Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Serious Bowel Disfunction


marycontrary

Recommended Posts

marycontrary Newbie

Hi guys,

I have been gluten free for 5 months. I bacame aware when I stopped having BMs (my descending colon felt packed to my ribcage when my abdomen was palpitated) and was in severe abdominal pain. this condition was fairly nonresponsive to enemas, laxitives, for which I only used when things go really out of hand.

I stopped all gluten. My bruises healed, cuts quickly healed, my hair and nails had growth spirts. My suicidal thoughts, which had tortured me since childhood disappeared instantaneously.

Anything dairy seemed to keep me plugged up. Rice and beans in large amounts cause pain.

So I am basically at the point where I eat lots of soft, wet vegetables---lettuce, tomatoes, onions, green beans...etc.

And I am still having impaction problems. I really don't know how I can be impacted eating this soft food.

I eat no rice pasta, breads, other than a few corn tortilla. I drink only water and a cup of plain coffee in the mornings.

I still have the "packed tube" feeling in my abdomen.

Input and ideas appreciated


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sulevismom Apprentice
Hi guys,

I have been gluten free for 5 months. I bacame aware when I stopped having BMs (my descending colon felt packed to my ribcage when my abdomen was palpitated) and was in severe abdominal pain. this condition was fairly nonresponsive to enemas, laxitives, for which I only used when things go really out of hand.

I stopped all gluten. My bruises healed, cuts quickly healed, my hair and nails had growth spirts. My suicidal thoughts, which had tortured me since childhood disappeared instantaneously.

Anything dairy seemed to keep me plugged up. Rice and beans in large amounts cause pain.

So I am basically at the point where I eat lots of soft, wet vegetables---lettuce, tomatoes, onions, green beans...etc.

And I am still having impaction problems. I really don't know how I can be impacted eating this soft food.

I eat no rice pasta, breads, other than a few corn tortilla. I drink only water and a cup of plain coffee in the mornings.

I still have the "packed tube" feeling in my abdomen.

Input and ideas appreciated

Hi,

I get the same problem. I wrote a post about it some time ago and received some suggestions. What has really worked for me is eating a couple spoonfuls of ground flax seeds daily. You have to make sure to drink plenty of water so that they don't make matters worse. My favorite way to eat them in in a smoothie with banana, strawberries, blueberries, spinach, and a little honey. Yes, that's right, I said spinach! It's the yummiest treat and even better because I know it unplugs my guts. At the same time I started taking the flax seeds, I started taking a calcium magnesium supplement 2-3 times per day. So that could also be helping. I can't say all my problems are gone, as I'm still figuring out which foods I'm sensitive to, but being able to empty my bowel has helped HUGELY!

Good luck!

ENF Enthusiast

I'd first make sure that this is not a bowel obstruction - they're one of the leading causes of emergency room visits, and can be deadly.

marycontrary Newbie

Thanks so much...when I went to the ER regarding this, the DR. said there was no obstruction in my lower tract...but I could feel it---and he could not answer me as to why my bowels felt so distended. Does this suprise you?

Thanks for the suggestions! I would appreciate further ideas if anyone has them.

Ahorsesoul Enthusiast

You could try eating a few dried prunes a day to see if that helps. You also need to increase your fiber you eat so the food can be moved along in your digestive tract.

If you haven't gone dairy and soy free for a few months you might want to try this to increase the healing of your digestive tract. It maybe inflamed and that is what you are feeling.

Since you've had a doctor check you out trying different diet changes maybe the way to go.

Make sure you are completely gluten, dairy and soy free. If you cheat you won't heal. I know you can do this for your health.

Keeping a food and how you feel journal may also show you what will work for you.

Keep us informed.

ENF Enthusiast

Not to scare you, but according to Dr. Oz on TV last week these are some symptoms of ovarian cancer: bloating, increased abdominal size, abdominal pain, pelvic pain, difficulty eating, feeling full quickly.

wschmucks Contributor

I wouldnt freak out-- Just go to a good GI and have them do some tests: lower sonogram will check for ovarian cysts or any internal abnormalities that may cause obstructions. I was terribly constipated for years with nothing helping and it turned out my thyroid was within "normal" limits-- but it wasnt optimal. Once it was treated the constipation has almost resolved.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laughingduck Rookie

Have you tried slippery elm tea? It works WONDERS for these sorts of problems. You can find it at health food stores. It is the main ingredient in essiac tea Which is a cancer fighting tea. It does not come in tea bags, but rather in a powder that you mix with warm water and it makes a slimey gruel with little taste. I don't mind it but some hate it. But it is good for both getting things moving and slowing things down, whateer you need. Probably something most celiacs should have in their cupboard! Good luck figuring it all out!

sixtytwo Apprentice

For my chronic constipation the doctor told me to take Miralax. I bought the generic form at Walmart, their brand is Equate (exact same stuff). I took it for four days and it completely straightened out my problem, actually going in the other direction so now I am trying to fine tune how often I need to use it. I swear by it.

Barbara

Ahorsesoul Enthusiast

On the Dr Oz show today, he recommended a glass of orange juice with a shot full of Aloe Vera juice.

Ingrown Newbie

You might want to consider colonics. If you have them done regularly they're are supposed to help get all the old crud out of the large intestine that has been accumulating over the years. Also, when I went in to get a colonic done I saw pictures of what other peoples large intestine's can look like if there digestive system is unhealthy. The intestine can grown to an enormous size as well as become twisted and deformed inside the body. I can't imagine it would be easy to have bowl movements with a mangled intestine. Something to consider. Good luck too you.

Roda Rising Star

I started experimenting with coconut flour. It is really high in fiber and a good source of protein. I have been baking with it. But the best thing so far is making fruit smoothies and putting 1-2 TBS mixed into it. It helps and it tastes great. Because the coconut flour is so high in fiber you need to drink a lot of water and not overdo it. A little goes a long way.

marycontrary Newbie

Thank you guys so much. You are a wealth of support and information.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.