Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some People Are Cruel


canutillomom

Recommended Posts

lynnelise Apprentice

I'm so glad you confronted her! What she did was sick!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I think you let her off easy. Feel better soon :D

luvs2eat Collaborator

I think you let her off easy. Feel better soon :D

I do too! Feel better soon!!

Jestgar Rising Star

You totally took the high road. Good for you!

kayo Explorer

You're a better person than me - I would have pressed charges! And the temptation to slug her would have been hard to overcome.

I'm so glad you confronted her, showed her the rash and pointed her to this site. This is not a person you need in your life. She is devoid of compassion.

Dear canutillomom's cousin,

I hope you are reading this thread.

What you did was criminal, unconscionable and downright cruel. You have been let off easy and I hope you now understand what your actions have caused. Your desire to be 'right' and to purposefully poison someone is right up there with psychopathic and sociopathic behavior. Please seek help for your behavior before you decide to poison another person for your own kicks. I pray you do not have children of your own.

Mtndog Collaborator

Thank you so very much for your replies! I went over last night and showed her the outbreaks and she could not believe how bad it was. I also gave her this website address and a book on Celiac. Finally, I told her, "Sorry, but I will never eat here again and it will be awhile until you see me again." Ok, said it with a little more emotion- and I think she finally got the message!

GOOD FOR YOU! I am so sorry that you had to go through this but am so glad you stood up for yourself.

Why anyone would do this is beyond me, but you handled this with a LOT of integrity and should be proud of yourself!

PrincessHungry Newbie

Holy crap, this is my worst fear! I can't believe this actually happened. I'm so glad you confronted her!

I would go to her house, hold her down in front of the computer and MAKE HER READ ALL OF THESE POSTS!

This is beyond unacceptable, beyond! I'm a little crazy about my food, where it is, where it came from, what it's packaged in...and heaven forbid someone try to touch or snack on my food...I go from fine to psycho in 5 seconds.

I immediately imagined the scene from Mean Girls with Lindsay Lohan when she jumps across the table. That would have been my response.

What did your family say when this happened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pac Apprentice

To be honest that's what I fear the most when eating food I don't prepare myself. Not the cross-contamination or unintentional use of gluten-containing spices, but people with "you survived whole 27 years so it can't be that bad" or "it's all in your head" attitudes.

My mom did a similar thing to me few years before I was diagnosed with gluten allergy. I was becoming allergic to more and more laundry soaps, so she tried to "cure" me with washing my clothes in the worst one without me knowing it. Not suspecting anything, I put on both pants and long-sleave shirt and headed off to 5am bus, busy lecture&exam-filled day ahead. I spent the day literally "sitting in a bag of fleas" and skipped the first less important lecture to buy at least new shirt, not having enough money for pants. Thinking she'd just forgot, I asked my mom later about what soap she used. I got a bit hesitant answer: "The one that is OK for you." ..."Are you sure? I've got itchy rash all over.", showing her the much worsened ekzema on my elbow. "Why do you thing I would wash it in the other soap?" was her reply. Later that evening, she came to my room with 'I-didn't-do-anything-wrong' statement: "I thought you won't get sick if you don't know about it. I think you're just over-reacting." The next day she apologized, but unfortunately none of us learnt the lesson. Whole my life my health and mental/psychological issues were blaimed on my psychological instability, later when GI syptoms hit home, it was even blaimed on not eating enough bread(!!!) and still I didn't get it. It took me another 5-6 years to get over the "maybe they're right and it's all in my head" way of thinking. I went gluten-free 14 month ago. The change was tremendous - no astma, ekzema, brain fog, migraines, need to sleep 12-16hrs/day, bleeding wounds that won't heal and much more. I tried to share my excitement with others just to find out that some people still believe it's all in my head - the symptoms as well as their disappearance, I'm imagining it all. It hurts when these people are your own family members, but I keep on telling myself that nobody's misinformed opinion is worth spoiling a sigle second of my day. I try to love my relatives unconditionaly and avoid eating their food.

Hope you'll get better soon.

Mskedi Newbie

Thank you so very much for your replies! I went over last night and showed her the outbreaks and she could not believe how bad it was. I also gave her this website address and a book on Celiac. Finally, I told her, "Sorry, but I will never eat here again and it will be awhile until you see me again." Ok, said it with a little more emotion- and I think she finally got the message!

You are one awesome person. Good for you for standing up to her, and good for you for not punching her in the face (which even I, a pacifist, would be inclined to do).

ReneeBTX Newbie

I have been gluten free for a few weeks now and had finally started healing (the first 2 weeks or so were sooo very bad). I explained to my family what was going on and thought I had their support.

Well, my cousin had our family over for dinner 2 nights ago and swore to me that everything would be gluten free. While we were there I questioned the safety of one dish and she said she had used a mixture of corn starch and potato starch and not wheat flour.

After dinner she asked how I liked it and how I felt. I said that everything tasted it very good and I felt fine. Then she started saying I don't have celiac disease because that was wheat flour!

24 hours after that I started itching like crazy and feeling like I had been rolled up in barbed wire and I spent most of last night in the bathroom for "different issues."

I am furious! And extremely uncomfortable! I have new outbreaks on my inner thighs and across my stomach.

Why would someone do that? (she said she did that because I didn't receive a "clinical diagnosis" just the doc saying what it was and wanted to prove to me that I could eat gluten). Are there other people out there doing stuff like this???

That would be the very LAST time I EVER ate at her home, or had her over to mine. I'm sorry, but you don't mess around with food sensitivities or allergies! You don't play games with diseases that are fatal if not taken seriously! She is DANGEROUS. I'm not even remotely joking. I would never step foot in her home, and never have her in mine. That's just how it is. If this were a deadly allergy......she could have KILLED YOU. And actually, it needs to be explained to her that way. I don't mean to sound like I'm yelling at you, I am not, but people like that just tork me right off. Playing games with other people's lives will land them in jail, in court, etc. I'm sure she felt like a real winner that night, but I feel differently on that matter.

I am so sorry you have to deal with family members like this. Sadly, I can relate because all of mine think I'm a complete and utter hypochondriac, and I refuse to eat at their homes or allow them to cook for me or have access to my food because I have no doubt that they'd probably try some little stunt like this.

I have not read all the replies, but I have no doubt that you'll handle this the way I probably would. I can't stand people who think they know everything.

sandsurfgirl Collaborator

Thank you so very much for your replies! I went over last night and showed her the outbreaks and she could not believe how bad it was. I also gave her this website address and a book on Celiac. Finally, I told her, "Sorry, but I will never eat here again and it will be awhile until you see me again." Ok, said it with a little more emotion- and I think she finally got the message!

Good for you! Please please tell me she apologized. You know, there are some nasty people in the world, but this thing has gotten under my skin. It's so deliberately evil. I just can't find another word for it. If somebody did that to me... oh I can't even think of it.

idonteatwheat Rookie

I've said it so many times, if I had to use an epipen for this so many more people would get how serious it is for me to eat a fraction of a crumb. It's so easy for someone to say it is imagined even though it causes you a whole host of issues for days afterward. Sometimes now though I have to just stop eating, I can tell at that point (but not always) and by that time it doesn't matter because it is in me and the whole icky process has started.

I've wondered at times if I have had this happen with people. I'm pretty darn certain it has happened eating out, they don't care, I just stop eating there after it happens, they lose my $.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,289
    • Most Online (within 30 mins)
      7,748

    SarahZ
    Newest Member
    SarahZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.