Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Are You Binned After A Glutening?


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.

Three weeks. :(

tictax707 Apprentice

record recovery: one week. record misery: six weeks. average: three weeks. :blink:

bridgetm Enthusiast

Anyone have the problem of starting to improve after a glutening and then crashing back down again? I had some cross-contamination issues last week and from Wednesday through Sunday or Monday I wasn't feeling well. Really focused on simple foods, was starting to feel better (no acute pain, discomfort). But yesterday my pain started up again and worse than it was a week ago. I don't know if it's a normal recovery or if I ate something in one of those no-motivation, tired, busy, hungry moments.

jenngolightly Contributor

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.

1 week.

bluebonnet Explorer

about a week for me. :(

tictax707 Apprentice

Anyone have the problem of starting to improve after a glutening and then crashing back down again? I had some cross-contamination issues last week and from Wednesday through Sunday or Monday I wasn't feeling well. Really focused on simple foods, was starting to feel better (no acute pain, discomfort). But yesterday my pain started up again and worse than it was a week ago. I don't know if it's a normal recovery or if I ate something in one of those no-motivation, tired, busy, hungry moments.

I have totally had that problem. It usually happens when I try to introduce foods that my body isn't ready for, and my body says NO WAY Jose... :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eastvangal Newbie

About a week for me too.

Jessika Newbie

About a week for me too : (

hypersof Apprentice

same problem here for the ups-n-downs! I keep hoping this is going to get more stable soon...on the better side! (I am "only" 6 weeks gluten-free)

seems that when I feel down again, it can last anywhere from 4 days to 2 weeks :(

Sophie

MagpieWrites Rookie

Depends a bit for me - if I'm in pretty good shape beforehand and the stars are completely aligned in my favor? I've managed to shake it off in about 3 days a few times.

If not?

Up to two weeks before I can say with certainty I'm all the way back on the beam. Well... that I can see the beam from where I'm standing!

Lycopene Rookie

Ugh. I've been glutened 3 times this week due to cross contamination in my kitchen. So it's been non-stop brain fuzz and being bed ridden.

But, for about a year I've been on-and-off gluten free dieting (been at it for about 6 weeks now... even though I've been glutened 3 times this week), and the longest was about 3 weeks for me.

i-geek Rookie

Usually about a week for the worst of it to go (multi-day migraine and multi-day GI problems).

Becks85 Rookie

Usually about a week for me...I start feeling better after a few days but it takes a few more before I feel completely back to normal and can eat properly again.

dhiltonlittle Contributor

are you all completely down for the count for this long or are you still making it to work during this time?

lynnelise Apprentice

I have GI issues and am achy all over...plus I break out in a rash. This part last about 2 days. Then I get super fatigued for the next 5 or 6 days.

lynnelise Apprentice

are you all completely down for the count for this long or are you still making it to work during this time?

I work the whole time, but I have a sit down, low stress job and my own little office so I can look and feel terrible in solitude! lol!

jenngolightly Contributor

are you all completely down for the count for this long or are you still making it to work during this time?

Depends on how much I ate. I'm usually out for 3 days. Luckily, for some weird reason, I always tend to get sick toward the weekend. Still, I don't have any sick/vacation time saved up because I'm always taking off for celiac or other intolerance problems. Boo hoo. I wish I could take a vacation.

tictax707 Apprentice

Usually I can go into work and function, but I am miserable, tired, and dragging myself and my raw intestines around. I couldn't afford to take all the time off, but sometimes I do give up and stay home for a day or two when it's at the worst part.

tarnalberry Community Regular

for me, about a week. Doesn't stop me from working (either previously, when I was a software engineer, or now, when I just teach yoga), but not only are my symptoms not as severe as many other people's, but I've worked through migraines and many other painful things, so I tend to just deal (not saying exactly how well ;) ) with the pain/discomfort.

kayo Explorer

A few days to a week on average. I have RA so I'm always pushing through while fatigued and achy. That's a norm for me. When glutened I get a food poisoning like reaction so that first day or two I feel physically beat up but mentally ok. I do continue to work but I can work from home whenever I want to so those 'dragged behind a bus days' can be spent at home in my pj's. Then there are hours/days that follow where the physical piece is over but the brain fog is so bad I don't really accomplish anything and when I bounce back those days it's like they never happened. My memory is shot during those brain fog days (these are more intense than my general fog brain which I seem to have 24/7). Thank goodness I'm not a surgeon, bus driver or accountant!! :P

i-geek Rookie

are you all completely down for the count for this long or are you still making it to work during this time?

I have to go to work regardless. I'm a grad student and we really only take sick days when we either have a high fever or are vomiting. I took an accidental/CC hit on Wednesday at lunch. I've been making it through the rest of the week doped up on Tylenol (ibuprofen makes the heartburn worse). It blunts the migraine to a dull ache. I can work through a dull ache. Last night I waited too long to take Tylenol and the pain was bad enough that I had the dry heaves, but I was at home by then. I think the headache is on its way out, but now my stomach and intestines are rumbling. I'm prone to C rather than D, which is painful but not as potentially disastrous when I leave the house.

Leper Messiah Apprentice

Lol well I am an accountant so I generally am screwed with the brain fog. I sent an email to the wrong person yesterday with some sensitive info...grr.

Hmm it seems gluten hits everyone for at least a few days so it's maybe I'm getting cross contamination. I am fairly careful but the other person in my house eats a normal diet and leaves crumbs about. I'll perhaps be more diligent, keeping my own plate cutlery etc.

Anyone get severe sensitity to lack of carbs? Or is this an effect of being glutening. I seem to be hungry and tired all the time, and only carbs seem to kind of bring me out of zombie mode - the more I eat the more able to function I am.

Jestgar Rising Star

I'm through it in a couple hours.

Just wanted to point out that not everyone takes days.

i-geek Rookie

Lol well I am an accountant so I generally am screwed with the brain fog. I sent an email to the wrong person yesterday with some sensitive info...grr.

Hmm it seems gluten hits everyone for at least a few days so it's maybe I'm getting cross contamination. I am fairly careful but the other person in my house eats a normal diet and leaves crumbs about. I'll perhaps be more diligent, keeping my own plate cutlery etc.

Anyone get severe sensitity to lack of carbs? Or is this an effect of being glutening. I seem to be hungry and tired all the time, and only carbs seem to kind of bring me out of zombie mode - the more I eat the more able to function I am.

You know, I used to have the brain fog constantly, but now I don't notice it as much when I take an accidental hit. I think that for me it was a cumulative effect. A small hit is enough to pull up the more physical symptoms but doesn't take down the whole brain with it. I wonder about the carb hunger. I remember being hungry ALL the time pre-gluten-free, and I would go and pour myself another bowl of mini-wheats cereal. (sigh) I don't really crave carbs anymore. In fact, if I eat too much sugar or starch, my blood sugar goes wonky. I used to crave them a lot, though.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.