Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Vent

Leper Messiah

Recommended Posts

Leper Messiah Apprentice
Leper Messiah
Posted

Grr, I've been trying to follow this by the letter but once a week, every week for the past 3 weeks, I get glutened. Today was the day I got glutened again. Every week I try to find the culprit but beginning to think it might be CC - before I blamed Peperami and then Orangina (which I'm not so sure about) but this time for sure I didn't eat anything knowingly with gluten in it yet I'm absolutely shot with tiredness and GI symptoms.

The irony in all of this is that I can actually tell when I'm glutened - before I was tired 24/7 with no respite and I know it's selfish but it's still very frustrating knowing that for the next 3-5 days I'll feel like poo even whilst I'm eating gluten-free.

Anyone else have a day when they are sure they didn't eat anything gluteny yet are equally sure they were glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

Two things that come to mind: 1. It could just be that your system is still healing. Sometimes you feel like you got glutened, and you really didn't. Your system is just still out of whack.

2. could you have another intolerance or issue that you are reacting to?

I do know the feeling. We had Mother's Day out on Sunday morning. MIL's choice, certainly not mine. I ordered eggs (after ensuring there was nothing weird on them) and bacon. The bacon had little crumbs on it, but I didn't process that until after I ate it. I have a feeling, that was what got me. :(

nyctexangal Rookie
nyctexangal
Posted

I has similar experiences. Finally found out that it was all food intolerances, egg yolks, soy, dairy, and oils. I kept a detailed food journal to nail them down. Hope you find what's hurting you, I know how hard it is.

RoseTapper Newbie
RoseTapper
Posted

Okay, it's time to check the shampoo, conditioner, and lipstick. Remember, you can easily ingest small amounts of shampoo, etc., and a lot of that stuff has gluten in it. Wheat is a biggie in shampoos. There are a number of great gluten-free shampoos and conditioners out there. AS for lipstick, I own gluten-free ones, but I don't bother to wear the stuff.

rdunbar Explorer
rdunbar
Posted

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

eva-girl Newbie
eva-girl
Posted

toothpaste.

kkaysmiles Newbie
kkaysmiles
Posted

Ah that would probably explain why the corn chips I have that are supposed to be gluten-free seem to bother me!!!! Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


K8ling Enthusiast
K8ling
Posted

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

psawyer Proficient
psawyer
Posted

Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated.

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

tictax707 Apprentice
tictax707
Posted

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

Yes, please. I would also like to know the source of the alleged gluten contamination in corn as this is the very very first I have ever heard of such a thing. (Been gluten-free almost 10 years too!)

Thank you!

tictax707 Apprentice
tictax707
Posted

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

You drink Corona??? BARLEY???

:o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748
    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.