Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Serious Bowel Disfunction


marycontrary

Recommended Posts

marycontrary Newbie

Hi guys,

I have been gluten free for 5 months. I bacame aware when I stopped having BMs (my descending colon felt packed to my ribcage when my abdomen was palpitated) and was in severe abdominal pain. this condition was fairly nonresponsive to enemas, laxitives, for which I only used when things go really out of hand.

I stopped all gluten. My bruises healed, cuts quickly healed, my hair and nails had growth spirts. My suicidal thoughts, which had tortured me since childhood disappeared instantaneously.

Anything dairy seemed to keep me plugged up. Rice and beans in large amounts cause pain.

So I am basically at the point where I eat lots of soft, wet vegetables---lettuce, tomatoes, onions, green beans...etc.

And I am still having impaction problems. I really don't know how I can be impacted eating this soft food.

I eat no rice pasta, breads, other than a few corn tortilla. I drink only water and a cup of plain coffee in the mornings.

I still have the "packed tube" feeling in my abdomen.

Input and ideas appreciated


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sulevismom Apprentice
Hi guys,

I have been gluten free for 5 months. I bacame aware when I stopped having BMs (my descending colon felt packed to my ribcage when my abdomen was palpitated) and was in severe abdominal pain. this condition was fairly nonresponsive to enemas, laxitives, for which I only used when things go really out of hand.

I stopped all gluten. My bruises healed, cuts quickly healed, my hair and nails had growth spirts. My suicidal thoughts, which had tortured me since childhood disappeared instantaneously.

Anything dairy seemed to keep me plugged up. Rice and beans in large amounts cause pain.

So I am basically at the point where I eat lots of soft, wet vegetables---lettuce, tomatoes, onions, green beans...etc.

And I am still having impaction problems. I really don't know how I can be impacted eating this soft food.

I eat no rice pasta, breads, other than a few corn tortilla. I drink only water and a cup of plain coffee in the mornings.

I still have the "packed tube" feeling in my abdomen.

Input and ideas appreciated

Hi,

I get the same problem. I wrote a post about it some time ago and received some suggestions. What has really worked for me is eating a couple spoonfuls of ground flax seeds daily. You have to make sure to drink plenty of water so that they don't make matters worse. My favorite way to eat them in in a smoothie with banana, strawberries, blueberries, spinach, and a little honey. Yes, that's right, I said spinach! It's the yummiest treat and even better because I know it unplugs my guts. At the same time I started taking the flax seeds, I started taking a calcium magnesium supplement 2-3 times per day. So that could also be helping. I can't say all my problems are gone, as I'm still figuring out which foods I'm sensitive to, but being able to empty my bowel has helped HUGELY!

Good luck!

ENF Enthusiast

I'd first make sure that this is not a bowel obstruction - they're one of the leading causes of emergency room visits, and can be deadly.

marycontrary Newbie

Thanks so much...when I went to the ER regarding this, the DR. said there was no obstruction in my lower tract...but I could feel it---and he could not answer me as to why my bowels felt so distended. Does this suprise you?

Thanks for the suggestions! I would appreciate further ideas if anyone has them.

Ahorsesoul Enthusiast

You could try eating a few dried prunes a day to see if that helps. You also need to increase your fiber you eat so the food can be moved along in your digestive tract.

If you haven't gone dairy and soy free for a few months you might want to try this to increase the healing of your digestive tract. It maybe inflamed and that is what you are feeling.

Since you've had a doctor check you out trying different diet changes maybe the way to go.

Make sure you are completely gluten, dairy and soy free. If you cheat you won't heal. I know you can do this for your health.

Keeping a food and how you feel journal may also show you what will work for you.

Keep us informed.

ENF Enthusiast

Not to scare you, but according to Dr. Oz on TV last week these are some symptoms of ovarian cancer: bloating, increased abdominal size, abdominal pain, pelvic pain, difficulty eating, feeling full quickly.

wschmucks Contributor

I wouldnt freak out-- Just go to a good GI and have them do some tests: lower sonogram will check for ovarian cysts or any internal abnormalities that may cause obstructions. I was terribly constipated for years with nothing helping and it turned out my thyroid was within "normal" limits-- but it wasnt optimal. Once it was treated the constipation has almost resolved.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laughingduck Rookie

Have you tried slippery elm tea? It works WONDERS for these sorts of problems. You can find it at health food stores. It is the main ingredient in essiac tea Which is a cancer fighting tea. It does not come in tea bags, but rather in a powder that you mix with warm water and it makes a slimey gruel with little taste. I don't mind it but some hate it. But it is good for both getting things moving and slowing things down, whateer you need. Probably something most celiacs should have in their cupboard! Good luck figuring it all out!

sixtytwo Apprentice

For my chronic constipation the doctor told me to take Miralax. I bought the generic form at Walmart, their brand is Equate (exact same stuff). I took it for four days and it completely straightened out my problem, actually going in the other direction so now I am trying to fine tune how often I need to use it. I swear by it.

Barbara

Ahorsesoul Enthusiast

On the Dr Oz show today, he recommended a glass of orange juice with a shot full of Aloe Vera juice.

Ingrown Newbie

You might want to consider colonics. If you have them done regularly they're are supposed to help get all the old crud out of the large intestine that has been accumulating over the years. Also, when I went in to get a colonic done I saw pictures of what other peoples large intestine's can look like if there digestive system is unhealthy. The intestine can grown to an enormous size as well as become twisted and deformed inside the body. I can't imagine it would be easy to have bowl movements with a mangled intestine. Something to consider. Good luck too you.

Roda Rising Star

I started experimenting with coconut flour. It is really high in fiber and a good source of protein. I have been baking with it. But the best thing so far is making fruit smoothies and putting 1-2 TBS mixed into it. It helps and it tastes great. Because the coconut flour is so high in fiber you need to drink a lot of water and not overdo it. A little goes a long way.

marycontrary Newbie

Thank you guys so much. You are a wealth of support and information.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    2. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    3. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,242
    • Most Online (within 30 mins)
      7,748

    hart.tony.james
    Newest Member
    hart.tony.james
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.