Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Must-Do


happygirl

Recommended Posts

happygirl Collaborator

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Excellent article--thanks Happygirl ;)

CecilyF Rookie

After reading that article, I subscribed to the magazine! :D

jerseyangel Proficient

After reading that article, I subscribed to the magazine! :D

It's a very good magazine--I think you'll enjoy it. :D

Lynayah Enthusiast

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Hi, Happy Girl . . . happy new year to you!

Thanks for your post. I get the mag. and had read the article, but there is a wonderful video featured on your link, too. I enjoyed watching it. Much appreciated.

PS: For those who do not subscribe to LIVING WITHOUT, it is wonderful.

Takala Enthusiast

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

Review of article.

Understand your disease. √

Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Join a support group. How about the internet as otherwise anything like this is too far away or just doesn't exist for many of us.

Check your pantry. √

Stock the basics. √ Okay, but as for using pre made mixes instead of from scratch, you have got to be kidding me.

Dust off your apron. No, WASH the apron. Wash the oven mitts. Throw out or give away some of your cookware, and buy new baking/cooking pans.

Buy a bread maker. Not unless you have all the allergies and intolerances figured out first, and even then, you may not need it. Your metabolism may not be geared for consuming high amounts of gluten free breads. Buy a 4" by 8" loaf pan.

Patronize local businesses. √ YES, with a caveat. Don't ever assume a big, name brand chain won't gluten you. A small local place, on the other hand, even without a gluten free menu, but with a smart, helpful waitstaff and chef, may be safer. If your local small grocery or health food store stocks gluten free items, praise them.

Don't settle. √ Of course our food is better. It's from scratch, and it tends to not have many additives.

Exhale. √ Yes.

happygirl Collaborator

Its a great magazine with lots of helpful, up-to-date information - I think you'll enjoy it, Cecily.

Happy New Year to you, Lynayah!

Hi Patti!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lynayah Enthusiast

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

LOL! Well, if it is REAL chocolate cake and not gluten-free, it sure as heck is compost waiting to happen!

mysecretcurse Contributor
Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

lynnelise Apprentice

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

I definately enjoyed the article but I have always thought the title Living Without is depressing! lol!

New-To-This Rookie

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Good article for someone just starting out. However it should have given a web site or something on how to locate a support group near your home. I live in the middle of no mans land and don't have a clue where to turn for a support group that isn't 2 or 3 hours away. So far this has been my support group and where I get some of my information. One other thing it missed was suggesting books like "The first year Celiac Disease and Living Gluten Free" by Jules E. Dowler Shepard It walks you through the first 7 days than next 3 weeks than monthly afterwards. I wish I had found it when we first started this, not by seeing it in a store and deciding I was going to check it out of the library first. Which gets to my next point. Do lots of research and ALWAYS check a cookbook out of the library before spending your hard earned money on a book that will only disappoint you. I am having a hard time finding a remake of my old faithful betty crocker cookbook and am finding tons of books with stuff I never ate before and my husband is say "You want me to eat what?!? to, lol! Needless to say I am fortunate enough to love to cook and resourcefull enough to find alternatives so I can alter our old favorites myself. I may even write a remake of the good old betty crocker cookbook type cookbook when I am a good long ways into altering my recipes, lol!

Best of luck to all those first starting and everyone else too. Your best resources are web sites like this one!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,374
    • Most Online (within 30 mins)
      7,748

    Lynt
    Newest Member
    Lynt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.