Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Attending Outings/gatherings


dbuhl79

Recommended Posts

dbuhl79 Contributor

So my fiance's co-worker invited us over for dinner. No description of what dinner was, just to bring beer. (of course a significant indication that it wasn't wheat free)

In this scenario where my fiance may not be entirely comfortable expressing to anyone or everyone who invites us to dinner that I have a wheat intolerance. What do you do with this situation when you arrive and they're having hamburgers and hotdogs on the grill outside and beer? Politely decline all food? Eat before?

How does your significant other inquire or even convey this information to those that may invite us out again the future?

Thanks for any input... greatly appreciated. I don't want him to be put in an awkward situation, but I'd rather not suffer the anxiety prior to each outing with friends.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I see a couple options, and the better way to go may vary by situation:

1. Don't go - it is an option.

2. Eat first, then go and let them know you can't eat.

3. Tell the hosts yourself; you could argue that it's your responsibility.

4. Remind your boyfriend that it's the guest responsibility to speak up in a situation like this, and if you're not given the opportunity (you don't meet the hosts until you arrive, for instance), he needs to.

This sort of environment happens with coworkers, and I told them in the past that I have dietary restrictions (they know most of the details these days), and I've been told I'm welcome to bring any food I'd like to grill (and which part of the grill is permanently clean).

aljf Apprentice

Oh yes, we've all been here!

If possible, I would have my fiance explain the situation or, if he felt comfortable, I would call the people myself and explain it.

In addition, if you get a chance, offer to bring something, like an appetizer--> then you can make sure there will be *something* that you can eat!

And, of course, don't just bring beer-- bring wine! =)

These kinds of social situations are really hard for me too, but I find the embarrassment/discomfort of talking to the hosts/caterers/whatever in advance is FAR less then the stress I experience not knowing whether I will be drinking my dinner! Good luck!

KaitiUSA Enthusiast

I usually eat before I go and being something to snack on in my pocketbook. Everytime before we go I always make sure they know about the celiac because of preparation of food and so forth. Sometimes my dad doesn't feel comfortable telling people...sometimes I think he is embarrassed by the inconvenience or something but they have to know about it in my opinion. I'll usually just say I'll bring a side dish or something that I can have.

Another option is just say thanks for the invite but we can't make it.

luvs2eat Collaborator

I just ask for a burger without the roll... folks always ask if I'm on Atkins. I'd also bring wine and ask if I might bring something (salad, appetizer, dessert) that I'm sure I can eat.

I always tell folks not to worry if they're serving food I can't eat. I NEVER starve eating a bunless burger and salad.

Carriefaith Enthusiast

I would go and have fun!

In these situations, I usually eat before and/or after, or I bring something for myself. If it's a bbq, just bring your own gluten-free buns, bbq sauce, ketchup... I've done this before and nobody seemed to care, they were just interested. I don't know if I am just lucky or what, but I always seem to have good experiences when I eat out at other people's houses. From my experiences, people are usually supportive and interested and don't mind helping B)

westiepaws Apprentice

I would take am allergy-free side dish for the group and if necessary some additional things just for myself (or maybe just my own salad dressing, if they were making an allergy-free salad) to be sure I had enough to eat. My nutritionist's advice to me, as I'll soon be in a supper group that meets monthly as of next month, is to bring my own food when we are at others' homes -- and when it's time for them to meet at my home, show them the wonders and deliciousness of a whole meal's worth of allergy-free food! B)

My nutritionist says it is important to bring your own because contrary to the experiences of others, as a newbie, I *have* starved in several situations -- and when that happens I start feeling lightheaded, headachy and cranky. And I may overeat later, as a result!

I just think the more we can avoid going without food when we need to eat, the less depressed we will be about following the diet. And I think this is really important for those of us who are just getting started. Success at handling things breeds confidence!!!!

