Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Vent

Leper Messiah

Recommended Posts

Leper Messiah Apprentice
Leper Messiah
Posted

Grr, I've been trying to follow this by the letter but once a week, every week for the past 3 weeks, I get glutened. Today was the day I got glutened again. Every week I try to find the culprit but beginning to think it might be CC - before I blamed Peperami and then Orangina (which I'm not so sure about) but this time for sure I didn't eat anything knowingly with gluten in it yet I'm absolutely shot with tiredness and GI symptoms.

The irony in all of this is that I can actually tell when I'm glutened - before I was tired 24/7 with no respite and I know it's selfish but it's still very frustrating knowing that for the next 3-5 days I'll feel like poo even whilst I'm eating gluten-free.

Anyone else have a day when they are sure they didn't eat anything gluteny yet are equally sure they were glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

Two things that come to mind: 1. It could just be that your system is still healing. Sometimes you feel like you got glutened, and you really didn't. Your system is just still out of whack.

2. could you have another intolerance or issue that you are reacting to?

I do know the feeling. We had Mother's Day out on Sunday morning. MIL's choice, certainly not mine. I ordered eggs (after ensuring there was nothing weird on them) and bacon. The bacon had little crumbs on it, but I didn't process that until after I ate it. I have a feeling, that was what got me. :(

nyctexangal Rookie
nyctexangal
Posted

I has similar experiences. Finally found out that it was all food intolerances, egg yolks, soy, dairy, and oils. I kept a detailed food journal to nail them down. Hope you find what's hurting you, I know how hard it is.

RoseTapper Newbie
RoseTapper
Posted

Okay, it's time to check the shampoo, conditioner, and lipstick. Remember, you can easily ingest small amounts of shampoo, etc., and a lot of that stuff has gluten in it. Wheat is a biggie in shampoos. There are a number of great gluten-free shampoos and conditioners out there. AS for lipstick, I own gluten-free ones, but I don't bother to wear the stuff.

rdunbar Explorer
rdunbar
Posted

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

eva-girl Newbie
eva-girl
Posted

toothpaste.

kkaysmiles Newbie
kkaysmiles
Posted

Ah that would probably explain why the corn chips I have that are supposed to be gluten-free seem to bother me!!!! Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


K8ling Enthusiast
K8ling
Posted

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

psawyer Proficient
psawyer
Posted

Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated.

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

tictax707 Apprentice
tictax707
Posted

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

Yes, please. I would also like to know the source of the alleged gluten contamination in corn as this is the very very first I have ever heard of such a thing. (Been gluten-free almost 10 years too!)

Thank you!

tictax707 Apprentice
tictax707
Posted

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

You drink Corona??? BARLEY???

:o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,900
    • Most Online (within 30 mins)
      7,748
    MissAprilTX
    Newest Member
    MissAprilTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Lost

      By knitty kitty · Posted

      @Jmartes71, Please do get checked for nutritional deficiencies.  A good B Complex, Vitamin D, Benfotiamine (a form of Thiamine Vitamin B1 that promotes intestinal healing), Vitamin D and magnesium are a good way to start. Correcting nutritional deficiencies with Thiamine supplements (like Benfotiamine), B Complex, and Vitamin D were my miracles. How are you doing?  Sending prayers.
    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, I think you should send the National Institute of Health peer reviewed studies I linked to your doctors.  Some doctors don't keep abreast of the recent updates to Celiac diagnosis.  They may still be operating under the old idea of waiting until intestinal damage is at a Marsh score of 3C or 4 (complete villus atrophy) before diagnosis of Celiac is made.  Better to diagnose before it gets that severe.   Much of the damage to the small intestines is microscopic and NOT visible to the naked eye.   Since you've got Celiac genes, it would be beneficial if you kept to a strict gluten free diet.  Exposure to gluten and an environmental stress (like an infection or physical stress or emotional trauma) are needed for the Celiac genes to become activated.  If you don't have active Celiac now, a gluten free diet now will help prevent developing it in future.  
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty Thank you for your response!!  So do you think my doctor might still diagnose celiac even with the negative biopsy?  At this point I'm just wondering like do I have to be super careful when I eat places for cross-contamination, or do I just have to eat gluten free and not worry about the damage so much as the symptoms, you know?  Like with celiac I know my body is attacking itself and doing damage (although apparently not haha) and with an intolerance it certainly doesn't feel good, but it's not doing the same kind of damage, you know? I sent a message to the doctor asking if I should do a video capsule endoscopy or if we should have a second opinion on the pathology but ugh, I just want a clear answer so whatever it is, I can move forward!!
    • knitty kitty
      Newly Diagnosed

      By knitty kitty · Posted

      Welcome to the forum, @Gary Libby! Have you talked to your doctors and nutritionist about checking for nutritional deficiencies and supplementing with vitamins and minerals while you're healing?   Malabsorption caused by the inflammation and damage of celiac disease can deplete our stored vitamins, making us feel poorly the majority of the time.  The B vitamins are needed to digest our food and turn it into energy for our body to function.  If we're not able to absorb nutrients from food, taking a B Complex vitamin supplement can help immensely.  Do get checked for deficiencies before starting supplements.  Ask for an Erythrocyte Transketolace test.   Consider folliwing the Autoimmune Protocol diet to help your intestines heal.  Benfotiamine, a form of thiamine Vitamin B1, has been scientifically shown to promote intestinal healing.   Hope this helps and you feel better soon!  Keep us posted on your progress.
    • knitty kitty
      Probably celiac but also confused

      By knitty kitty · Posted

      @terrymouse, I agree that you may be suffering from nutritional deficiencies already.  Get tested for nutritional deficiencies before supplementing, otherwise the vitamins you're taking can mask a deficiency.   Symptoms that you have are similar to what I experienced with malabsorption of Celiac Disease.  I would lose my appetite; if I did eat, I got full quickly, and had nausea, dizziness, trouble digesting fats, abdominal pain, and heart palpitations.  I had unintentional weight loss.  I also had my gallbladder removed.  I was deficient in the essential nutrients, especially Thiamine and the other B vitamins. Ask for an Erythrocyte Transketolace test.  Thiamine deficiency symptoms may appear first because our body can't store it for more than three weeks and our metabolic needs for Thiamine increase when we're physically sick or emotionally stressed, so we can become depleted quickly.  Thiamine deficiency symptoms include gallbladder problems and all the ones list above.  Thiamine and the other B vitamins are needed to digest our food and turn it into energy for our body to function.  Gastrointestinal Beriberi is frequently overlooked by doctors.   Ask for a DNA test to check for any known genes for Celiac Disease.  You have to have at least one gene for celiac disease to develop.  You don't have to be eating gluten for a DNA test.  Your genes don't change.  If you don't have any celiac disease genes, you can focus on other reasons for your illness.  If you do have celiac disease genes, with your positive blood test results, you, your doctors and nutritionist can focus on correcting nutritional deficiencies which will help you heal and feel better.  
×
×
  • Create New...