just you?

Amyleigh0007 Enthusiast

This isn't weird but it is stupid. Last Christmas I ate handful after handful of a delicious chocolate and peanut butter candy that was on the desk of a co worker. I assumed they were safe. I got very, very sick and when I checked out a bag of the candy at Walmart one of the first ingredients was wheat flour. I no longer assume!!

SGWhiskers Collaborator
I don't understand the concern about vitamin E - or is it just you?

A lot of Vitamin E comes from Wheat Germ. It also goes by tocopherol and tocopherol acetate. Many companies use other sources though. I call the company. I never thought about it in hand soap.

jabberwife Explorer

Lisa16 - What is it about a Banana Bread Larabar that glutened you? I'm confused...is there something I should know?

ravenwoodglass Mentor
Lisa16 - What is it about a Banana Bread Larabar that glutened you? I'm confused...is there something I should know?

Hi, I am not Lisa but she was stating that she wasn't sure what got her. The Larabars are gluten free. No worries if you like them keep feeling safe eating them

summerteeth Enthusiast
4. Teabags. Yep. I got glutened by tea. Always read the ingre3dients-- never assume.

I second you on the tea bags. They didn't happen to be the Tazo green ginger bags, did they? Best tea ever... and now I can't have it.

Also: salad dressing. I was an airhead and forgot to read the label, thinking "Caesar dressing should be safe..." WRONG. I paid for that one... big time.

And lastly, grapefruit shampoo.I wash my hair the morning after I buy it, thinking "Wow - this smells really good". I started to get sick later in the day and couldn't figure out why. I tell Adam, my fiance, and he says "Uhh... your shampoo clearly states "wheat"" (he is allergic to SLS).

jabberwife Explorer

LOL - I was about to say...

larabars are my go-to snack, just in case I don't have time to make something from scratch, or if I'm going somewhere where I don't know where my next meal is or whether I'll be able to eat it!

:)

Thanks.

  • 4 months later...
grainfree Newbie

I had a reaction after eating a cashew Larabar. The ingredients are cashews and dates. According to the Canadian Celiac Association, dates and other dried fruit may be dusted with gluten powder to prevent sticking. Something to consider when reading labels.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 posted a topic in Related Issues & Disorders
      0

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    4. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

    5. - KelleyJo commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,373
    • Most Online (within 30 mins)
      7,748

    Alexis Parker
    Newest Member
    Alexis Parker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.