P.S. When people are grilling burgers, please note that there's no guarantee you can have the meat unless you've vetted the labels of any seasonings they add. Lots of powdered spices, such as garlic powder, include gluten-containing ingredients to keep the spice from clumping -- and as of right now, those ingredients do not have to be listed on the label, although that is supposed to change in 2006, right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

I'm always leary of grills as I always have to request the grill be cleaned before I have food made. I have a couple of well-trained friends who cook my food on one part, make special marinades (very nice of them!!!) and make sure they use utinsels that have not touched the other food. Those are very rare and good friends.

I'd be concerned eating a burger that was just flopped down on a grill along with all the others, perhaps coming into contact with other stuff you can't control. Just a though.

Oh, and I'd definitely go, but pack a peanut butter sandwich in addition to bringing a safe side dish, and make it a hearty one at that in case it's all you get to eat. :)

Stephanie

ianm Apprentice

I would speak to the host before and let them know what the restrictions are. Sometimes there are problems but usually not. If there is a problem then I question if these are people I want to be around. If the fiance won't say anything then put his/her feet to the fire and demand to know why not. I am very assertive about my dietary restrictions and don't like to be around people who just don't get it.

Carriefaith Enthusiast
I'm always leary of grills

I always cook my food on tinfoil when it's on someone elses bbq. I just request that my food is cooked on tinfoil and I offer to help with the cooking to make things less annoying.

skbird Contributor

I always forget about this but it's a great idea! I should just keep a roll of foil in my car... LOL!

Stephanie

macman Rookie

My solution to this is I always put myself in charge of the entree and specifically tell others what they should bring if I'm hosting. If not-then I'll eat before I go (like I did for a wedding this past weekend) or I'll bring a little something and then offer to grill all the food so I can control how mine is cooked. The host usally appreciates the help.

btw-I always love it when someone asks-"well, a little won't hurt will it???"

  • 2 weeks later...
tammy Community Regular

I see a few different options:

1.) don't go

2.) Offer to bring a dish that you can eat and of course, share with everyone.

3. ) Call them up ahead of time and ask what they are serving and see if it can be made easily as a gluten-free order.

4.) Tell them the truth.

5.) Ask your fiance' to tell them that you are allergic to certain foods, see if they will cook something allergy friendly.

6.) Eat ahead of time but do not eat their non-gluten food, but be aware of the fact that this can insult a person since they planned and prepared a meal for you.

I do not get social invitations anymore, gee I wonder why???!!!!!!

This is one of the reasons I cook Thanksgiving meal for everyone, at my house.

:D

debmidge Rising Star

Biggest fear of eating off of someone else's barbeque grill: (not just marinades that aren't gluten-free) a lot of people toast their hot dog/hamburger buns directly on the grill. That's direct wheat residue who knows where on the grill rack....

Guest nini

I went to a cookout at my bosses house recently, and I carried my own gluten-free buns and requested that my daughter's and my burgers were just plain hamburger meat (no seasoning) and cooked on tin foil. They were more than accommodating. But my boss is also very aware of my dietary needs and was more than willing to discuss menu options with me before hand. I also brought my own salad dressing and some snacks.

when we were in Fl. last week for vacation we had a cookout at my dad's house, and again, I offered to bring a dish (or two) and my dad thoroughly cleaned the grill before use and also let me verify which seasonings were ok to use. (my dad is starting to get used to going gluten-free on recommendation of his dr.s but he's not used to the details of it yet). side note, my stepmom made the most awesome gluten-free key lime pie for me!

in a fiance's coworker situation I would def. talk to the fiance and ask them to try to find out what the menu is and see if you can bring a dish as well... no point going hungry, but also don't cheat either. Take responsibility for your diet and approach the host if you can, or get the fiance to do it, and explain your requirements honestly, but not in a demanding way, reassure the host that you don't expect them to make special acc ommodations for you, you just want to be informed so that you know if you need to bring your own food (or a dish you can share)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.