Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confusing Sx Return! Again!

haleym

By haleym
in Coping with Celiac Disease

Recommended Posts

haleym Contributor
haleym
Posted

hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Quaker rice cakes may contain gluten thru CC. I get the gurgles wh Then I eat them. Trader Joes rice cakes are safe:) It would be a real bummer if the gingerbread syrup isn't gluten-free :o:o I will check on that!

Northern Celiac Newbie
Northern Celiac
Posted
hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

Hi, I have learned the hard way that just because something is not listed doesn't mean that it is "gluten free"

The tyson cornish game hen, it comes off the production line and is packaged for shipment. It is injected with preservatives so it doesn't dry out during shipment.

Mixed nuts can come off the same line as products that use gluten.

Same with hershey's chocolate bars

There's a book called dangerous grains and it lists hidden sources of gluten

for example

MSG

HPP hydrolized plant protien

HVP hydrolized vegetable protien

are 3 that come to mind

best of luck

Frances03 Enthusiast
Frances03
Posted

There are so many things on that list it could be. Quaker rice cakes are definitely on my NO list. Cross contamination issues there. I dont know anything about the ice cream because I don't like ice cream. I think the hershey bar is okay. For some reason I think the only kirkland nuts that are okay are the single ingredient nuts like just almonds, just walnuts, etc. I must have read that somewhere, I could be wrong though. I would call Costco, they are very good about answering those questions. The next 2 I have no idea. Starbucks I wouldn't get anything there at all except maybe a tea bag, but that is just me ;)

haleym Contributor
haleym
Posted
  • Author

Hmm... it seems like a lot of people have had problems with the quaker rice cakes... Ive been eating about one per day for the last week and perhaps theres been a build up of symptoms. Jeez louise.... being gluten free requires that one really pays attention. from now on, if it doesnt say gluten free on it, Im going to be extra careful!

eatingganesh Newbie
eatingganesh
Posted

Cornish Game Hens that are not WILD are fed wheat and barley.

I've noticed that I have reactions even to the eggs of chickens that have been fed wheat and had to go to cage free/free range eggs.

eatingganesh Newbie
eatingganesh
Posted

Oh... and I've been told to carefully look at the ingredients of ice cream as they often contain emulsifiers that are wheat-based.

And chances are those dang rice cakes have malodextrin. They make me sick too.

Just check the labels for everything... some common things like malodextrin and caramel coloring are derived from wheat. There is also a bunch of things that you wouldn't think would have wheat/gluten, but do - like soy sauce, tomato paste, pasta sauces, etc.

It gets tiring to have to always be so vigilant. Hopefully the new "no-gluten diet" fad will mean more products will start labeling gluten-free and develop gluten-free alternatives.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sunnybabi1986 Contributor
sunnybabi1986
Posted

Breyers has actually gotten in trouble lately for not listing wheat as an ingredient, even though they add it along with another ingredient. It's likely you've been glutened by several of the items on your list. I stay away from Breyer's, as they're not trustworthy enough to be up front about their ingredients right now. Blue Bunny will list any allergens on their foods, though, and I eat their ice cream and ice cream bars. Very yummy and gluten free! :)

Good luck!

ang1e0251 Contributor
ang1e0251
Posted

The labeling laws require that allergens be listed. Maltodextrin has to list the source as wheat if it is used. Chances are that no North American products use maltodextrin made from wheat. The other products listed in the book used to be sometimes be derived from wheat but in the US those products have been changed. Hydrolized doesn't mean wheat anymore. It must be listed if it is.

I would watch out for Starbucks. Lots of people have had a CC problem there. I eat Hershey's chocolate with no problems. I've never had the Quacker rice cakes but I have read others say they had problems with them.

wschmucks Contributor
wschmucks
Posted

i agree on the rice cakes. It would be best to stay away from anything that comes out of a box for awhile. To be honest-- it might be nothing youre eating. Youve only been gluten free for 2 months-- usually it takes between 6-12 months to have a real difference. So be VERY careful with what you eat or it will just take longer.

haleym Contributor
haleym
Posted
  • Author
i agree on the rice cakes. It would be best to stay away from anything that comes out of a box for awhile. To be honest-- it might be nothing youre eating. Youve only been gluten free for 2 months-- usually it takes between 6-12 months to have a real difference. So be VERY careful with what you eat or it will just take longer.

Yeah- Ill have to just buck up and make sure I stop and think each time I eat something. I was very careful at the beginning but as time goes on I need to not think that something will be OK unless I can verify that it is. It seems like it takes soooo long for my gut to be normal after I think I eat a no-no, but its so hard when you dont know what the no-no was!

Its back to steamed veggies and brown rice for a while- Ive GOT to sort this out!

Wolicki Enthusiast
Wolicki
Posted
hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

So, I emailed Starbucks about the GB syrup and haven't heard back. I went in this am amd read the lable on the bottle, and there is nothing listed as gluten, but does list that elusive "natural flavors." I'm always leery of that.

  • 4 weeks later...
ziola13 Newbie
ziola13
Posted
hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

I did call starbucks and was told there were no ingredients that contain gluten. But the last week I noticed I was having a reaction and have not had one and I am starting to feel better. I don't think they are safe.

SGWhiskers Collaborator
SGWhiskers
Posted

I had the typson cornish game hens for thanksgiving without problem.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748
    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.