Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Or Can Nerves Affect Celiac?

Del

By Del
in Coping with Celiac Disease

Recommended Posts

Del Rookie
Del
Posted

I really don't want to add a sob story but I do need to tell you what's going on for you to be able to help me. The last three weeks have been HX#*.....my husband of 34 years has been diagnosed with Stage III3 B Lung Cancer...supposedly inoperatable and incurable.....it's been doctors, broncho/med, start of radiation, more doctors and plenty of bad news piled on top of more bad news. On top of that my stomach has gone crazy....diarreha everyday. I need Immodium just to get thru the day of meetings. Is this normal, as if anything in my life is normal right now? Any suggestions? I really don't care about myself....but I want to and have to be there every step of the way for my husband. Any suggestions would be appreciated. Thanks in advance....Del

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

Do you have Celiac disease?

Nerves, stress, trauma etc... can all be causes of a "nervous stomach" regardless of Celiac. With everything you're going through, I think that's a very possible explaination.

Good luck to you and your husband. I'm sorry that you're having to go through this.

Del Rookie
Del
Posted
  • Author

Yes, I do have Celiac.....thank you so much for your kind reply!!!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Del,

My heart goes out to you! Please accept my prayers for strength during this time.

Gfresh404 Enthusiast
Gfresh404
Posted

I'm sorry to hear that. But I think I might be able to be of some help. I remember my mom telling me that when her dad died her stomach was so upset she could not eat. She said peppermint tea helped a ton. It is my understanding that there are certain compounds in peppermint that calm, sooth, and relax the bowels.

And if you do not want to drink tea you could take enteric-coated peppermint capsules. They are supposedly a very effective alternative treatment for IBS. They are also fairly safe, I have taken them myself when I had severe IBS symptoms and they helped a ton.

Again, I am sorry for what you have to go through. I really do sympathize. Good luck and I hope you and your husband feel better.

jststric Contributor
jststric
Posted

I have nothing to add except that I'm so sorry for all you and your hubby are going thru! I'll keep you in my prayers! Oh....ginger is good for tummy also, if you can tolerate it.

Del Rookie
Del
Posted
  • Author

Thank you for your kind words and your suggestion....will try that now!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Del Rookie
Del
Posted
  • Author

Thank you so much....especially for the prayers!!! They are appreciated more than I can say!

Del Rookie
Del
Posted
  • Author

Thank you so much...please keep praying!!! That's the only thing that is going to help us thru this!

Also thanks for reminding me of the ginger....it has helped me in the past!

mommida Enthusiast
mommida
Posted

Stress makes EVERYTHING worse.

My thoughts and prayers are with you!

When my stomach has been extremely out of order, bananas help get some food down and stay put. A baked potato can be a meal in a pinch.

Del Rookie
Del
Posted
  • Author

Thank you so very much for your thoughts, prayers and suggestions!!

ranger Enthusiast
ranger
Posted

Del,

My heart and prayers go to you and your husband, and an extra prayer that the doc is wrong. That kind of stress can certainly cause the digestive problems that you are experiencing. I'm sure others have better advice on what to take or do. I just wanted you to know there's a bunch praying for you, and I believe there is power in collective thaught. God be by your side.

Susan

Del Rookie
Del
Posted
  • Author

I can't thank you enough, Susan, for your prayers....we are relying on the prayers of many!!!

Our anthem/battle cry is this"

Lord, this time you've given us a mountain

A mountain we're going to climb

Lord, please carry Bruce up that mountain

To the top and down the healing side!

Hope everyone on here sees that and joins us in the battle!!!

Del

Three Ds Newbie
Three Ds
Posted

Del, I have no suggestions to add; it sounds like others have had good ideas to offer. I just wanted to say that you will be in my prayers also. And positive thoughts are coming your way for a much better than expected out come for you and your husband. Hugs to you both.

