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Recent Activity
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- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease2
Ibuprofen
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help... -
- knitty kitty replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse... -
- trents replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers. -
- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
We have. She is so limited as to what she can eat. She has a nutritionist, but they are even at a loss. Right now, her pain is so significant that she can only eat 5-10 bites a meal. We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot. She also is positive for 3 tickborne illnesses. Thanks for your... -
- RMJ replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
A much better suggestion than that of the new doctor!
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