Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Back, And I Have Celiac Disease!

Frances03

Recommended Posts

Frances03 Enthusiast
Frances03
Posted

so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sussarliv Newbie
sussarliv
Posted
so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

Glad to hear that you finally have answers!

Susan

happygirl Collaborator
happygirl
Posted

Wonderful that you know now. I hope you stick around...this is a great resource!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

"I feel FANTASTIC!!!"

That sure does say it all! You are now an official member of the gluten free club! It's so nice to finally figure out what's wrong that we do cartwheels to find out we are celiacs. lol

Roda Rising Star
Roda
Posted

Sounds like he turned out to be alright. Now he needs to educate his nurse practitioner. Hope you feel better soon. Also after my confirmed diagnosis I asked my kids ped to screen and explained that I just had gotten a diagnosis. He refused to order the blood tests, saying they were fine. I was so mad! :angry: I had to call their allergist/immunologist in a town 70 miles away to get it orderd and they had no problem doing it. My oldest has been screened twice since all of the tests were not done the first time(lab problem). Good luck and be persistant.

Brooklyn528 Apprentice
Brooklyn528
Posted
so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

Just wanted to say that I am very happy to hear of your great doctors. Finding a good one is always a positive. I hope things start going your way. Also, good luck with your children. I just started working on getting things taken care of concerning my children. I can't bear the thought of them having to deal with the things I have had to already. Good luck in all you do! :P

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad you were able to get a definate answer. Welcome to the family. I hope you are feeling great soon. Make sure you let all your first degree relatives know, brothers, sisters etc as well as doing the testing on your children.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

I'm so glad you have the answers! Now for a new life of great health for you and your family. Welcome into the group, hope you get the results for your children that they need.

Nadia2009 Enthusiast
Nadia2009
Posted

I am so happy for you not happy you have celiac but it feels good to have answers. I am just expecting the same diagnostic. I did the celiac blood test for the second time this year and this time, I made sure it is the whole panel. My blood test was done in late September and it seems like I can't have results until late October and I am wondering if that means something.

Nadia

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their...
    2. Trish G
      - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease? Thanks!!!
    3. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease: fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches n...
    4. knitty kitty
      0

      Gastrointestinal Beriberi

    5. knitty kitty
      - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748
    jlcvt
    Newest Member
    jlcvt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      Basic metabolic panel results - more flags

      By knitty kitty · Posted

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.