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Uh Oh- I've Been Glutened

Eliza13

By Eliza13
in Coping with Celiac Disease

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Eliza13 Contributor
Eliza13
Posted

I think I've had gluten today. The only different things that I ate from my usual were watermelon and cod fish. I get the cod from a local market, but I don't know what the ingredients are...I just assumed that it would be gluten free. Is it possible that it was preserved with a gluten containing substance? I could possibly be allergic to the cod itself, but am not sure.

Here's what happened after I ate it: headache, cramping, diarrhea.

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rmmadden Contributor
rmmadden
Posted

A few possible thoughts on the cod......

Some people are allergic to white fish?

Maybe you just got a bad batch (Bacteria, etc)?

Perhaps it came into cross-contamination with something?

Was it cooked in a vessel that may have had traces of gluten in it?

I have been eating baked cod quite a bit over the past 4-5months and have not had any problems. I enjoy the mild flavor and it's a good source of protein.

I hope you feel better!

Cleveland Bob B)

Ally2005 Apprentice
Ally2005
Posted

I've been gluten-free for three months and I still have D for no obvious reason at times. My GI told me that the while healing your syptoms can go up and down. This doesn't necessarily mena you injected gluten.

Ally

skbird Contributor
skbird
Posted

Hi Cleveland Bob or anyone else - I have a question about white fish allergies (if you know...) What fish are considered "white fish"? I keep trying to find info on the web (google.com) and getting sites about cat food and cat allergies. I guess it's the same info and I AM a major cat lover but wouldn't mind any info that points me in the proper direction.

Of course, as you mentioned that you eat cod with no prob, then maybe you aren't particularly versed in this area...

Just curious.

I stopped eating several kinds of fish a few years ago when I was doing the Eat Right 4 Your Blood Type diet and noticed after I tried eating them again that I would get headaches or stomach aches or smell really strongly of fish for a couple of days after (yeah, that's really fun...). They seemed to be what I would classify as white fish - sole was one, and then halibut was another (don't know if that's white fish). But cod is supposed to be ok (don't eat it, though).

Anyway, sorry it this is getting off topic but this is a knowledgeable group and I'm thinking maybe someone knows more about this...

Thanks for any help!

Stephanie

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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