Del Rookie
Del
Posted
  • Author

Thank you for the caring thoughts and prayers!

jerseyangel Proficient
jerseyangel
Posted

Del, I'm so sorry to hear about all of this. The suggestions given for your GI issues are all good ones and I hope that you can get some relief from that. Yes, stress can affect even the strongest stomach :(

Please know that you and your husband will be in my thoughts and prayers. I wish him the strength to fight and fight hard!

Take care :)

Del Rookie
Del
Posted
  • Author

Thank you so much for your kind thoughts and prayers!!!

I didn't come on here today looking for support but I sure found it....thank you all so much!!!

Keep praying!

ang1e0251 Contributor
ang1e0251
Posted

Just to add to the mention of peppermints. I just eat peppermint candies, portable and soothing. So sorry this mountain has been put into your life. I'll visualize you both reaching the summit and heading down the healing side.

Del Rookie
Del
Posted
  • Author

Thanks for the tip and bless you for the kind words! Keep praying please!!!

Del

Gemini Experienced
Gemini
Posted
I can't thank you enough, Susan, for your prayers....we are relying on the prayers of many!!!

Our anthem/battle cry is this"

Lord, this time you've given us a mountain

A mountain we're going to climb

Lord, please carry Bruce up that mountain

To the top and down the healing side!

Hope everyone on here sees that and joins us in the battle!!!

Del

What a beautiful verse, Del! I wish much strength and all the healing powers for you and your hubby. Take a deep breath and go for walks when the stress builds up....it really does help. Bless you both.

JNBunnie1 Community Regular
JNBunnie1
Posted
What a beautiful verse, Del! I wish much strength and all the healing powers for you and your hubby. Take a deep breath and go for walks when the stress builds up....it really does help. Bless you both.

Just don't walk too far from the house.... speaking from experience...

When my father was diagnosed with cancer, I went through a 96 pill bottle of imodium in three weeks. Didn't help much, but it was all I had at the time. I can tell you that my mother, who was my father's caretaker during his illness until his death, very much needed me. She needed my support, the things I did around the house while they were gone, and for me to be of some help taking care of Daddy, because it made him feel better to have me there too. Do you have anyone in your life who can be YOUR helper, Del? I say ask, because it really will help relieve the burden, especially with your food restrictions.

A few links to herbal stuff that may help your tummy more than Imodium.

Open Original Shared Link

I read through this one and the nutrition and supplement advice is very good, scroll down to get to it.

Open Original Shared Link

Gemini Experienced
Gemini
Posted
Just don't walk too far from the house.... speaking from experience...

When my father was diagnosed with cancer, I went through a 96 pill bottle of imodium in three weeks. Didn't help much, but it was all I had at the time. I can tell you that my mother, who was my father's caretaker during his illness until his death, very much needed me. She needed my support, the things I did around the house while they were gone, and for me to be of some help taking care of Daddy, because it made him feel better to have me there too. Do you have anyone in your life who can be YOUR helper, Del? I say ask, because it really will help relieve the burden, especially with your food restrictions.

A few links to herbal stuff that may help your tummy more than Imodium.

Open Original Shared Link

I read through this one and the nutrition and supplement advice is very good, scroll down to get to it.

Open Original Shared Link

Not really sure what your point was but taking walks is a huge stress reliever and gives a person some breaks from all the daily regimens that must be followed during treatments. You need to step outside and deep breath good air and have the sunshine hit your face for half an hour or so. Obviously if a person is having diarrhea, they should seek medical intervention because 3 weeks of that is not good in and of itself.

JNBunnie1 Community Regular
JNBunnie1
Posted
Not really sure what your point was but taking walks is a huge stress reliever and gives a person some breaks from all the daily regimens that must be followed during treatments. You need to step outside and deep breath good air and have the sunshine hit your face for half an hour or so. Obviously if a person is having diarrhea, they should seek medical intervention because 3 weeks of that is not good in and of itself.

My point was that if you have intermittent diarrhea and you're a half mile from the house, you're not gonna make it back in time if you have to go. I was not disputing the therapeutic nature of the outdoors, in fact I agree with you. Such therapy becomes ineffective when you've crapped your pants. I was merely recommending she stay close to home.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.