Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Glutened Vent


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Grr, I've been trying to follow this by the letter but once a week, every week for the past 3 weeks, I get glutened. Today was the day I got glutened again. Every week I try to find the culprit but beginning to think it might be CC - before I blamed Peperami and then Orangina (which I'm not so sure about) but this time for sure I didn't eat anything knowingly with gluten in it yet I'm absolutely shot with tiredness and GI symptoms.

The irony in all of this is that I can actually tell when I'm glutened - before I was tired 24/7 with no respite and I know it's selfish but it's still very frustrating knowing that for the next 3-5 days I'll feel like poo even whilst I'm eating gluten-free.

Anyone else have a day when they are sure they didn't eat anything gluteny yet are equally sure they were glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

Two things that come to mind: 1. It could just be that your system is still healing. Sometimes you feel like you got glutened, and you really didn't. Your system is just still out of whack.

2. could you have another intolerance or issue that you are reacting to?

I do know the feeling. We had Mother's Day out on Sunday morning. MIL's choice, certainly not mine. I ordered eggs (after ensuring there was nothing weird on them) and bacon. The bacon had little crumbs on it, but I didn't process that until after I ate it. I have a feeling, that was what got me. :(

nyctexangal Rookie

I has similar experiences. Finally found out that it was all food intolerances, egg yolks, soy, dairy, and oils. I kept a detailed food journal to nail them down. Hope you find what's hurting you, I know how hard it is.

RoseTapper Newbie

Okay, it's time to check the shampoo, conditioner, and lipstick. Remember, you can easily ingest small amounts of shampoo, etc., and a lot of that stuff has gluten in it. Wheat is a biggie in shampoos. There are a number of great gluten-free shampoos and conditioners out there. AS for lipstick, I own gluten-free ones, but I don't bother to wear the stuff.

rdunbar Explorer

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

eva-girl Newbie

toothpaste.

kkaysmiles Newbie

Ah that would probably explain why the corn chips I have that are supposed to be gluten-free seem to bother me!!!! Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

psawyer Proficient

Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated.

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

tictax707 Apprentice

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

Yes, please. I would also like to know the source of the alleged gluten contamination in corn as this is the very very first I have ever heard of such a thing. (Been gluten-free almost 10 years too!)

Thank you!

tictax707 Apprentice

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

You drink Corona??? BARLEY???

:o

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...