Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exhausted After Gluten?


tkm831

Recommended Posts

tkm831 Rookie

I was wondering if anyone experiences sever exhaustion after ingesting gluten? It seems like within a half an hour or so from the time I ate I can barely keep my eyes open. I don't usually intentionally eat something with gluten but the one time recently I did this happened. So when this happened after eating other meals that I "thought" were gluten free it got me thinking. I don't have the "typical" symptoms so I thought this might be a telltale sign for me to know when I have accidentally ingested it. Any help would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

H yes! Fatigue is my absolute worst glutened symptom. My GI symptoms aren't too bad, but the fatigue is just debilitating. I feel like I'm trying to wade through water or have weights attached to me, my body just feels so heavy.

I was wondering if anyone experiences sever exhaustion after ingesting gluten? It seems like within a half an hour or so from the time I ate I can barely keep my eyes open. I don't usually intentionally eat something with gluten but the one time recently I did this happened. So when this happened after eating other meals that I "thought" were gluten free it got me thinking. I don't have the "typical" symptoms so I thought this might be a telltale sign for me to know when I have accidentally ingested it. Any help would be appreciated.
tkm831 Rookie

Does it happen to you shortly after eating it like me? Thank you so much for you response it really helps to know this is not all in my head and now I can be even more careful.

hannahp57 Contributor

i get the fatigue too! its starts about hlaf an hour to an hour after and lasts for DAYS. the lest time i got glutened it was on a monday...and i started working that friday and my head was still foggy from exhaustion. you definitely are not alone!

Ahorsesoul Enthusiast

Very common side effect that is often overlooked as pertaining to eating gluten.

jerseyangel Proficient

Yes--fatigue is a common reaction. Everyone's reactions and reaction times are different--I tend to feel absolutely exhausted the next day and for another day or two after accidental cross contamination. My reflexes are slower, and I'm a bit more clumsy.

ravenwoodglass Mentor

Me too, unfortunately for me it continues for up to three weeks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amandabear20 Rookie

Fatigue/exhaustion is something i get almost immediately also. It lasts for 3 to 5 days. All this week I've been so tired and sleeping in really late when im normally up by 9:30, 10 at the latest. Monday I was glutened, and Im just now starting to feel normal again, still moody though. but the exhaustion is getting better. Waves of nausea still come and go. Im just glad I didn't get the sever symptoms. Hope it gets better for you!

NorthernElf Enthusiast

Usually the extreme fatigue is the first sign of glutening for me too. Within 15-30 minutes of eating something I shouldn't have I pretty much just want to curl up in a ball and sleep - and want everyone to leave me alone. I get very miserable !! Often a headache comes in as well, and then the stomach cramps. There have been times when I don't realize I glutened myself until hours afterwards - then I look back and realize ugh ! I think it's stupid I feel so bad and don't make the connection ! That's when I start looking at ingredients or brands on the internet to find the culprit...

I live a very active lifestyle & that seems to help pull me out of it. It doesn't last for days for me, usually just hours or until the next day, where coffee and a bit of activity help to snap me out of it. The stomach issues definitely last longer, so can the headaches. Generally, if I find myself needing tylenol and it doesn't have much effect I KNOW I got glutened. Unfortunately, only advil can really kill those headaches...for a couple of hours...but its pretty hard on the stomach too so I usually am stuck with tylenol and watch the clock for the next dose !

linuxprincess Rookie

I get the fatigue, but it usually comes within the next few days for me. I have a frantic rash for two days that subsides into the exhaustion and inability to stay out of bed. haha

I think most people have a slight form of this they refer to as 'brain fog' when they are glutened. Just like all they varied symptoms of Celiac's, some individuals have a more severe reaction than others, like yourself.

angieInCA Apprentice

fatigue and brain fog are biggies for me as well, along with deep muscle pain, shooting pain in arms and tingling and itching (DH). Starts within an hour and can last 3 or 4 days for me.

brigala Explorer
fatigue and brain fog are biggies for me as well, along with deep muscle pain, shooting pain

Me too. You can find a list of my pre-gluten-free diagnoses in my sig, and the WORST of it was the fatigue.

My first symptoms of accidental gluten are GI-based, severely exacerbated by dairy intake. If I know I've been slightly glutened once and can stay off dairy for a week or so, I can sometimes avoid acute symptoms all together; but that only goes so far.

A couple weeks ago my naturopath prescribed two supplements to help with my asthma. She read the back of one bottle out loud to me to make sure it was OK; I stupidly assumed she had looked at both bottles. A simple oversight on her part, and sheer stupidity on mine. I was on both for a week, wondering why I was feeling lousy even while avoiding dairy, before I read the back of the other bottle. Of course, it contained wheat as a key ingredient. My best friend laughed at me when I told her, because she knows how compulsive I normally am about reading labels on everything.

Anyway, the fatigue and pain started just before I found out about the wheat in the supplement. That was after about a week of chronic glutening I didn't realize I was getting. I've been off the supplement for a week now and I'm not feeling much better yet. I don't know how long it's going to take me to recover. I slept until noon today and couldn't keep my eyes open after 4. Slept until 7, fixed dinner for the family, and I'm back in bed with the laptop now and it's barely 10. I thought I was having hot flashes, too, which would be a new symptom, but hubby just realized the AC had been turned off. ;-)

I haven't had more than occasional single-incident glutenings since I went gluten-free a couple years back, so this is new territory for me as far as recovery. :( Usually, one glutening, one major bout of D with cramps, and if I avoid dairy for a week I'm ok if I can avoid a repeat.

For what it's worth, my sister says her major gluten symptoms are brain fog. In hindsight, I suspect gluten may have been at the root of her severe learning disabilities; if she'd been diagnosed as a young child she might even be normal. But there's no way to get back 40 years lost to chronic brain fog. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748

    volivier
    Newest Member
    volivier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
    • Wheatwacked
      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.